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1.
[Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study]. / Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung erste Erkenntnisse aus der ZSE-DUO Studie.
Psychother Psychosom Med Psychol
; 73(1): 9-15, 2023 Jan.
Artículo
en Alemán
| MEDLINE | ID: mdl-35793670
2.
Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review.
Eur J Pediatr Surg
; 30(3): 225-231, 2020 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-32422679
3.
An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES).
Disabil Rehabil
; 39(24): 2499-2503, 2017 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-27636099
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