Detalles de la búsqueda
1.
[Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study]. / Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung erste Erkenntnisse aus der ZSE-DUO Studie.
Psychother Psychosom Med Psychol
; 73(1): 9-15, 2023 Jan.
Artículo
en Alemán
| MEDLINE | ID: mdl-35793670
2.
Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment.
Health Qual Life Outcomes
; 17(1): 49, 2019 Mar 18.
Artículo
en Inglés
| MEDLINE | ID: mdl-30885197
3.
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia.
Qual Life Res
; 28(9): 2553-2563, 2019 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-31093848
4.
Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study.
BMC Pediatr
; 19(1): 330, 2019 09 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-31510959
5.
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study.
Child Care Health Dev
; 45(1): 79-88, 2019 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30221367
6.
Exploring the Potential of a Pretend Play Intervention in Young Patients With Leukemia.
J Pediatr Nurs
; 44: e98-e106, 2019.
Artículo
en Inglés
| MEDLINE | ID: mdl-30503254
7.
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and Germany.
J Pediatr Gastroenterol Nutr
; 67(4): 469-477, 2018 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-29738345
8.
Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress.
Clin Psychol Psychother
; 25(1): e107-e118, 2018 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-28960605
9.
Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine.
Pediatr Endocrinol Rev
; 15(Suppl 1): 109-118, 2017 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-29292874
10.
Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents.
Clin Psychol Psychother
; 24(6): 1370-1376, 2017 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-28675583
11.
Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?
Health Qual Life Outcomes
; 14(1): 150, 2016 Oct 21.
Artículo
en Inglés
| MEDLINE | ID: mdl-27769269
12.
Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the Netherlands.
Eur J Pediatr
; 175(3): 347-54, 2016 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-26472642
13.
Stunted Growth. Proceedings of the 23rd Aschauer Soiree, Held at Aschauhof, Germany, November 7th 2015.
Pediatr Endocrinol Rev
; 13(4): 756-67, 2016 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-27464419
14.
Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States.
Health Qual Life Outcomes
; 13: 43, 2015 Apr 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-25889818
15.
Understanding the impact of statural height on health-related quality of life in German adolescents: a population-based analysis.
Eur J Pediatr
; 174(7): 875-82, 2015 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-25535173
16.
[Living with achondroplasia- how do young persons with disproportional short stature rate their quality of life and which factors are associated with quality of life?]. / Leben mit Achondroplasie.
Z Kinder Jugendpsychiatr Psychother
; 43(6): 433-41, 2015 Nov.
Artículo
en Alemán
| MEDLINE | ID: mdl-26602047
17.
Insightfulness and later infant attachment in clinically depressed and nonclinical mothers.
Infant Ment Health J
; 35(3): 210-9, 2014.
Artículo
en Inglés
| MEDLINE | ID: mdl-25798476
18.
[How do Affected Children and Adolescents Experience their Short Stature, and what is the Point of View of their Parents?]. / Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?
Prax Kinderpsychol Kinderpsychiatr
; 63(8): 635-48, 2014.
Artículo
en Alemán
| MEDLINE | ID: mdl-25524035
19.
Health-related quality of life in pre-pubertal children with pediatric growth hormone deficiency: 12-month results from a phase 3 clinical trial of once-weekly somatrogon versus once-daily somatropin.
Curr Med Res Opin
; 40(2): 175-184, 2024 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-38053515
20.
Growth hormone treatment in children with short stature: impact of the diagnosis on parents.
J Pediatr Endocrinol Metab
; 37(4): 326-335, 2024 Apr 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-38421314