The therapeutic pathway of families of children with cancer: difficulties faced in this journey. / O itinerário terapêutico de famílias de crianças com câncer: dificuldades encontradas neste percurso.

OBJECTIVE: To know the difficulties faced by families in the therapeutic pathway of children with cancer. METHOD: Qualitative, descriptive and exploratory research, with a quantitative approach, performed from March to November 2016, through face-to-face semi-structured interviews, with 21 relatives of children undergoing oncological treatment at a federal university hospital in Rio de Janeiro, whose data were submitted to content analysis. RESULTS: The difficulties of these families traverse the identification and investigation by health professionals regarding the signs and symptoms of children as well as the passage of relatives through various health services until diagnostic confirmation. FINAL CONSIDERATIONS: The early diagnosis of childhood cancer depends on actions from health and teaching institutions for the appropriate investigation of the disease by professionals, including the nurse who works with risk classification in emergency departments and in primary care, besides the appropriate operation of the reference and counter-reference system of the health system.

[The use of playing by the nursing staff on palliative care for children with cancer]. / O uso do brincar pela equipe de enfermagem no cuidado paliativo de crianças com cancer.

This study aimed to describe ways of using play by the nursing staff on palliative care of children with cancer and analyze the facilitators and barriers of the use of playing on this type of care. Qualitative, descriptive research developed on November 2012 with 11 health professionals, in a public hospital of the state of Rio de Janeiro. Semi-structured interviews and thematic analysis of the information were conducted. The use of playing before procedures was highlighted as a facilitator on palliative care. The child's physical condition, one's restriction, resistance of some professionals and the lack of time for developing this activity, made the use of play harder. We concluded that playing enables the child with cancer, in palliative care, a humanized assistance, being fundamental to integrate it on the care for these children.

Usability of the ROBOVID mobile app for health education about COVID-19.

OBJECTIVE: to evaluate the usability of the ROBOVID mobile application for health education about COVID-19. METHOD: methodological study with an applied quantitative approach, developed with 21 adults, using an electronic form. Usability was assessed using the System Usability Scale. The Statistical Package for the Social Sciences software was used to analyze the data. RESULTS: the overall average score on the System Usability Scale questionnaire was 87.3, which classifies the usability of the ROBOVID application as the best achievable. Furthermore, the application has high scores for ease of memorization, user satisfaction and ease of getting to know the system, as well as excellent scores for absence of errors and speed in carrying out the tasks set. CONCLUSION: the ROBOVID application complies with the principles of usability in terms of efficiency, effectiveness and satisfaction in the evaluation of end users, showing that the application meets consumer needs in terms of its functionalities, demonstrating its viability in terms of the initial objectives. (1) ROBOVID was considered better achievable on the SUS scale by the participants. (2) The ROBOVID app meets the user's needs in terms of its functions. (3) ROBOVID helps individuals to take care of themselves and prevent COVID-19. (4) The ROBOVID app was evaluated as a useful, didactic and functional tool.

Health education website on home care for newborns: construction, validation, and evaluation.

OBJECTIVE: to build, validate, and evaluate an educational health website on home care for newborns for use by pregnant women, postpartum women, and family members. METHOD: methodological study developed according to the Analyze, Design, Develop, Implement, and Evaluate model. After construction, the website was validated by 20 experts and evaluated by 20 individuals from the target audience, and the data wasanalyzed according to the Concordance Index with a cut-off point equal to or greater than 0.7 (70%). RESULTS: in the validation, the Concordance Index for all the items was higher than 0.7 (70%), with a variation between 0.75 (75%) and 1 (100%), reaching an overall average value of 0.91 (91%). In the evaluation, all the items got top marks, with anoverall average value of 1 (100%). CONCLUSION: the educational website was built, validated, and evaluated in a satisfactory manner. It can be considered an appropriate tool for its purpose, with benefits in the teaching-learning process for families regarding postnatal home care fornewborns through its use. It can also be used to educate students and health professionals. The website is available for free access via laptops, computers, smartphones, or tablets.

Factors associated with the indication of neonatal echocardiography in the investigation of congenital heart diseases.

OBJECTIVE: To analyze the factors associated with the indication of echocardiography for the investigation of congenital heart disease among newborns. METHOD: Retrospective sectional study through the collection of 848 medical records of patients admitted to maternity hospitals in Rio de Janeiro-Brazil, respecting the time frame from September to December 2022. RESULTS: The average age of mothers was 26.5±6.3 years; 52.7% were classified as brown. The average age of the newborns was 3.5±5.6 days. Maternal variables: gestational age (OR=6.93, CI:3.76-12.80), number of gestational risk factors (1.90: 1.47-2.45) and number of medications (1. 97: 1.40-2.77); and neonatal variables: age (1.07: 1.03-1.02), prematurity (10.55: 5.29-21.03) and number of risk factors (2.62: 2.03-3 .38) were significantly associated with the indication for echocardiography (p<0.001). CONCLUSION: It is concluded that the different maternal and neonatal variables, gestational age, number of gestational risk factors, number of medications, age, prematurity and number of risk factors, respectively, showed a significant association for the indication of echocardiography. Therefore, the identification of these factors will enable the investigation of congenital heart disease at an opportune time among newborns.

Evaluation of the mobile application "Descomplicando a Amamentação" by family members of newborns. / Evaluación de la aplicación móvil Descomplicando a Amamentação por familiares de recién nacidos.

to evaluate the semantics, appearance and usability of the mobile application "Descomplicando a Amamentação" for family members of newborns.applied methodological study, developed with 20 family members of newborns users of educational technology, including pregnant women, postpartum women and family members of newborns. An evaluation instrument containing questions about semantics and appearance was applied, in addition to the System Usability Scale to evaluate usability. In data analysis, the Agreement Index was used, with a cutoff point of 0.8 (80%).when evaluating semantics and appearance, the application achieved a Global Agreement Index of 0.99 (99%), varying from 0.95 (95%) to 1.0 (100%) between the items evaluated. In usability, a global average of 93 was achieved, presenting the best usability achievable in all system characteristics.the technology was considered understandable, relevant, and efficient, as well as easy to use and low inconsistency with high user satisfaction, demonstrating excellent potential for families.

Development and validation of a video on first aid for choking incidents in the school environment.

OBJECTIVE: To develop and validate an educational video on first aid for choking incidents in children in the school environment. METHOD: Methodological study, conducted between 2021 and 2022, in six stages: search for themes through interviews with 13 teachers and staff members who work in early childhood education in Niterói; theoretical study; development of the video; validation with 17 expert judges; video adaptation and validation with 17 teachers and staff. The interviews were analyzed using the Iramuteq software and the validation through the concordance index, with a desirable value of 70%. RESULTS: The animated video, lasting 4 minutes and 10 seconds, addressed the identification and management of the child experiencing choking and was validated with a concordance index of 97% among the judges and 96% with target audience. CONCLUSION: The video is a validated technology that can be used to develop educational practices with professionals in the school environment.

Continuing breastfeeding upon returning to work: feelings, challenges and strategies of breastfeeding nurses.

OBJECTIVE: To describe feelings, challenges and strategies related to the continuity of breastfeeding after returning to work in the perception of lactating nurses. METHOD: Descriptive, exploratory, qualitative study, with snowball sampling. Data collection occurred virtually between August and September 2020 in the State of Rio de Janeiro. Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires software and a thematic analysis were used. RESULTS: 42 breastfeeding nurses participated and cited fear, missing the child, anguish, and pleasure in returning to work. Challenges such as lack of infrastructure for pumping the breast in health services, unfavorable scales, and multiple jobs were reported. Support networks, listening spaces, and appropriate times and places for breast milk pumping were mentioned as strategies. CONCLUSION: Different feelings and challenges for the continuity of breastfeeding upon returning to work were identified; some strategies found were common to other working women while others related to the specific nursing work context.

Construction and validation of a mobile application for health education about COVID-19.

OBJECTIVE: To construct and validate a mobile application for health education about COVID-19. METHOD: Methodological study, developed in six stages, in the state of Rio de Janeiro, between June 2020 and August 2021, with 20 health professionals, using an electronic form. Validation took place through the Content Validity Index, whose indexes should be greater than or equal to 80%. RESULTS: The application called ROBOVID was constructed and validated by expert judges on the subject, with a Content Validity Index of 100% for the domains of content and cultural adequacy, and with a variation of 90 to 100% for the domains of language, illustration, and presentation, achieving 97% on the Overall Validity Index and 98% on the "ten golden rules" for use in health education. CONCLUSION: The ROBOVID application proved to be a valid technological tool for health education about COVID-19 among the Brazilian population.

Adherence to humanized care practices for newborns with good vitality in the delivery room.

OBJECTIVE: To know the intervening factors in the adherence of health professionals to humanized care practices for newborns with good vitality in the delivery room. METHOD: Qualitative research, through an online form with 36 health professionals working in delivery rooms in Rio de Janeiro. Data processed in the Interface de R pour Analyses Multidimensionnelles de Textes Et de Questionnaires and analyzed according to Thematic Content Analysis. RESULTS: Skin-to-skin contact was identified as a factor that is directly related to timely clamping of the umbilical cord and breastfeeding in the first hour of life. Other intervening factors were: acceptance, training and professional category; type of delivery; qualification and training of teams. CONCLUSIONS: Professional improvement combined with encouragement from the leadership, partnership between peers, good working conditions, human resources and infrastructure and guidance to families provide adherence to humanized care practices for the newborn in the delivery room.

Production and validation of educational video to encourage breastfeeding.

OBJECTIVE: To produce and validate an educational technology in health in video format to encourage breastfeeding in families. METHODS: Methodological study, carried out in a virtual environment, from February to August 2021, in seven stages. The Content Validity Index was used, with desirable values ​​equal to or greater than 0.70. RESULTS: The video lasting 7 minutes and 38 seconds was validated by 20 expert judges and 20 pregnant women, postpartum women, and family members, using a Global Content Validity Index of 0.97 and 1.00, respectively. All items evaluated regarding functionality, usability, efficiency, audiovisual technique, environment, procedure, objectives, organization, video style, appearance and motivation reached indexes equal to or greater than 0.95. CONCLUSIONS: The video produced is a validated educational technology that can be used to encourage breastfeeding with families, as it elucidates, in an innovative and creative way, different issues related to breastfeeding.

Exclusive breastfeeding and professionals from the family health strategy.

OBJECTIVES: to analyze the perception of health professionals about exclusive breastfeeding in Family Health Strategy units in the city of Macaé. METHODS: qualitative study carried out in four units of the Family Health Strategy in the city of Macaé, Rio de Janeiro. Thirty health professionals were interviewed from March to May 2019. Textual contents were processed in the IRaMuTeQ® software by the Descending Hierarchical Classification. RESULTS: professionals use different strategies for actions to promote, protect and support breastfeeding in prenatal consultations, but social and cultural determinants are important issues that interfere in this process, the involvement of the family being essential for the success of this practice. FINAL CONSIDERATIONS: health professionals, including nurses, need training and qualification to strengthen the support and social network of pregnant women and insert the family in the different strategies used to improve adherence to exclusive breastfeeding.

Home care for children with gastrostomy.

OBJECTIVES: to describe home care practices performed by family members for maintaining the life of children with gastrostomy. METHODS: qualitative research using the Sensitive Creative method, with the Criatividade e Sensibilidade Corpo Saber [Corpo Saber Creativity and Sensitivity] dynamics. The participation included ten family caregivers of children with gastrostomy. The outpatient clinic of a federal hospital in Rio de Janeiro was the setting. Lexical analysis was used through the IRaMuTeQ® software. RESULTS: Theme 1, entitled "The care for maintaining life performed by family members of children with gastrostomy at home", was analyzed, comprising three classes: "The gastrostomy tube home care routine"; "The care with the gastrostomy/stoma"; and "Food and medication home care routine of children with gastrostomy". FINAL CONSIDERATIONS: family caregivers used strategies to maintain the device and acquired new knowledge in this field, and in nursing competence, regarding stoma care, food administration, medication, and syringes.

Tools for managing childcare in the postoperative period of cardiac surgery: an integrative review.

OBJECTIVE: To analyze the scientific literature on the application of management tools in the postoperative period of pediatric cardiac surgery. METHODS: integrative review including studies published between 2004 and 2018 in the following databases: LILACS, BDENF, coleciona SUS, MEDLINE/PUBMED, CINAHL and SCOPUS, via Portal de Periódicos da Capes, Scientific Electronic Library Online (SciELO) and Academic Google research. RESULTS: Twelve articles that met the inclusion criteria were analyzed. The studies demonstrated that strategies such as extracorporeal membrane oxygenation, renal replacement therapy and the risk scores for Risk Adjustment for Congenital Heart Surgery 1 and Aristotle Basic Score favored the stratification the demand for care and predicted the risk for mortality. FINAL CONSIDERATIONS: The applicability of risk scores and emerging strategies for the management of childcare in the postoperative period of cardiac surgery was described by the evaluation of possibilities of performance and/or efficiency of the treatments developed.

The therapeutic itinerary of health workers diagnosed with COVID-19.

OBJECTIVE: to analyze the therapeutic itinerary of health workers diagnosed with COVID-19. METHOD: qualitative study conducted with 132 health workers diagnosed with COVID-19. Data were collected using a semi-structured form sent through the social media and processed with the Interface de R pour Analyses Multidimensionnelles de Textes et de Questionnaires, according to the Descending Hierarchical Classification. RESULTS: the participants included 116 women and 16 men with 14 different professions within the health field. Five classes of excerpts emerged from the text, revealing the therapeutic itinerary from the onset of symptoms, up to referrals for testing and confirming COVID-19. Additionally, the aspects that facilitated or hindered access to testing in healthcare units were identified, in addition to misinformation and the need for workers to pay for the tests to obtain a diagnosis. CONCLUSION: this study's results show the difficulties health workers experienced to access the tests and related information and the delay in accessing the results and obtaining a sick leave to remain in isolation at home. The health workers who did not get support in terms of management and monitoring from the facilities where they worked adopted an active search.

Factors associated to the practice of using masks by the population of Paraíba during the COVID-19 pandemic. / Fatores associados à prática do uso de máscaras pela população paraibana durante a pandemia da COVID-19.

OBJECTIVE: To evaluate the practice of using masks by the population of the Brazilian state of Paraíba during the COVID-19 pandemic. METHOD: Cross-sectional, descriptive-analytical study conducted with adults living in the state of Paraíba through an online instrument from April to May 2020, through the Face Mask Use Scale of Faculdades Metropolitanas Unidas da Paraíba. RESULTS: The participants amounted to 1,307 (100.0%) individuals, who were predominantly female (78.0%), aged 35 to 45 (32.3%), married (53.3%) and post-graduates (46.9%). The mean score for the practice of using masks was 18.7 (SD = 8.0; minimum 6.00; maximum 30). The use of masks for self-protection scored 9.8 (DP = 3.9; minimum 3.0; maximum 15.0), whereas the score for protection of others was 8.9 (SD = 4.5; minimum 3.0; maximum 15.0). In the comparison between the scores of the practice of using masks, there was a significant statistical difference for gender, education, age group, and income (p ≤ 0.01). The practice of using masks was more frequent in health environments, 7.3 (DP = 3.2). CONCLUSION: The practice of using masks was predominant among women, people over 35, married, with an income higher than seven minimum wages, and post-graduation. The use of masks for self-protection was higher than for the protection of others and its use in health environments was higher than in the others.

Children with congenital heart disease in COVID-19 pandemic times: an integrative review.

OBJECTIVE: to identify the scientific production in health about children with congenital heart disease in COVID-19 pandemic times. METHOD: this is an integrative review, carried out in June 2020 in the information resources Latin American and Caribbean Literature in Health Sciences (LILACS), National Library of Medicine, National Institutes of Health (PubMed), Scientific Electronic Library Online Journal Portal (SciELO) and Brazilian Institute of Information Science and Technology (Oasis Ibict). RESULTS: 14 studies composed this review. Most studies pointed to tests, interventional procedures and surgery for children with heart disease in pandemic times; others discussed possible complications of COVID-19 among children with congenital heart disease. CONCLUSION: the incipient production of studies and the weak level of evidence denote an important knowledge gap so far, highlighting the need for studies with strong scientific evidence for the formulation of care guidelines aimed at children with heart disease.

The path from suspicion to diagnosis of people with Covid-19.

OBJECTIVE: To know the therapeutic itinerary of people diagnosed with Covid-19 from suspicion to the diagnosis. METHOD: Qualitative research. 65 people diagnosed with Covid-19 residing in Rio de Janeiro participated. Data collected using a semi-structured form sent via social media and processed in the software Interface de R pour Analyses Multidimensionnelles de Textes Et de Questionnaires by Descending Hierarchical Classification and Correspondence Factor Analysis. RESULTS: Three classes of text segments were obtained that revealed the therapeutic itinerary, with emphasis on the search for care; shortage of tests; need to return to the units for diagnosis and follow-up; and the path to confirmatory test. CONCLUSION: The therapeutic itinerary of patients with Covid-19 showed weaknesses in the face of difficulties related to access to diagnostic tests and the organization of the system to meet the population's demand in the face of the pandemic.

Quality of Life for Women with Human Papillomavirus-induced Lesions.

OBJECTIVE: To reveal the changes in the quality of life reported by women with Human papillomavirus (HPV)-induced lesions. METHODS: This is a cross-sectional, descriptive-exploratory study of a qualitative approach performed from June to August 2016. Semi-structured face-to-face interviews based on five questions on the concept of quality of life were used. The data were submitted to thematic analysis. All ethical aspects have been contemplated. RESULTS: A total of 20 women aged between 25 and 59 years old were interviewed. From the analysis of the data, the following thematic units emerged: physical and emotional changes, especially complaints of pruritus, discharge and pain, worry, fear, shame and sadness; changes in sexual and affective relationships with decreased libido, dyspareunia and interruption of sexual activity; changes in social relationships resulting in absenteeism at work. CONCLUSION: Human papillomavirus infection impairs the quality of life of women as it significantly affects sexual, affective, physical, emotional, and everyday habits. Therefore, HPV infection can lead to exponential changes in the quality of life of women, which can be mitigated by the availability of sources of support such as family, friends and the multi-professional team, helping to improve knowledge and cope with HPV.

OBJETIVO: Desvelar as alterações na qualidade de vida referidas por mulheres com lesões induzidas pelo papilomavírus humano (HPV). MéTODOS: Trata-se de um estudo transversal, descritivo-exploratório, de abordagem qualitativa, realizada no período de junho a agosto de 2016. Foram utilizadas entrevistas semiestruturadas face a face, a partir de cinco questões fundamentadas no conceito de qualidade de vida. Os dados obtidos foram submetidos a análise temática. Todos os aspectos éticos foram contemplados. RESULTADOS: Foram entrevistadas 20 mulheres com idades entre 25 e 59 anos. A partir da análise dos dados, emergiram as seguintes unidades temáticas: alterações físicas e emocionais com destaque para as queixas de prurido, corrimento e dor, preocupação, medo, vergonha e tristeza; alterações nas relações sexuais e afetivas com diminuição da libido, dispareunia e interrupção da atividade sexual; alterações nas relações sociais com ausências consecutivas no trabalho. CONCLUSãO: A infecção pelo HPV prejudica a qualidade de vida das mulheres, uma vez que afeta de maneira considerável os aspectos sexuais, afetivos, físicos, emocionais e hábitos cotidianos. Portanto, a infecção pelo HPV pode acarretar mudanças exponenciais na qualidade de vida de mulheres, as quais podem ser amenizadas pela disponibilidade de fontes de apoio, como família, amigos e equipe multiprofissional, que auxiliam no nível de conhecimento e enfrentamento do HPV.

Cultural adaptation of Infant Feeding Intentions Scale (IFI) for pregnant women in Brazil.

OBJECTIVES: to translate and culturally adapt the Infant Feeding Intentions Scale for pregnant women in Brazil. METHODS: methodological study that included stages of translation, synthesis, face and content validation, back translation and semantic assessment. In the face and content and semantic validation stages, we used the Content Validity Index for individual items and for the overall scale for clarity and representativeness. RESULTS: nine (100.0%) experts participated in face and content validation, and the average index obtained was 85.0% for representativeness. In the semantic assessment, performed with 31 (100.0%) pregnant women, the tool was considered clear, obtaining an average index of 91.0%. CONCLUSIONS: the Brazilian version of the scale was considered representative and clear. After assessing psychometric properties, the scale is expected to be valid and reliable to assess maternal intention to breastfeed exclusively until the infant's six months of life in different Brazilian settings.