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1.
[Quality of Life and Experienced Distress of Patients Suspected of having a Rare (Chronic) Health Condition - Initial Findings from the ZSE-DUO Study]. / Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung erste Erkenntnisse aus der ZSE-DUO Studie.
Psychother Psychosom Med Psychol
; 73(1): 9-15, 2023 Jan.
Artículo
en Alemán
| MEDLINE | ID: mdl-35793670
2.
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study.
Child Care Health Dev
; 45(1): 79-88, 2019 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30221367
3.
Growth hormone treatment in children with short stature: impact of the diagnosis on parents.
J Pediatr Endocrinol Metab
; 37(4): 326-335, 2024 Apr 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-38421314
4.
DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing.
J Neuromuscul Dis
; 11(2): 473-483, 2024.
Artículo
en Inglés
| MEDLINE | ID: mdl-38457144
5.
Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach.
Front Endocrinol (Lausanne)
; 14: 1093983, 2023.
Artículo
en Inglés
| MEDLINE | ID: mdl-37008922
6.
Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs.
Int J Environ Res Public Health
; 20(5)2023 03 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-36901502
7.
Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia.
Int J Environ Res Public Health
; 19(13)2022 06 30.
Artículo
en Inglés
| MEDLINE | ID: mdl-35805703
8.
Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations.
Innov Surg Sci
; 6(4): 151-160, 2021 Dec 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-35937850
9.
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study.
Orphanet J Rare Dis
; 16(1): 120, 2021 03 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-33676542
10.
Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives.
PLoS One
; 11(4): e0153953, 2016.
Artículo
en Inglés
| MEDLINE | ID: mdl-27097033
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