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1.
Soc Work Health Care ; 59(2): 91-107, 2020 02.
Article in English | MEDLINE | ID: mdl-31964295

ABSTRACT

A strong interpersonal relationship after stroke is important for the well-being of survivors and family caregivers. However, as many as 54% of families experience relationship problems after stroke and as many as 38% of couples experience overt conflict. The purpose of this study is to enhance understanding about relationship challenges among stroke dyads and to identify implications for direct practice in social work. Semi-structured interviews were conducted with N = 19 care dyads. Qualitative data were analyzed through an interpretive description lens. Seven themes about relationship challenges were identified. Findings highlight areas to consider in promoting strong relationships between survivors and family caregivers. Social workers may have the opportunity to assist dyads with disrupting negative communication cycles, strengthening empathy and collaboration, and achieving a balance so that each person's needs are met.


Subject(s)
Caregivers/psychology , Interpersonal Relations , Stroke/psychology , Adult , Aged , Aged, 80 and over , Caregiver Burden , Cognition , Communication , Cooperative Behavior , Empathy , Family Relations , Female , Humans , Interviews as Topic , Male , Middle Aged , Physical Functional Performance , Qualitative Research , Social Work/organization & administration , Socioeconomic Factors , United States
2.
Top Stroke Rehabil ; 25(8): 569-575, 2018 12.
Article in English | MEDLINE | ID: mdl-30207873

ABSTRACT

BACKGROUND: Stroke survivors and family caregivers often have incongruent appraisals of survivor cognitive, physical, and psychosocial function. Partner incongruence contributes to poor outcomes for survivors and caregivers. OBJECTIVES: This study explored whether partner incongruence: (1) differs by function domain; (2) increases or decreases over time, and; (3) is associated with self-rated health, distress, stress, and depressive symptoms. METHODS: Structured surveys were administered to 32 survivors and caregivers at approximately 3 (enrollment) and 7 months (follow-up) post-stroke. Paired t-tests were used to examine partners' ratings of survivor function at enrollment and follow-up, and changes in incongruence over time. Partial correlations were used to examine the association between incongruence at enrollment and outcomes at follow-up. RESULTS: Survivors consistently rated their own memory and thinking as significantly better than caregivers rated their memory and thinking. At follow-up, survivors rated their own communication as significantly better than caregivers rated their communication. Incongruence about survivor memory and thinking was associated with survivor distress, as well as caregiver distress, stress, and depressive symptoms. Incongruence about survivor ADLs was associated with caregiver stress and depressive symptoms. Incongruence about survivor social participation was associated with caregiver distress. CONCLUSIONS: Findings from this study suggest that survivors and caregivers often have incongruent appraisals of survivor function, that incongruence does not improve naturally over time, and that incongruence may be detrimental for survivor and caregiver outcomes. Further research should be directed at the mitigation of incongruence and strategies to improve outcomes for both survivors and family caregivers.


Subject(s)
Caregivers/psychology , Stroke Rehabilitation , Stroke/mortality , Stroke/psychology , Survivors , Treatment Outcome , Adult , Aged , Aged, 80 and over , Cognition Disorders/etiology , Depression/etiology , Female , Follow-Up Studies , Humans , Male , Middle Aged , Self-Assessment , Stroke/complications
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