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1.
Arch Phys Med Rehabil ; 103(1): 106-120, 2022 01.
Artículo en Inglés | MEDLINE | ID: mdl-34228955

RESUMEN

OBJECTIVE: To develop a cross-professional model framing the concept and practice of person-centered rehabilitation (PCR) in adult populations, based on a scoping review and thematic analysis of the literature. DATA SOURCES: Key databases (PubMed, Scopus, Cumulative Index to Nursing and Allied Health), snowballing searches, and experts' consultation were the data sources for English-language empirical or conceptual articles published from January 2007-February 2020. STUDY SELECTION: Two independent reviewers selected adult-based articles addressing at least 1 of the 6 categories of PCR-related content, a priori specified in the published review protocol. From 6527 unique references, 147 were finally included in the analysis. Of those, 26 were exclusively conceptual articles. DATA EXTRACTION: Two independent reviewers extracted textual data on what PCR entails conceptually or as a practice. No quality appraisals were performed as is typical in scoping reviews. DATA SYNTHESIS: A thematic analysis produced thematic categories that were combined into an emergent model (the PCR Model), which was reviewed by 5 external experts. PCR was framed as a way of thinking about and providing rehabilitation services "with" the person. PCR is embedded in rehabilitation structures and practice across 3 levels: (1) the person-professional dyad; (2) the microsystem level (typically an interprofessional team, involving significant others); and (3) a macrosystem level (organization within which rehabilitation is delivered). Thematic categories are articulated within each level, detailing both the conceptual and practice attributes of PCR. CONCLUSIONS: The PCR Model can inform both clinical and service organization practices. The PCR Model may benefit from further developments including obtaining wider stakeholders' input, determining relevance in different cultural and linguistic groups, and further operationalization and testing in implementation projects.


Asunto(s)
Modelos Teóricos , Atención Dirigida al Paciente/métodos , Rehabilitación/métodos , Adulto , Atención a la Salud , Humanos , Revisiones Sistemáticas como Asunto
2.
BMC Health Serv Res ; 16(1): 415, 2016 08 19.
Artículo en Inglés | MEDLINE | ID: mdl-27543108

RESUMEN

BACKGROUND: Timely access to effective treatments for arthritis is a priority at national, provincial and regional levels in Canada due to population aging coupled with limited health human resources. Models of care for arthritis are being implemented across the country but mainly in local contexts, not from an evidence-informed policy or framework. The purpose of this study is to examine existing models of care for arthritis in Canada at the local level in order to identify commonalities and differences in their implementation that could point to important considerations for health policy and service delivery. METHODS: Semi-structured key informant interviews were conducted with 70 program managers and/or care providers in three Canadian provinces identified through purposive and snowball sampling followed by more detailed examination of 6 models of care (two per province). Interviews were transcribed verbatim and analyzed thematically using a qualitative descriptive approach. RESULTS: Two broad models of care were identified for Total Joint Replacement and Inflammatory Arthritis. Commonalities included lack of complete and appropriate referrals from primary care physicians and lack of health human resources to meet local demands. Strategies included standardized referrals and centralized intake and triage using non-specialist health care professionals. Differences included the nature of the care and follow-up, the role of the specialist, and location of service delivery. CONCLUSIONS: Current models of care are mainly focused on Total Joint Replacement and Inflammatory Arthritis. Given the increasing prevalence of arthritis and that published data report only a small proportion of current service delivery is specialist care; provision of timely, appropriate care requires development, implementation and evaluation of models of care across the continuum of care.


Asunto(s)
Artritis/terapia , Atención a la Salud/organización & administración , Política de Salud , Artroplastia de Reemplazo , Canadá , Humanos , Entrevistas como Asunto , Modelos Teóricos , Derivación y Consulta , Triaje
3.
Disabil Rehabil ; 43(11): 1626-1636, 2021 06.
Artículo en Inglés | MEDLINE | ID: mdl-31553633

RESUMEN

PURPOSE: To describe the amount, range, and key characteristics (e.g., publication years, methods, topics) of the person-centered rehabilitation literature in adults with physical impairments. METHOD: Following the published scoping review protocol, papers were identified through: three major databases, snowball searches and expert consultation. Two independent reviewers have identified English-language papers on adult person-centered rehabilitation according to six pre-defined inclusion categories - theoretical, quantitative and qualitive research papers are included; and then have extracted their key characteristics (e.g., aims, methods, participants). Descriptive statistics, regression and content analyses were used to synthesize the results. RESULTS: Of 5912 deduplicated records initially screened, 170 papers were included: 136 empirical, including 13 systematic reviews. Empirical papers had data from 15264 clients and 4098 providers, in total. Yearly publications grew significantly from 2009 to 2018 (r2 = 0.71; b = 1.98: p < 0.01). Publications were unevenly distributed by countries (e.g., United States' publications per population was 44 times lower than New Zealand's). Most papers focused in more than one profession, setting-type or health conditions. Finally, many empirical papers (n = 67) studied implementation of person-centered rehabilitation approaches, including its effect. CONCLUSION: This scoping review synthesizes key characteristics and publication trends in the person-centered rehabilitation literature on adults with physical impairments, a growing but unchartered territory thus far. This large and diverse body of literature can ground further person-centered rehabilitation practices and research, including toward building a transdisciplinary, trans-service model of person-centered rehabilitation.Implications for rehabilitationThe person-centered rehabilitation literature on adults with physical impairments, especially the empirical one, has been growing significantly over time, despite inequitably distributed per countries.Rehabilitation stakeholders, including practitioners, have a growing amount of literature in which they can rely for the operationalization and implementation of person-centered rehabilitation approaches into routine practice.Based on our work, person-centered rehabilitation emerges as a practice requirement that cuts across professional and other rehabilitation silos.


Asunto(s)
Atención a la Salud , Centros de Rehabilitación , Adulto , Humanos , Estados Unidos
4.
Disabil Rehabil ; 32(6): 452-61, 2010.
Artículo en Inglés | MEDLINE | ID: mdl-19852715

RESUMEN

PURPOSE: Examine the theoretical construct of a gap between people's perceived current and preferred movement abilities and its potential for evaluating rehabilitation outcomes against clients' desired goals. METHOD: A cross-section of 311 community-dwelling adults completed a 24-item movement ability measure (MAM) and a visual analog movement scale. In a nonrandomized pre-post design, two subsets of that population completed the measures again after 2 weeks: 35 clients undergoing outpatient physical therapy and 34 in a comparison group who were not undergoing physical therapy. Scores on the MAM were analyzed using item response theory methods. RESULTS: The gap between current and preferred ability in the 311 adults represented one level difference on average out of six designated movement levels on both measures. Clients about to undergo physical therapy had gaps approximately twice the size of gaps in the 34-person comparison group on both measures (P < 0.001). Both the MAM and the movement scale showed a significantly narrower gap after 2 weeks for the group in physical therapy (P < 0.001) but no change for the comparison group. CONCLUSIONS: Assessing gaps between client-perceived current and preferred movement ability following intervention may help in the evaluation of rehabilitation outcomes from the client's perspective.


Asunto(s)
Objetivos , Satisfacción del Paciente , Modalidades de Fisioterapia , Rango del Movimiento Articular , Recuperación de la Función , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Instituciones de Atención Ambulatoria , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Movimiento , Resultado del Tratamiento , Adulto Joven
5.
Motor Control ; 23(3): 273-293, 2019 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-30696388

RESUMEN

Human movement is complex, presenting clinical and research challenges regarding how it is described and investigated. This paper discusses the commonalities and differences on how human movement is conceptualized from neuroscientific and clinical perspectives with respect to postural control; the limitations of linear measures; movement efficiency with respect to metabolic energy cost and selectivity; and, how muscle synergy analysis may contribute to our understanding of movement variability. We highlight the role of sensory information on motor performance with respect to the base of support and alignment, illustrating a potential disconnect between the clinical and neuroscientific perspectives. The purpose of this paper is to discuss the commonalities and differences in how movement concepts are defined and operationalized by Bobath clinicians and the neuroscientific community to facilitate a common understanding and open the dialogue on the research practice gap.


Asunto(s)
Movimiento/fisiología , Neurociencias/métodos , Humanos
6.
Disabil Rehabil ; 30(24): 1837-47, 2008.
Artículo en Inglés | MEDLINE | ID: mdl-19037778

RESUMEN

UNLABELLED: Demand for health services tends to outstrip supply in an environment of economic scarcity. PURPOSE: In this research, we first explore factors affecting demand for rehabilitation services in Canada's most populous province of Ontario; we then interpret these findings and discuss their implications for future demand. METHODS: Consistent with health-policy case-study methodology, we triangulated primary and secondary data sources (42 key-informant interviews and review of publicly available documents, respectively). RESULTS: Demand for rehabilitation seems to be rising quickly across Ontario's continuum of care, and informants identified four primary factors: (1) overall population growth along with an increasingly large cohort aged 65 years or older; (2) increasing rates of chronic and complex conditions, along with changes in hospital discharge patterns; (3) increasing public expectations; and (4) advances in treatment and management of diseases and condition. CONCLUSIONS: Although demand may be rising, access to rehabilitation is now based more on eligibility than on demand alone. The presence of increasing demand does not ensure that there is, or will be, sufficient financial or human resources to meet such demand. This study signals the need to reflect on current policies regarding access, and highlights the need to consider the benefits of health-promotion and injury-prevention strategies in mediating demand.


Asunto(s)
Necesidades y Demandas de Servicios de Salud , Rehabilitación/estadística & datos numéricos , Anciano , Política de Salud , Investigación sobre Servicios de Salud , Humanos , Ontario
7.
Can J Nurs Res ; 40(1): 19-37, 2008 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-18459270

RESUMEN

Changes in the delivery of health care have led to a shift in the location of care from the institution to the community. This has resulted in a need to re-examine current models of health-care practice in terms of their applicability and relevance to the community setting. The purpose of this study was to determine the relevance of traditional models of multidisciplinary teams by examining interrelationships amongst community-dwelling seniors with arthritis, their families, and health and community service providers (HCSPs). In-depth interviews or focus groups were conducted with clients, family members, and HCSPs. Participants described 4 different types of interaction within the helping network, with no interaction whatsoever being the most common except for with the seniors themselves. Three types of team emerged: client-centred, case manager-centred, and discipline-specific. No evidence of formal collaborative interdisciplinary teams was found, with HCSPs most valuing the discipline-specific model.


Asunto(s)
Artritis , Redes Comunitarias/organización & administración , Servicios de Salud para Ancianos/organización & administración , Servicios de Atención de Salud a Domicilio/organización & administración , Grupo de Atención al Paciente/organización & administración , Anciano , Anciano de 80 o más Años , Artritis/prevención & control , Artritis/psicología , Actitud del Personal de Salud , Actitud Frente a la Salud , Manejo de Caso , Comunicación , Conducta Cooperativa , Grupos Focales , Humanos , Relaciones Interprofesionales , Modelos Organizacionales , Investigación Metodológica en Enfermería , Ontario , Atención Dirigida al Paciente/organización & administración
8.
Physiother Can ; 70(2): 188-195, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29755175

RESUMEN

Purpose: This study's purpose was to gain insight into physiotherapists' perspectives on the perceived barriers and facilitators of integrating physiotherapists into primary health care (PHC) teams. Method: A qualitative descriptive approach consisting of semi-structured face-to-face or telephone interviews was used. Interviews were audio recorded, transcribed verbatim, and checked by the interviewers to ensure trustworthiness. Data were analyzed using Braun and Clarke's six steps to thematic analysis. Results: Eight participants were interviewed, representing physiotherapists from diverse demographics and geographical regions in Ontario. Common themes discussed were the orientation process, their experiences of integrating the physiotherapist's role into the organization, programme development compared with one-to-one care, the characteristics of the physiotherapist and the interdisciplinary team, and the resources available in the organization. Our key findings of influential factors for integration were (1) the diversity and novelty of new physiotherapists' role, (2) team members' understanding of the physiotherapists' role, and (3) physiotherapists' actions and values regarding PHC. Conclusions: The integration process is affected by factors ranging from individual to system levels. The integration of physiotherapists into PHC would be enhanced by a greater understanding of the role of physiotherapy in PHC by physiotherapists, other health care professionals, and system planners.


Objectif : mieux comprendre les points de vue des physiothérapeutes sur les obstacles et les incitatifs perçus à leur intégration aux équipes de première ligne (ÉPL). Méthodologie : les chercheurs ont privilégié une démarche descriptive et qualitative sous forme d'entrevues semi-structurées en personne ou par téléphone. Les entrevues ont été enregistrées, transcrites textuellement, puis vérifiées par les intervieweurs pour en garantir la fiabilité. Les chercheurs ont analysé les données selon les six étapes de l'analyse thématique de Braun et Clarke. Résultats : huit physiothérapeutes ont passé l'entrevue, représentant diverses régions démographiques et géographiques de l'Ontario. Ils ont abordé des thèmes communs : le processus d'orientation, leurs expériences d'intégration du rôle de physiothérapeute à l'organisation, l'élaboration d'un programme par rapport aux soins individuels, les caractéristiques du physiothérapeute et de l'équipe interdisciplinaire et les ressources offertes dans l'organisation. Il en est ressorti des observations fondamentales sur les principaux vecteurs d'intégration : 1) la diversité et la nouveauté de ce rôle du physiothérapeute, 2) la compréhension qu'ont les membres de l'équipe du rôle du physiothérapeute et 3) les mesures et les valeurs des physiothérapeutes envers les ÉPL. Conclusions : Le processus d'intégration est influencé par une variation entre les facteurs individuels et systémiques. L'intégration des physiothérapeutes aux ÉPL s'améliorerait si les physiothérapeutes, les autres professionnels de la santé et les planificateurs des systèmes comprenaient mieux le rôle de la physiothérapie au sein de ces équipes.

9.
Disabil Rehabil ; 29(20-21): 1566-74, 2007.
Artículo en Inglés | MEDLINE | ID: mdl-17922327

RESUMEN

AIMS: To examine issues of continuity and transition facing clients as they return to life in the community following stroke and the role of rehabilitation in this process. KEY FINDINGS AND IMPLICATIONS: The sudden onset of disability following a stroke represents a major disruption to the continuity of a person's life experience. Rehabilitation has an important role in the transition from the non-disabled to the disabled state however current rehabilitation services and outcomes post-stroke focus on functional recovery rather than on a return to meaningful roles and activities and pay little attention to the transition from the non-disabled to the disabled self. Although some current rehabilitation models address the importance of involvement in a life situation, they do not adequately address issues of the role of the environment, the nature of community, the importance of meaning and choice when thinking about life situations, and change in abilities across the life course. CONCLUSIONS: Models of rehabilitation service delivery need to move to a chronic disease management model that incorporates outcomes that are meaningful to clients, and not the assumed needs or outcomes as defined by rehabilitation professionals.


Asunto(s)
Continuidad de la Atención al Paciente/organización & administración , Personas con Discapacidad/rehabilitación , Modelos Organizacionales , Rehabilitación de Accidente Cerebrovascular , Cuidados Posteriores/organización & administración , Enfermedad Crónica , Evaluación de la Discapacidad , Personas con Discapacidad/psicología , Humanos , Clasificación Internacional de Enfermedades , Evaluación de Resultado en la Atención de Salud , Características de la Residencia , Medio Social , Accidente Cerebrovascular/fisiopatología
10.
Int J Rehabil Res ; 30(4): 297-303, 2007 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-17975449

RESUMEN

Total joint replacements (TJR) have emerged as a critical health policy issue. In particular, Canadian demand for these surgeries is forecast to grow annually by 8.7% in the next decade. Although the medical and surgical aspects of TJR have received considerable attention, very little research has explored the impact of increased TJR on the demand for rehabilitation services. In this study, we conducted seven focus group discussions across the province of Ontario (Canada) with multiple stakeholders (n=50) ranging from clinicians and administrators, to policy makers and researchers. Our results indicate that demand for rehabilitation following TJR is rising sharply and that there are three primary factors affecting such demand: (i) increase in the absolute number of TJR surgeries is increasing demand across the continuum of care; (ii) changing profile of clients whereby 'younger and active' groups are more willing to undergo surgery, and 'older and complex' groups are presenting with increased rates of medical complications and comorbidities; and (iii) widespread use of clinical pathways has increased requirements within the rehabilitation sector, but often without corresponding adjustments in levels of human resources. To align increasing demand with supply in the long term, participants offered strong support for health promotion and prevention programs, but they also highlighted the short-term benefits of implementing 'prehabilitation' programs for clients waiting for surgery. Overall, our results indicate that the demand for rehabilitation services after TJR is increasing and that innovative approaches to care delivery are required to align increasing demand with supply.


Asunto(s)
Artroplastia de Reemplazo/rehabilitación , Política de Salud/tendencias , Necesidades y Demandas de Servicios de Salud/tendencias , Modalidades de Fisioterapia/tendencias , Cuidados Preoperatorios/tendencias , Adulto , Factores de Edad , Anciano , Artroplastia de Reemplazo/estadística & datos numéricos , Artroplastia de Reemplazo/tendencias , Vías Clínicas/tendencias , Atención a la Salud/tendencias , Grupos Focales , Predicción , Promoción de la Salud/tendencias , Humanos , Persona de Mediana Edad , Ontario , Formulación de Políticas , Servicios Preventivos de Salud/tendencias , Revisión de Utilización de Recursos/estadística & datos numéricos
11.
J Eval Clin Pract ; 23(6): 1153-1163, 2017 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-28425221

RESUMEN

RATIONALE, AIMS, AND OBJECTIVES: Movement, a core aspect of physiotherapy practice, and integral to the clinical reasoning process has undergone limited theoretical development. Instead, research has focused on intervention effectiveness embedded within the positivist paradigm. The purpose of this study was to explore how expert neurorehabilitation therapists conceptualize movement as part of their clinical reasoning. METHOD: A qualitative interpretive descriptive approach consisting of stimulated recall using video-recorded treatment sessions and in-depth interviews was used. Theoretical sampling was used to recruit members of the International Bobath Instructors Training Association (IBITA) who are recognized experts in neurorehabilitation. Interview transcripts were transcribed verbatim. Data analysis was progressive, iterative, and inductive. RESULTS: Twenty-two IBITA instructors from 7 different countries volunteered to participate. They ranged in clinical experience from 12 to 40 years and instructor experience from 1 to 35 years. The conceptualization of movement by the IBITA instructors involves the following elements: (1) movement comprises the whole person and the whole body, not just individual body segments; (2) active alignment of body segments is integral to movement performance; and (3) efficient movement requires the relative integration of postural control/stability and selective movement/mobility. CONCLUSIONS: The IBITA instructors conceptualize movement from a person-centred perspective. The integration of postural control and selective movement, with alignment and variability as key components, forms the foundation of their understanding of movement. Further investigation into the role of postural control in movement recovery post central nervous system lesion is required. Likewise, the dimensions of movement critical to the conceptualization of movement are not well understood from the perspective of the physiotherapist or persons with neurological impairments.


Asunto(s)
Movimiento , Rehabilitación Neurológica/métodos , Modalidades de Fisioterapia , Humanos , Investigación Cualitativa , Rehabilitación de Accidente Cerebrovascular/métodos
12.
Disabil Rehabil ; 28(22): 1387-97, 2006 Nov 30.
Artículo en Inglés | MEDLINE | ID: mdl-17071570

RESUMEN

PURPOSE: A key component in assessing the performance of rehabilitation services is the client's perspective. The purpose of this paper is to report on the development of a publicly available measure of client-centred rehabilitation (CCRQ) that can be used for discriminative and evaluative purposes. METHOD: Mixed qualitatative and quantitative methods were used. Phase 1: Identification of seven domains of client-centred rehabilitation based on a literature review, focus groups with clients, and review by content experts. Phase 2: Item generation for the seven conceptually derived subscales and cognitive interviews with inpatient rehabilitation patients. Phase 3: Psychometric testing for internal reliability, test-retest reliability and discriminative construct validity using data from a mailed, self-administered survey to 1,568 patients discharged from two large inpatient rehabilitation facilities. RESULTS: The seven conceptually derived subscales all have strong internal (0.72 - 0.87) and test-retest reliability (0.74 - 0.85). Discriminative construct validity is demonstrated by the ability of subscales to identify significant differences between programs within two rehabilitation facilities. CONCLUSIONS: The results for the reliability and validity of this measure support its value for use in clinical and quality improvement work as well as research.


Asunto(s)
Atención Dirigida al Paciente/métodos , Rehabilitación , Encuestas y Cuestionarios , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Reproducibilidad de los Resultados
13.
BMJ Open ; 6(7): e011959, 2016 07 19.
Artículo en Inglés | MEDLINE | ID: mdl-27436670

RESUMEN

INTRODUCTION: Person-centredness is a philosophy for organising and delivering healthcare based on patients' needs, preferences and experiences. Although widely endorsed, the concept suffers from a lack of detail and clarification, in turn accounting for ambiguous implementation and outcomes. While a conceptual framework based on a systematic review defines person/patient-centred care components (Scholl et al, 2014), it applies across healthcare contexts and may not be sensitive to the nuances of the rehabilitation of adults with physical impairments. Accordingly, this study aims to build a conceptual framework, based on existing literature, of what person-centredness means in the rehabilitation of adults with physical impairments in the clinical encounter and broader health service delivery. METHODS AND ANALYSIS: We will use a scoping review methodology. Searches on relevant databases will be conducted first, combining keywords for 'rehabilitation', 'person-centered' and associated terms (including patient preferences/experiences). Next, snowball searches (citation tracking, references lists) will be performed. Papers will be included if they fall within predefined selection categories (seen as most likely informative on elements pertaining to person-centred rehabilitation) and are written in English, regardless of design (conceptual, qualitative, quantitative). Two reviewers will independently screen titles and abstracts, followed by screening of the full text to determine inclusion. Experts will then be consulted to identify relevant missing papers. This can include elements other than the peer-reviewed literature (eg, book chapters, policy/legal papers). Finally, information that helps to build the concept and practice of person-centred rehabilitation will be abstracted independently by two reviewers and analysed by inductive thematic analysis to build the conceptual framework. DISSEMINATION: The resulting framework will aid clarification regarding person-centred rehabilitation, which in turn is expected to conceptually ground and inform its operationalisation (eg, measurement, implementation, improvement). Findings will be disseminated through local, national and international stakeholders, both at the clinical and service organisation levels.


Asunto(s)
Atención a la Salud , Atención Dirigida al Paciente , Rehabilitación , Formación de Concepto , Humanos , Revisiones Sistemáticas como Asunto
14.
Disabil Rehabil ; 26(24): 1411-22, 2004 Dec 16.
Artículo en Inglés | MEDLINE | ID: mdl-15764361

RESUMEN

PURPOSE: The purpose of this research is to understand the important components of client-centred rehabilitation from the perspective of adult clients with long-term physical disabilities. METHOD: Focus groups were conducted with adult clients who had completed at least one course of rehabilitation in the publicly-funded rehabilitation system in Ontario. Data were analysed using an iterative inductive approach. RESULTS: The major theme underlying all of the participants' comments was the need for better transitions between rehabilitation programs and the community. Participants felt ill-prepared for community living and the emotional challenges of living with a long-term condition and, once discharged from rehabilitation, felt isolated and had difficulty finding out about and accessing community services. CONCLUSIONS: The findings demonstrate that client-centred rehabilitation encompasses much more than goal-setting and decision-making between individual clients and professionals. It refers to a philosophy or approach to the delivery of rehabilitation services that reflects the needs of individuals and groups of clients. This entails a shift from an acute-illness, curative model to one that acknowledges the long-term nature of the career of chronic illness or disability. Definitions of evidence that is deemed credible need to be broadened beyond expert, 'scientific' evidence to include multiple dimensions of evidence including the expertise of the client.


Asunto(s)
Personas con Discapacidad/psicología , Personas con Discapacidad/rehabilitación , Atención Dirigida al Paciente , Adulto , Canadá , Continuidad de la Atención al Paciente , Femenino , Grupos Focales , Humanos , Masculino , Participación del Paciente , Relaciones Profesional-Paciente , Aislamiento Social , Apoyo Social
15.
Disabil Rehabil ; 35(15): 1276-83, 2013 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-23066918

RESUMEN

PURPOSE: To examine the experience of normalization through rehabilitation for persons growing up & growing older with lifelong physical impairment (cerebral palsy [CP]). METHOD: A qualitative methodology consisting of narrative inquiry informed by the Life Course Perspective. Multiple (3-4), in-depth interviews were completed with each participant in order to co-construct their life stories. Data were systematically compared for themes and categories, as well as the central plot that weaves the participants' experiences together. RESULTS: Nine community-dwelling individuals (three men; six women), aged 26-70, with mild to severe CP participated. Their common narrative involved intensive rehabilitation in childhood that focused on "normalizing" movement, particularly walking. In adolescence they were deemed to have achieved their functional potentials and "nothing further could be done". After transitioning out of pediatric health services many start to lose the gains they achieved in rehabilitation (particularly around walking). In their 30's and 40's they begin to slow down and lose functional abilities but no longer have access to rehabilitation to help them manage their aging bodies. CONCLUSIONS: Many of the assumptions that underlie the organization and delivery of rehabilitation services for people with long term impairments may contribute to difficulties encountered in adulthood and old age by focusing on normalizing physical function at the expense of learning to manage their bodies across the life course. IMPLICATIONS FOR REHABILITATION: • The way that rehabilitation services are organized and delivered for people with lifelong impairments needs to be re-considered. • Frontloading rehabilitation in childhood does not meet the long term needs of children growing up and growing older with physical impairments. As they grow up and grow older, they lose many of the gains they achieved in rehabilitation yet they have nowhere to turn to receive rehabilitation for their aging bodies. • The focus on normalizing function in childhood may only serve to emphasize the child's lack of ablebodiedness to the detriment of their sense of self and wellbeing.


Asunto(s)
Envejecimiento/fisiología , Parálisis Cerebral/psicología , Rehabilitación , Actividades Cotidianas , Adulto , Anciano , Envejecimiento/psicología , Parálisis Cerebral/rehabilitación , Femenino , Necesidades y Demandas de Servicios de Salud , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Narración , Satisfacción Personal , Investigación Cualitativa , Calidad de Vida , Índice de Severidad de la Enfermedad
16.
17.
Physiother Can ; 63(3): 265-75, 2011.
Artículo en Inglés | MEDLINE | ID: mdl-22654231

RESUMEN

PURPOSE: To explore the potential for different models of incorporating physical therapy (PT) services within the emerging network of family health teams (FHTs) in Ontario and to identify challenges and opportunities of each model. METHODS: A two-phase mixed-methods qualitative descriptive approach was used. First, FHTs were mapped in relation to existing community-based PT practices. Second, semi-structured key-informant interviews were conducted with representatives from urban and rural FHTs and from a variety of community-based PT practices. Interviews were digitally recorded, transcribed verbatim, and analyzed using a categorizing/editing approach. RESULTS: Most participants agreed that the ideal model involves embedding physical therapists directly into FHTs; in some situations, however, partnering with an existing external PT provider may be more feasible and sustainable. Access and funding remain the key issues, regardless of the model adopted. CONCLUSION: Although there are differences across the urban/rural divide, there exist opportunities to enhance and optimize existing delivery models so as to improve client access and address emerging demand for community-based PT services.


Asunto(s)
Salud de la Familia , Fisioterapeutas , Humanos , Ontario , Modalidades de Fisioterapia , Salud Rural
18.
Physiother Can ; 63(1): 65-75, 2011.
Artículo en Inglés | MEDLINE | ID: mdl-22210981

RESUMEN

PURPOSE: The purpose of this study was to gain an understanding of the opportunities and challenges involved in providing clinical inter-professional education (IPE) to physical therapy (PT) students in the acute-care setting from the perspective of PT clinical instructors (CIs). METHODS: Focus groups were conducted in four acute-care hospitals in Toronto. Participants were recruited using a purposive and convenience sampling approach in order to enhance our understanding of the perceptions of acute-care PT CIs. Eighteen full-time PT CIs with an average of 11 years in practice participated. A constant comparative process was employed to identify recurrent issues and themes within and between groups. RESULTS: Three main themes emerged from the focus groups: (1) Clinical IPE happens when inter-professional collaboration (IPC) occurs; however, IPC differs according to setting, access to other professions, time, support, and structure. (2) IPE is a lifelong learning process that applies to both CIs and students. (3) Student preparedness is a prerequisite for clinical IPE. CONCLUSIONS: IPC is an integral part of clinical IPE that requires ongoing commitment and reflection by CIs to ensure that they are ready to instruct students who have some preparation in formal IPE. More knowledge about providing clinical IPE in a structured manner, through academic and health institutions, will allow CIs to become role models for future generations of PT students.


Asunto(s)
Educación Profesional , Relaciones Interprofesionales , Conducta Cooperativa , Grupos Focales , Humanos , Aprendizaje , Estudiantes
19.
J Gerontol B Psychol Sci Soc Sci ; 66(1): 119-28, 2011 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-20375084

RESUMEN

OBJECTIVES: To understand point-of-care decisions, and in particular rule breaking, by personal support workers (PSWs) regarding institutionalized elders with dementia within a context of legislative and organizational care mandates. METHODS: Qualitative baseline data including focus groups and semi-structured interviews with PSWs (n = 26) and supervisors (n = 9) were collected during a 2-year, multi-method trial of a 12-week interprofessional arts-informed educational intervention in two Alzheimer support units and were analyzed using a critical realist approach. RESULTS: PSW care decisions were the outcome of a discordant interrelationship between PSWs' reflective deliberations, and legislative and organizational care mandates. PSWs responded to discordance through rule breaking in order to provide individualized care. Unbeknownst to PSWs, rule breaking was contingent upon supervisors' case-by-case complicity as they strove to balance fears of regulatory citations with private assessment of the soundness of PSW logic. DISCUSSION: Quality care emerges at the intersection of policies governing long-term care, PSW rule breaking, and the supportive but undisclosed role supervisors play in these violations. Understanding this complexity has important implications for initiatives to improve care practices and to challenge legislation and policies that impede dementia care.


Asunto(s)
Atención a la Salud/legislación & jurisprudencia , Demencia/diagnóstico , Demencia/terapia , Legislación como Asunto , Cuidados a Largo Plazo/legislación & jurisprudencia , Adulto , Femenino , Grupos Focales , Personal de Salud , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Sistemas de Atención de Punto , Vigilancia de la Población , Calidad de la Atención de Salud
20.
Disabil Rehabil ; 33(7): 579-88, 2011.
Artículo en Inglés | MEDLINE | ID: mdl-20586584

RESUMEN

PURPOSE: To examine the FIM™ as an outcome measure at follow-up following discharge from inpatient rehabilitation. METHODS: Secondary analysis of the National Rehabilitation Reporting System (NRS) data from 13 facilities across Canada that collected follow-up data between 2001 and 2006. The study sample included all NRS records with a hospital length of stay of at least 3 days, for individuals 18 years and older. Outcomes included: mean total, motor and cognitive FIM™ scores at admission, discharge, and follow-up; change in FIM™ scores from admission to discharge and from discharge to follow-up; correlation between FIM™ scores at admission, discharge and follow-up, and predictors of the change in FIM™ scores between discharge and follow-up. RESULTS: The majority of the change in FIM™ scores is seen between admission and discharge with the higher FIM scores maintained, if not increased slightly, between discharge and follow-up. Discharge and follow-up total FIM™ scores are highly correlated indicating that collection of the follow-up FIM™ may not provide additional information that justifies the expense of data collection after a patient has been discharged from inpatient rehabilitation. CONCLUSIONS: The use of more appropriate rehabilitation follow-up outcomes needs to be considered.


Asunto(s)
Actividades Cotidianas , Evaluación de Resultado en la Atención de Salud , Alta del Paciente , Centros de Rehabilitación , Adolescente , Adulto , Canadá , Bases de Datos Factuales , Femenino , Estudios de Seguimiento , Humanos , Pacientes Internos/estadística & datos numéricos , Masculino , Persona de Mediana Edad , Recuperación de la Función , Factores de Tiempo , Resultado del Tratamiento , Adulto Joven
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