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1.
J Am Psychiatr Nurses Assoc ; : 10783903231201592, 2023 Sep 21.
Artículo en Inglés | MEDLINE | ID: mdl-37735880

RESUMEN

BACKGROUND: Depression and anxiety are two of the top five mental illnesses veterans report. Treatment for depression and anxiety includes medications and psychiatric treatment in inpatient, outpatient, and residential treatment programs; the use of complementary and alternative medicine (CAM) can have beneficial results by decreasing symptoms, recognize patients' preference for CAM, and be cost-effective. AIM: This study aimed to evaluate the effects of Tai Chi on depression and anxiety symptoms on inpatient psychosocial or substance use disorder (SUD) rehabilitation treatment program residents since little evidence exists regarding the effectiveness of Tai Chi on participants in residential mental health treatment programs. METHOD: A mixed-method, cohort design with 88 participants (41 usual treatment without Tai Chi, 47 intervention) used a demographic survey, Hamilton Anxiety Scale, Quick Inventory of Depressive Symptomatology, self-report, and the Patient Health Questionnaire-9 at Weeks 1 and 4 of the treatment program. After Week 4, the intervention group responded to six open-ended questions about Tai Chi's effects on their overall depression and anxiety. RESULTS: The anxiety level of the intervention group was significantly decreased, as evidenced by the Hamilton Anxiety Scale scores (p = .02). However, the measures of depression did not differ between the groups. Two themes, mindfulness and satisfaction, were identified from the written responses regarding the Tai Chi intervention. CONCLUSION: Tai Chi effectively reduced symptoms of anxiety that varied by age and ethnicity. This study increased the insight regarding the benefit of including Tai Chi as a complementary therapy for those participating in residential treatment programs.

2.
J Nurs Care Qual ; 37(4): 313-318, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35984687

RESUMEN

BACKGROUND: Staff shortages, reduced budgets, and high acuity of violent psychiatric patients can create challenges in psychiatric intensive care units (PICUs). LOCAL PROBLEM: Staffing of the psychiatric unit was based on patient census rather than evidence-based practices. METHODS: A pre-/postintervention design was used to examine changes in nursing satisfaction and patient outcomes as measured with the National Database of Nursing Quality Indicators (NDNQI) survey results. INTERVENTIONS: A psychiatric specific acuity tool was implemented on the PICU of a Veterans Administration hospital. RESULTS: After an initial decrease related to the COVID-19 pandemic, total acuity and the total number of nurses remained relatively stable while the unit census declined. NDNQI survey results improved with the largest being a 52-percentile increase for the quality-of-care summary measure. CONCLUSIONS: An acuity tool can help standardize practice, determine fair patient assignments among staff, increase nurse satisfaction, and promote best practices for patient safety.


Asunto(s)
COVID-19 , Personal de Enfermería en Hospital , COVID-19/epidemiología , Humanos , Unidades de Cuidados Intensivos , Personal de Enfermería en Hospital/psicología , Pandemias , Seguridad del Paciente , Admisión y Programación de Personal
3.
Health Commun ; 36(3): 280-292, 2021 03.
Artículo en Inglés | MEDLINE | ID: mdl-31665940

RESUMEN

With cancer increasing in prevalence and high priorities placed on concurrent oncological and palliative care to help meet the familial, spiritual, and individual needs of stakeholders in cancer, research is needed that assesses the factors that facilitate coping across stakeholders in cancer care. We were interested in synthesizing our understanding of communication and relationships among patients, caregivers, and providers based on the reasoning that illness is relational, but often conceptualized and researched from the individual perspectives of various stakeholders. The current study examined the experiences of relational and communication opportunities and challenges during cancer for current and former family caregivers, cancer survivors, and palliative and oncology health care practitioners. The thematic analysis of 30 semi-structured interviews revealed an overarching theme on the benefits of orienting toward cancer as communal, which was, in turn, facilitated or impeded by four additional themes/sets of behaviors: support, presence, perspective-taking, and reframing hope. Results of a cross-case data matrix analysis reveal that stakeholders in different roles experience qualitative differences in their experience of cancer as communal, isolated, or ambivalent. Implications for education, palliative care, and interventions are discussed.


Asunto(s)
Cuidadores , Neoplasias , Comunicación , Personal de Salud , Humanos , Neoplasias/terapia , Cuidados Paliativos , Investigación Cualitativa , Sobrevivientes
4.
J Clin Nurs ; 25(5-6): 799-810, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-26813779

RESUMEN

AIMS AND OBJECTIVES: To evaluate the test-retest stability in assessments of perceived symptom intensity on the Edmonton Symptom Assessment System-revised and the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire Core 15 Palliative. The possible interchangeability between the instruments and the patients' experiences of completing the instruments were also studied. BACKGROUND: The two instruments assess the same symptoms, but the symptom intensity is assessed on 11-point numerical scales on the Edmonton Symptom Assessment System-revised and on four-point verbal descriptive scales on the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire Core 15 Palliative. Both instruments are commonly used; however, uncertainty exists about which instrument should be recommended and about the interchangeability of the instruments. DESIGN: This study used a test-retest design with inter-scale comparisons. METHODS: Data from 54 patients with cancer who were receiving palliative care in an oncology outpatient clinic were self-reported by the patients in the clinic, at home and when patients returned to the clinic. RESULTS: The assessments on the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire Core 15 Palliative verbal rating scales showed a higher level of test-retest stability than the assessments on the Edmonton Symptom Assessment System-revised numerical scoring scales, indicating higher reliability. The correspondence between the verbal categories and the numerical scores of symptom intensity were low because different verbal categories were used by patients who assessed the same numerical score. CONCLUSIONS: The test-retest stability in the assessments was higher on the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire Core 15 Palliative and the results show that assessments on the two instruments could not be used interchangeably. Therefore, the symptom instrument chosen must be specified and unchanged within a patient to improve efficacy in clinical practice. RELEVANCE TO CLINICAL PRACTICE: The Edmonton Symptom Assessment System-revised or the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire Core 15 Palliative can be used for initial assessments of patients, but should not be compared or used interchangeably. It is vitally important to have individual follow-up for all patients who score an instrument.


Asunto(s)
Neoplasias/psicología , Cuidados Paliativos/métodos , Calidad de Vida , Adulto , Anciano , Anciano de 80 o más Años , Instituciones de Atención Ambulatoria , Femenino , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/enfermería , Noruega , Psicometría/normas , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
5.
Cancer ; 121(22): 4080-7, 2015 Nov 15.
Artículo en Inglés | MEDLINE | ID: mdl-26218240

RESUMEN

BACKGROUND: Systematic symptom assessment is not routinely performed in pediatric oncology. The objectives of the current study were to characterize the symptoms of pediatric oncology outpatients and evaluate agreement between patient and proxy reports and the association between children's ratings and oncologists' treatment recommendations. METHODS: Two versions of the pediatric Memorial Symptom Assessment Scale (pMSAS) were translated into Spanish. An age-appropriate and language-appropriate pMSAS was administered independently before visits to the oncologist to patients and family caregivers (caregivers) and after visits to consenting oncologists. Statistical analysis included Spearman correlation coefficients and weighted kappa values. RESULTS: English and Spanish results were similar and were combined. A total of 60 children and their caregivers completed the pMSAS. The children had a median age of 10 years (range, 7-18 years); approximately 62% were male and 33% were Spanish-speaking. Fourteen oncologists completed the pMSAS for 25 patients. Nine patients (15%) had no symptoms and 38 patients (63%) reported ≥2 symptoms. The most common symptoms were fatigue (12 patients; 40%) and itch (9 patients; 30%) for the younger children and pain (15 patients; 50%) and lack of energy (13 patients; 45%) among the older children. Total and subscale score agreement varied by proxy type and subscale, ranging from fair to good for most comparisons. Agreement for individual symptoms between the patient and proxy ranged from a kappa of -0.30 (95% confidence interval, -0.43 to -0.01) to 0.91 (95% confidence interval, 0.75 to 1.00). Three of 51 symptomatic patients (6%) had treatment recommendations documented in the electronic health record. CONCLUSIONS: Symptoms are common and cross several functional domains. Proxy and child reports are often not congruent, possibly explaining apparent undertreatment among this group of patients.


Asunto(s)
Cuidadores , Oncología Médica , Neoplasias/clasificación , Adolescente , Adulto , Anciano , Niño , Femenino , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/terapia , Índice de Severidad de la Enfermedad
6.
Nurs Outlook ; 63(2): 181-8, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-25771192

RESUMEN

Challenges arise in building the knowledge needed for evidence-based practice partially because obtaining clinical research data is expensive and complicated, and many studies have small sample sizes. Combining data from several studies may have the advantage of increasing the impact of the findings or expanding the population to which findings may be generalized. The use of common data elements will allow this combining and, in turn, create big data, which is an important approach that may accelerate knowledge development. This article discusses the philosophy of using common data elements across research studies and illustrates their use by the processes in a developmental center grant funded by the National Institutes of Health. The researchers identified a set of data elements and used them across several pilot studies. Issues that need to be considered in the adoption and implementation of common data elements across pilot studies include theoretical framework, purpose of the common measures, respondent burden, teamwork, managing large data sets, grant writing, and unintended consequences. We describe these challenges and solutions that can be implemented to manage them.


Asunto(s)
Investigación Biomédica/organización & administración , Elementos de Datos Comunes , Conjuntos de Datos como Asunto , Humanos , Difusión de la Información , Evaluación de Resultado en la Atención de Salud , Proyectos Piloto
7.
Crit Care Med ; 42(5): 1024-36, 2014 May.
Artículo en Inglés | MEDLINE | ID: mdl-24394627

RESUMEN

OBJECTIVE: The debilitating and persistent effects of ICU-acquired delirium and weakness warrant testing of prevention strategies. The purpose of this study was to evaluate the effectiveness and safety of implementing the Awakening and Breathing Coordination, Delirium monitoring/management, and Early exercise/mobility bundle into everyday practice. DESIGN: Eighteen-month, prospective, cohort, before-after study conducted between November 2010 and May 2012. SETTING: Five adult ICUs, one step-down unit, and one oncology/hematology special care unit located in a 624-bed tertiary medical center. PATIENTS: Two hundred ninety-six patients (146 prebundle and 150 postbundle implementation), who are 19 years old or older, managed by the institutions' medical or surgical critical care service. INTERVENTIONS: Awakening and Breathing Coordination, Delirium monitoring/management, and Early exercise/mobility bundle. MEASUREMENTS AND MAIN RESULTS: For mechanically ventilated patients (n = 187), we examined the association between bundle implementation and ventilator-free days. For all patients, we used regression models to quantify the relationship between Awakening and Breathing Coordination, Delirium monitoring/management, and Early exercise/mobility bundle implementation and the prevalence/duration of delirium and coma, early mobilization, mortality, time to discharge, and change in residence. Safety outcomes and bundle adherence were monitored. Patients in the postimplementation period spent three more days breathing without mechanical assistance than did those in the preimplementation period (median [interquartile range], 24 [7-26] vs 21 [0-25]; p = 0.04). After adjusting for age, sex, severity of illness, comorbidity, and mechanical ventilation status, patients managed with the Awakening and Breathing Coordination, Delirium monitoring/management, and Early exercise/mobility bundle experienced a near halving of the odds of delirium (odds ratio, 0.55; 95% CI, 0.33-0.93; p = 0.03) and increased odds of mobilizing out of bed at least once during an ICU stay (odds ratio, 2.11; 95% CI, 1.29-3.45; p = 0.003). No significant differences were noted in self-extubation or reintubation rates. CONCLUSIONS: Critically ill patients managed with the Awakening and Breathing Coordination, Delirium monitoring/management, and Early exercise/mobility bundle spent three more days breathing without assistance, experienced less delirium, and were more likely to be mobilized during their ICU stay than patients treated with usual care.


Asunto(s)
Cuidados Críticos/métodos , Delirio/terapia , Hipnóticos y Sedantes/uso terapéutico , Inmovilización/efectos adversos , Respiración Artificial/efectos adversos , Desconexión del Ventilador/métodos , Adulto , Anciano , Protocolos Clínicos , Estudios de Cohortes , Ejercicio Físico , Femenino , Humanos , Inmovilización/fisiología , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Análisis de Regresión , Resultado del Tratamiento
8.
J Adv Nurs ; 70(5): 1117-27, 2014 May.
Artículo en Inglés | MEDLINE | ID: mdl-24304411

RESUMEN

AIM: The aim of this study was to describe factors that influence decisions of young African Americans to start smoking. BACKGROUND: Young adult African Americans have a high risk for becoming regular smokers, but little is understood about their smoking. This knowledge is needed because understanding young adults' smokers will help develop effective tobacco cessation and prevention strategies. DESIGN: Qualitative study. METHOD: The study consisted of 22 in-depth interviews with African Americans between the ages of 19-25. Data were collected between 2009-2010. Smokers, former smokers and non-smokers were included. RESULTS/FINDINGS: Results indicated that smoking identity of young adults was influenced by their limited and discounted knowledge of health risks and the stigma associated with the type of tobacco smoked. The importance of cost was discussed as was the effect of smoking on relationships and vice versa. Marijuana was the primary reason they started smoking tobacco. Their transition into adulthood and views of smoking, adulthood and success all influenced smoking. Additionally, self-reflection on personal choices around smoking was important and may be useful in effective smoking cessation programmes for this group. CONCLUSION: Nurses are in an ideal position to promote effective smoking cessation in young adults. Direct, culturally relevant messages are needed that fit into the context of the young adults' lives by addressing concurrent use of marijuana, self-esteem and success in life.


Asunto(s)
Negro o Afroamericano , Fumar/epidemiología , Adulto , Humanos , Factores de Riesgo , Fumar/etnología , Adulto Joven
9.
Crit Care Med ; 41(9 Suppl 1): S116-27, 2013 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-23989089

RESUMEN

OBJECTIVE: The awakening and breathing coordination, delirium monitoring/management, and early exercise/mobility bundle is an evidence-based interprofessional multicomponent strategy for minimizing sedative exposure, reducing duration of mechanical ventilation, and managing ICU-acquired delirium and weakness. The purpose of this study was to identify facilitators and barriers to awakening and breathing coordination, delirium monitoring/management, and early exercise/mobility bundle adoption and to evaluate the extent to which bundle implementation was effective, sustainable, and conducive to dissemination. DESIGN: Prospective, before-after, mixed-methods study. SETTING: Five adult ICUs, one step-down unit, and a special care unit located in a 624-bed academic medical center SUBJECTS: : Interprofessional ICU team members at participating institution. INTERVENTIONS AND MEASUREMENTS: In collaboration with the participating institution, we developed, implemented, and refined an awakening and breathing coordination, delirium monitoring/management, and early exercise/mobility bundle policy. Over the course of an 18-month period, all ICU team members were offered the opportunity to participate in numerous multimodal educational efforts. Three focus group sessions, three online surveys, and one educational evaluation were administered in an attempt to identify facilitators and barriers to bundle adoption. MAIN RESULTS: Factors believed to facilitate bundle implementation included: 1) the performance of daily, interdisciplinary, rounds; 2) engagement of key implementation leaders; 3) sustained and diverse educational efforts; and 4) the bundle's quality and strength. Barriers identified included: 1) intervention-related issues (e.g., timing of trials, fear of adverse events), 2) communication and care coordination challenges, 3) knowledge deficits, 4) workload concerns, and 5) documentation burden. Despite these challenges, participants believed implementation ultimately benefited patients, improved interdisciplinary communication, and empowered nurses and other ICU team members. CONCLUSIONS: In this study of the implementation of the awakening and breathing coordination, delirium monitoring/management, and early exercise/mobility bundle in a tertiary care setting, clear factors were identified that both advanced and impeded adoption of this complex intervention that requires interprofessional education, coordination, and cooperation. Focusing on these factors preemptively should enable a more effective and lasting implementation of the bundle and better care for critically ill patients. Lessons learned from this study will also help healthcare providers optimize implementation of the recent ICU pain, agitation, and delirium guidelines, which has many similarities but also some important differences as compared with the awakening and breathing coordination, delirium monitoring/management, and early exercise/mobility bundle.


Asunto(s)
Cuidados Críticos/métodos , Delirio/prevención & control , Ambulación Precoz/métodos , Guías de Práctica Clínica como Asunto , Agitación Psicomotora/prevención & control , Centros Médicos Académicos , Cuidados Críticos/organización & administración , Medicina Basada en la Evidencia , Grupos Focales , Encuestas de Atención de la Salud , Conocimientos, Actitudes y Práctica en Salud , Humanos , Unidades de Cuidados Intensivos , Comunicación Interdisciplinaria , Medio Oeste de Estados Unidos , Monitoreo Fisiológico/métodos , Desarrollo de Programa , Estudios Prospectivos , Respiración Artificial , Desconexión del Ventilador
10.
West J Nurs Res ; 45(4): 327-334, 2023 04.
Artículo en Inglés | MEDLINE | ID: mdl-36317232

RESUMEN

The purpose of this phenomenological study was to describe the experience of frontline nurses working during the COVID-19 pandemic. The first author conducted two individual audiotaped interviews with 23 qualified staff nurses. All the authors analyzed the professionally transcribed data according to hermeneutic principles. The researchers identified five major themes: (a) we are family; (b) heroes work here; (c) fear of contagion; (d) mental health and well-being; and (e) new reality. Given the uncertainties of working during the COVID-19 pandemic, findings revealed the value of supportive collegial relationships and the need to support the mental health and well-being needs of frontline nurses during the pandemic. Nurses need supportive environments to help ease the challenges associated with serving on the frontline during times of crisis. Findings have implications for future public health preparedness and response efforts.


Asunto(s)
COVID-19 , Enfermeras y Enfermeros , Humanos , Pandemias , Miedo , Salud Mental , Investigación Cualitativa
11.
J Contin Educ Nurs ; 53(1): 43-48, 2022 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-34978475

RESUMEN

BACKGROUND: High-quality cardiopulmonary resuscitation (CPR) is vital to improving survival from cardiac arrest. This study compared participant performance of CPR with three American Heart Association (AHA)-approved CPR recertification programs because current literature does not show which method is superior. Our goal is to investigate the best training methods to deliver high-quality CPR. METHOD: Participants were within 90 days of recertification in face-to-face, Heart Code, or Resuscitation Quality Improvement (RQI). RESULTS: No statistically significant differences were found among training modalities or demographic characteristics. The only significant difference was among those who had performed CPR on a human. CONCLUSION: Mean scores for the three modalities did not reach the passing requirement for AHA, suggesting that one method of CPR training is not better than the others. Recommendations for translating these findings into clinical practice include mock codes with the ability to measure CPR metrics and simulations of cardiac responses to provide vicarious CPR experience. [J Contin Educ Nurs. 2022;53(1):43-48.].


Asunto(s)
Reanimación Cardiopulmonar , Paro Cardíaco , Paro Cardíaco/terapia , Humanos , Mejoramiento de la Calidad
12.
West J Nurs Res ; 44(8): 780-787, 2022 08.
Artículo en Inglés | MEDLINE | ID: mdl-34039083

RESUMEN

This study aimed to identify the research priorities of clinical nurses to develop a research program at a health care services system that includes three hospitals. A Delphi survey was emailed to all clinical nurses in two rounds. The Delphi method was used to collect data from the nurses in regards to their priority research themes, and the data were analyzed using descriptive and comparative statistics. A total of 933 clinical nurses returned the first round of the Delphi survey and 543 nurses answered the second round. Clinical nurses identified 89 potential research themes. Patient safety and ethical challenges were the two highest ranked research priorities. The 40 highest ranked priority research themes were closely associated with issues concerning patient care and ethics. However, the nurses also gave high ratings to issues relating to the work environment, questions about technology implementation, and patient involvement in clinical care decisions.


Asunto(s)
Investigación en Enfermería , Técnica Delphi , Hospitales , Humanos , Seguridad del Paciente
13.
J Nurs Scholarsh ; 43(3): 239-47, 2011 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-21884369

RESUMEN

PURPOSE: To describe African American women's experience of being at high risk for breast cancer. DESIGN: A hermeneutic phenomenological approach was used to guide in-depth interviews and analysis. Methods to ensure trustworthiness and rigor were included. METHODS: Open interviews were conducted with 20 African American women who were at high risk for breast cancer (family history, personal history, genetic mutation). They were recruited from a cancer risk clinic and community-based settings. Data were transcribed verbatim, and themes were labeled among and between all interviews. FINDINGS: Five themes were identified: (a) life-changing experience; (b) relationships: fears, support, and concerns; (c) the healthcare experience; (d) raising awareness; and (e) strong faith. CONCLUSIONS: Young women at high risk for breast cancer have unique emotional and support needs that are shaped by stage in life, relationships with significant others, their faith, and interactions with the healthcare delivery system. CLINICAL RELEVANCE: Breast cancer does occur in young women. This highlights the need for timely and sensitive approaches to care when young women present with breast health concerns or abnormal breast findings.


Asunto(s)
Adaptación Psicológica , Negro o Afroamericano/psicología , Neoplasias de la Mama/etnología , Acontecimientos que Cambian la Vida , Adulto , Factores de Edad , Neoplasias de la Mama/psicología , Femenino , Conocimientos, Actitudes y Práctica en Salud/etnología , Humanos , Relaciones Interpersonales , Relaciones Médico-Paciente , Investigación Cualitativa , Religión y Psicología , Medición de Riesgo , Adulto Joven
14.
J Ambul Care Manage ; 44(2): 116-125, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33492883

RESUMEN

Two primary care clinics in rural and urban settings implemented a 9-hour nursing shift schedule. The purpose of this project was to use a quasiexperimental mixed-methods research design to assess outcomes for a 1-year implementation of nursing staff maintaining 9-hour shifts. Pre- and postdata were collected before and after implementation. The rural clinic demonstrated significant improvements in nurse satisfaction, overtime, compensatory time, and postacute follow-up. The urban facility showed significant decreases in sick leave. Patient satisfaction scores did not show significant changes for either clinic.


Asunto(s)
Atención Primaria de Salud , Población Rural , Humanos
15.
West J Nurs Res ; 43(5): 452-458, 2021 05.
Artículo en Inglés | MEDLINE | ID: mdl-32865164

RESUMEN

Fatigue is a prevalent cancer-related symptom that is difficult to communicate, define, and treat. To obtain robust descriptions of symptoms, participants were recruited into two online groups that consisted of their dialoguing together in an asynchronous, threaded discussion forum. Participants dialogued for 5 months and completed pre- and post-participation demographic data and symptom ratings. Survey data were described, and change scores were calculated. Excerpts from the dialogue were analyzed using phenomenological techniques. The 28 participants reported low symptoms that did not change significantly from pre- to post-participation. Phenomenological analysis revealed three themes: descriptions of "bone-sucking fatigue," a search for meaning or answers about the fatigue, and attempted remedies. Online support groups provide a venue for sharing symptom experiences, adding to existing knowledge about symptoms in survivors. These descriptions provide information that will aid in developing patient-centered interventions.


Asunto(s)
Fatiga , Neoplasias , Fatiga/etiología , Humanos , Neoplasias/complicaciones , Neoplasias/terapia , Sobrevivientes
16.
Children (Basel) ; 8(8)2021 Jul 29.
Artículo en Inglés | MEDLINE | ID: mdl-34438547

RESUMEN

Understanding the symptom and illness experience of children with advanced cancer facilitates quality care; yet, obtaining this understanding is complicated by the child's developmental level and physical and psychological health factors that affect communication. The purpose of this study was to describe the symptom and illness experience of English- and Spanish-speaking children with advanced cancer as described by the child and parent. We conducted hermeneutic phenomenological, descriptive, and interpretive interviews with eligible children and parents. The interdisciplinary research team analyzed transcripts hermeneutically until consensus on theme labels was reached. Four themes and associated subthemes were identified from the interviews of the 10 child-parent dyads: 1. symptoms disrupt life (path to diagnosis, life is disrupted), 2. isolation (lack of understanding, family separations/relationships), 3. protection, and 4. death is not for children. Children and parents readily described the impact symptoms and cancer treatment had on their lives and relationships. These findings underscore the salient aspects of daily life disrupted by cancer. With a deeper understanding of symptom burden and its interference, relationship and communication implications, and anticipatory grief, the treating team may better optimize care for children and their families living with advanced cancer.

17.
Cancer Nurs ; 43(2): E113-E120, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-30676398

RESUMEN

BACKGROUND: Hematopoietic stem cell transplantation (HSCT) is an intensive treatment that offers the potential for longer life or cure for some types of cancer. Hematopoietic stem cell transplant is associated with decreased quality of life and functional status and distressing symptoms. Self-efficacy for symptom management (SESM) is a person's belief in his/her ability to implement behaviors to manage these symptoms. Presence of SESM can affect symptom distress, healthcare utilization, and posttransplantation outcomes. OBJECTIVE: The aim of this study was to explore the meaning of SESM in adults during the acute phase of HSCT. METHODS: Interviews were conducted before and at 30 days after transplantation. Descriptive thematic analysis was performed on verbatim interview transcripts. RESULTS: Themes of confidence, being responsible, and caring for mind, body, and spirit were identified, with subthemes of self-confidence, confidence in others, confidence and symptom level, vigilance, self-advocacy, and normalcy. Participants reported having high SESM before transplantation and having much less or no SESM when symptom distress was the most severe. CONCLUSIONS: This is the first study to examine the patient's perspective of self-efficacy in the acute phase of HSCT. This contributes to existing literature on the concept of symptom management and expands nursing knowledge of SESM in patients undergoing HSCT. IMPLICATIONS FOR PRACTICE: Nurses can assess SESM before transplantation and implement interventions to enhance SESM when symptoms are at their most distressing after HSCT. The findings from this study can provide the basis for creating behavioral interventions to enhance self-efficacy for symptom management in HSCT patients.


Asunto(s)
Trasplante de Células Madre Hematopoyéticas/psicología , Neoplasias/terapia , Autoeficacia , Adulto , Anciano , Femenino , Trasplante de Células Madre Hematopoyéticas/enfermería , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/enfermería , Investigación Cualitativa
18.
West J Nurs Res ; 42(4): 286-292, 2020 04.
Artículo en Inglés | MEDLINE | ID: mdl-31204610

RESUMEN

People compare themselves to others for self-evaluation, practical information, and motivation for healthy behaviors. The effect of active peer models on comparative thinking is unknown. The purpose of this 12-week, randomized, two-group pilot study was to evaluate the effect of a workplace peer modeling intervention on self-efficacy, motivation, and comparative thinking. The attention control group (ACG; n = 24) received general health information. The intervention group (n = 26) met with active peer models, received an exercise prescription and information. No significant group by time interaction effects were found. Comparisons on ability (how well am I doing), opinions (what should I think or believe), future self (think about my future), and modeling (be like someone else) all increased in the intervention group (n = 21) but decreased in the ACG (n = 22). Active peer models may support physical activity behavior change through specific lines of comparative thinking.


Asunto(s)
Ejercicio Físico , Conductas Relacionadas con la Salud , Motivación , Grupo Paritario , Autoeficacia , Adulto , Femenino , Humanos , Proyectos Piloto , Lugar de Trabajo/psicología
19.
J Palliat Care ; 25(3): 164-71, 2009.
Artículo en Inglés | MEDLINE | ID: mdl-19824277

RESUMEN

BACKGROUND: Information is limited about the experiences of delirium among patients with advanced cancer and their caregivers, which makes designing interventions to relieve delirium-related distress difficult. To better understand the experience and thus permit the design of effective interventions, we collected and analyzed data from patients with advanced cancer who had recovered from delirium and their family caregivers. METHOD: Phenomenological interviews were conducted separately with 37 caregivers and 34 patients. One investigator reviewed verbatim transcripts of the audio-taped interviews to identify themes, which the research team confirmed. RESULTS: Most patients and all caregivers had vivid memories of the experience; their descriptions were consistent. Most also attributed the confusion to pain medication. Caregivers had concerns about how best to help patients, patients' imminent deaths, and their own well-being. CONCLUSIONS: The main finding that delirium leads to distress for both patients and caregivers indicates the importance of recognizing, treating, and, if possible, preventing delirium in this population. Concerns about pain medications also indicate the need to educate patients and caregivers about symptom management. Caregivers also need emotional support.


Asunto(s)
Cuidadores/psicología , Delirio/etiología , Delirio/psicología , Familia/psicología , Neoplasias/complicaciones , Pacientes/psicología , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad
20.
Nurs Outlook ; 57(1): 50-9, 2009.
Artículo en Inglés | MEDLINE | ID: mdl-19150267

RESUMEN

Faculty members and nursing education administrators have long examined faculty workloads and documentation thereof but have had difficulty quantifying the work faculty members accomplish in academia. Workloads become even more complicated as faculty members incorporate many activities into their roles of teaching, research, clinical practice, and community service. A form that was simple yet fairly complete was developed at the University of Texas Health Science Center at Houston School of Nursing. The purpose of this article is to describe our workload documentation and issues surrounding its use. This form has been a useful beginning for discussions about accomplishing the work of the mission areas of the school. Our experience and documents may be useful to others.


Asunto(s)
Interpretación Estadística de Datos , Documentación/métodos , Docentes de Enfermería/organización & administración , Investigación en Administración de Enfermería/métodos , Carga de Trabajo/estadística & datos numéricos , Actitud del Personal de Salud , Eficiencia Organizacional , Humanos , Modelos Educacionales , Modelos de Enfermería , Enfermeras Administradoras/organización & administración , Rol de la Enfermera/psicología , Práctica del Docente de Enfermería/organización & administración , Investigación en Enfermería/organización & administración , Evaluación de Procesos y Resultados en Atención de Salud , Admisión y Programación de Personal/organización & administración , Filosofía en Enfermería , Proyectos Piloto , Formulación de Políticas , Enseñanza/organización & administración , Texas , Carga de Trabajo/psicología
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