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1.
BMC Nurs ; 23(1): 317, 2024 May 08.
Artículo en Inglés | MEDLINE | ID: mdl-38720346

RESUMEN

Although there is a growing literature on the use of telepresence robots in institutional dementia care settings, limited research focused on the perspectives of frontline staff members who deliver dementia care. Our objective was to understand staff perspectives on using telepresence robots to support residents with dementia and their families. Guided by the Consolidated Framework for Implementation Research, we conducted four focus groups and 11 semi-structured interviews across four long-term care (LTC) homes and one hospital in Canada. We included 22 interdisciplinary staff members (e.g., registered nurses, social workers, occupational therapists, recreational therapists) to understand their experiences with telepresence robots. Thematic analysis identified three key themes: 1) Staff Training and Support; 2) Robot Features; 3) Environmental dynamics for Implementation. Our results underscore the imperative of structural support at micro-, meso- and macro-levels for staff in dementia care settings to effectively implement technology. This study contributes to future research and practice by elucidating factors facilitating staff involvement in technology research, integrating staff voices into technology implementation planning, and devising strategies to provide structural support to staff, care teams, and care homes.

2.
Int J Geriatr Psychiatry ; 38(10): e6014, 2023 10.
Artículo en Inglés | MEDLINE | ID: mdl-37828681

RESUMEN

BACKGROUND: People with dementia often do not receive optimal person-centred care (PCC) in care settings. Family members can play a vital role as care partners to support the person with dementia with their psychosocial needs. Participatory research that includes the perspectives of those with lived experience is essential for developing high-quality dementia care and practices. OBJECTIVE: Throughout 2021-2022, a mobile app, called WhatMatters, was co-developed to provide easy-to-access and personalised support for people with dementia in hospitals and long-term care homes, with input from patients/residents, family partners and healthcare staff. This article discusses and critically reflects on the experiences of patients/residents, family partners, and healthcare staff involved in the co-design process. METHODS: For the app development, we applied a participatory co-design approach, guided by a User Experience (UX) model. The process involved co-design workshops and user testing sessions with users (patients/residents, family partners, healthcare staff) to co-develop the WhatMatters prototype. We also conducted focus groups and one on one interviews with staff and caregiver participants to explore their experiences. Our research team, which also included patient partners, took part in regular team meetings during the app's development, where we discussed and reflected on the co-design process. Reflexive thematic analysis was performed to identify themes that represent the challenges and rewarding experiences of the users involved in the co-design process, which guided our overall reflective process. FINDINGS: Our reflective analysis identified five themes (1) clarifying the co-design process, (2) ensuring inclusive collaborations of various users, and (3) supporting expression of emotion in a virtual environment, (4) feeling a sense of achievement and (5) feeling valued. IMPLICATIONS: WhatMatters offers potential for providing personally relevant and engaging resources in dementia care. Including the voices of relevant users is crucial to ensure meaningful benefits for patients/residents. We offer insights and lessons learned about the co-design process, and explore the challenges of involving people with lived experiences of dementia in co-design work, particularly during the pandemic.


Asunto(s)
Demencia , Aplicaciones Móviles , Humanos , Hospitales , Cuidados a Largo Plazo , Atención Dirigida al Paciente , Demencia/terapia , Demencia/psicología
3.
BMC Health Serv Res ; 23(1): 772, 2023 Jul 19.
Artículo en Inglés | MEDLINE | ID: mdl-37468953

RESUMEN

BACKGROUND: Quality improvement (QI) programs with technology implementations have been introduced to long-term care (LTC) to improve residents' quality of life. Plan-Do-Study-Act (PDSA) cycle is commonly adopted in QI projects. There should be an appropriate investment of resources to enhance learning from iterative PDSA cycles. Recently, scholars explored possibilities of implementation science (IS) with QI methods to increase QI projects' generalisability and make them more widely applicable in other healthcare contexts. To date, scant examples demonstrate the complementary use of the two methods in QI projects involving technology implementation. This qualitative study explores staff and leadership teams' perspectives on facilitators and barriers of a QI project to implement telepresence robots in LTC guided by the Consolidated Framework for Implementation Research (CFIR). METHODS: We employed purposive and snowballing methods to recruit 22 participants from two LTC in British Columbia, Canada: operational and unit leaders and interdisciplinary staff, including nursing staff, care aides, and allied health practitioners. CFIR was used to guide data collection and analysis. Semi-structured interviews and focus groups were conducted through in-person and virtual meetings. Thematic analysis was employed to generate insights into participants' perspectives. RESULTS: Our analysis identified three themes: (a) The essential needs for family-resident connections, (b) Meaningful engagement builds partnership, and (c) Training and timely support gives confidence. Based on the findings and CFIR guidance, we demonstrate how to plan strategies in upcoming PDSA cycles and offer an easy-to-use tool 'START' to encourage the practical application of evidence-based strategies in technology implementation: Share benefits and failures; Tailor planning with staff partners; Acknowledge staff concerns; Recruit opinion leaders early; and Target residents' needs. CONCLUSIONS: Our study offers pragmatic insights into the complementary application of CFIR with PDSA methods in QI projects on implementing technologies in LTC. Healthcare leaders should consider evidence-based strategies in implementing innovations beyond PDSA cycles.


Asunto(s)
Cuidados a Largo Plazo , Robótica , Humanos , Calidad de Vida , Atención a la Salud/métodos , Colombia Británica
4.
BMC Nurs ; 21(1): 45, 2022 Feb 21.
Artículo en Inglés | MEDLINE | ID: mdl-35189873

RESUMEN

BACKGROUND: COVID-19 has significant impact on long-term care (LTC) residents and staff. The purpose of this paper is to report the data gathered during a COVID-19 outbreak in a Canadian LTC home regarding staff experiences, challenges, and needs, to offer lessons learned and implications. METHODS: A total of 30 staff from multiple disciplines participated in the study, including nurses, care workers, recreational staff, and a unit clerk. Focus groups (n = 20) and one-on-one interviews (n = 10) were conducted as part of a larger participatory action research (PAR) study in a Canadian LTC home. All data collection was conducted virtually via Zoom, and thematic analysis was performed to identify themes. RESULTS: Four main themes were identified: We are Proud, We Felt Anxious, We Grew Closer to Residents and Staff Members, and The Vaccines Help. CONCLUSIONS: This research details the resilience that characterizes staff in LTC, while highlighting the emotional toll of the pandemic, particularly during an outbreak. LTC staff in this study found innovative ways to connect and support residents and this resulted in stronger connections and relationships. Leadership and organizational support are pivotal for supporting team resilience to manage crisis and adapt positively in times of COVID-19 pandemic, especially during the period of outbreak.

5.
Alzheimers Dement ; 17 Suppl 8: e057324, 2021 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-34971296

RESUMEN

BACKGROUND: Although there have been considerable public concerns about the impact of COVID-19 on residents living in long-term care homes, much less attention has focused on lessons learned from staff experiences about caring for people with dementia during outbreaks. The outbreaks added significant additional stress to the nursing workforce, which has historically experienced high turnover, chronic staffing shortages, and increased burnout in long-term care settings. We conducted focus groups (n=20) and individual interviews (n=10) to investigate critical challenges, experiences, and support needed for frontline staff in a long-term care home in British Columbia, Canada. A total of 30 staff in multiple disciplines participated in the study. They included Registered Nurses, Licenced Practical Nurses, care staff, recreational staff, and unit clerks. We applied qualitative thematic analysis and identified four themes: (a) I am proud, (b) we become stronger, (c) I am nervous (d) the vaccine helps. The frontline staff's voices provided a detailed description of their emotional experiences, creative coping strategies and positive stories about caring for the most vulnerable population in extraordinary situations. In our poster, lessons learned and implications for future research and practice will be explored and discussed.

6.
J Aging Soc Policy ; 33(4-5): 539-554, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34278980

RESUMEN

The COVID-19 pandemic has exposed persistent inequities in the long-term care sector and brought strict social/physical distancing distancing and public health quarantine guidelines that inadvertently put long-term care residents at risk for social isolation and loneliness. Virtual communication and technologies have come to the forefront as the primary mode for residents to maintain connections with their loved ones and the outside world; yet, many long-term care homes do not have the technological capabilities to support modern day technologies. There is an urgent need to replace antiquated technological infrastructures to enable person-centered care and prevent potentially irreversible cognitive and psychological declines by ensuring residents are able to maintain important relationships with their family and friends. To this end, we provide five technological recommendations to support the ethos of person-centered care in residential long-term care homes during the pandemic and  in a post-COVID-19 pandemic world.


Asunto(s)
COVID-19 , Comunicación , Cuidados a Largo Plazo , Casas de Salud , Atención Dirigida al Paciente , Tecnología , Anciano , Humanos , Internet , Aislamiento Social , Comunicación por Videoconferencia
7.
BMC Geriatr ; 19(1): 232, 2019 08 23.
Artículo en Inglés | MEDLINE | ID: mdl-31443636

RESUMEN

BACKGROUND: Given the complexity of providing dementia care in hospitals, integrating technology into practice is a high challenge and an important opportunity. Although there are a growing demand and interest in using social robots in a variety of care settings to support dementia care, little is known about the impacts of the robotics and their application in care settings, i.e., what worked, in which situations, and how. METHODS: Scientific databases and Google Scholar were searched to identify publications published since 2000. The inclusion criteria consisted of older people with dementia, care setting, and social robot PARO. RESULTS: A total of 29 papers were included in the review. Content analysis identified 3 key benefits of and 3 barriers to the use of PARO. Main benefits include: reducing negative emotion and behavioral symptoms, improving social engagement, and promoting positive mood and quality of care experience. Key barriers are: cost and workload, infection concerns, and stigma and ethical issues. This review reveals 3 research gaps: (a) the users' needs and experiences remain unexplored, (b) few studies investigate the process of how to use the robot effectively to meet clinical needs, and (c) theory should be used to guide implementation. CONCLUSIONS: Most interventions conducted have been primarily researcher-focused. Future research should pay more attention to the clinical needs of the patient population and develop strategies to overcome barriers to the adoption of PARO in order to maximize patient benefits.


Asunto(s)
Atención a la Salud/métodos , Demencia/psicología , Demencia/terapia , Robótica/métodos , Afecto/fisiología , Anciano , Anciano de 80 o más Años , Análisis Costo-Beneficio/métodos , Análisis Costo-Beneficio/tendencias , Atención a la Salud/economía , Atención a la Salud/tendencias , Demencia/economía , Humanos , Robótica/economía , Robótica/tendencias
10.
J Psychosoc Nurs Ment Health Serv ; 54(7): 26-31, 2016 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-27362382

RESUMEN

Obtaining new knowledge accepted and used by practitioners remains a slow process. A dearth of knowledge translation research exists that explores how to effectively move knowledge to practice in the field of older adult mental health. The current article reports findings of a knowledge translation study that examined what factors enabled the adoption of a new clinical assessment framework, P.I.E.C.E.S.™, into practice in an older adult tertiary mental health unit. Theoretical insights of appreciative inquiry were used to guide the study. Qualitative methods were used, including focus groups with 20 staff and individual interviews with three leaders. The appreciative inquiry approach helped researchers successfully facilitate knowledge translation. Enabling factors included: (a) fostering positive energy to make continuous improvement, (b) working with team members across disciplines at all levels, and (c) using knowledge translation tools to enable and sustain the new practice. [Journal of Psychosocial Nursing and Mental Health Services, 54 (7), 26-31.].


Asunto(s)
Envejecimiento , Práctica Clínica Basada en la Evidencia/métodos , Grupo de Atención al Paciente/organización & administración , Demencia/psicología , Práctica Clínica Basada en la Evidencia/organización & administración , Grupos Focales , Humanos , Servicio de Psiquiatría en Hospital , Investigación Cualitativa
12.
J Gerontol Nurs ; 40(9): 50-6, 2014 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-24694045

RESUMEN

Ethnographic methods (observations and interviews) were used to investigate the physical environment of a geriatric psychiatry unit to understand how it meets the needs of patients with mental health conditions. Four interrelated themes of environmental qualities emerged as central in promoting healing: therapeutic, supportive of functional independence, facilitative of social connections, and personal safety and security. Therapeutic describes the existence of a home-like environment and quality sensory stimulations. Supportive of functional independence refers to the environmental features that make it easy for older adults to mobilize and perform activities of daily living. Facilitative of social connections indicates the provision of social spaces for patients, families, and staff to interact and engage in meaningful activities. Personal safety and security involves having staff in close proximity and minimizing disruptions from confused patients. The evidence suggests that the physical environment is important in making hospitals safe and supportive of healing for older adults with mental health conditions.


Asunto(s)
Familia , Ambiente de Instituciones de Salud , Pacientes Internos , Servicios de Salud Mental/organización & administración , Servicio de Psiquiatría en Hospital/organización & administración , Anciano , Ética , Humanos
13.
Gerontologist ; 64(7)2024 07 01.
Artículo en Inglés | MEDLINE | ID: mdl-38767432

RESUMEN

BACKGROUND AND OBJECTIVES: Transportation is an important component of dementia-friendly communities. People living with dementia have the right to access transportation services to keep their mobility in their community, which is essential for independence, well-being, and quality of life. This scoping review maps the literature on dementia-friendly transportation services and explores their characteristics to inform future development and research. RESEARCH DESIGN AND METHODS: Empirical quantitative and qualitative studies in English or French that informed on transportation services for people living with dementia in the community were searched in 15 databases. Two authors independently screened records and charted relevant characteristics from selected publications. Important findings were summarized with a narrative synthesis approach. RESULTS: Thirty-five studies informed on important dimensions of transportation services in urban and/or rural context: availability, accessibility, acceptability, adaptability, and affordability. Important insights were identified: the importance of staff training and attitude, and the challenges of availability of affordable services in the rural context. Emerging policy and program intervention areas include the need for access to quiet areas in transit hubs, training to use mass public transit and mobility management. DISCUSSION AND IMPLICATIONS: The literature on dementia-friendly transportation services is important in the expansion and maintenance of mobility for people living with dementia in the community. The scope of the existing scientific literature remains limited. Although several studies indicated a clear need for better access to dementia-friendly transportation services, the best practices still need to be demonstrated in the scientific literature.


Asunto(s)
Demencia , Transportes , Humanos , Calidad de Vida , Anciano , Población Rural , Vida Independiente
14.
BMJ Open ; 14(5): e083724, 2024 May 08.
Artículo en Inglés | MEDLINE | ID: mdl-38719284

RESUMEN

INTRODUCTION: The rapid growth of the ageing population underscores the critical need for dementia care training among care providers. Innovative virtual reality (VR) technology has created opportunities to improve dementia care training. This scoping review will specifically focus on the barriers, facilitators and impacts of implementing fully immersive VR training for dementia care among staff in long-term care (LTC) settings. METHODS AND ANALYSIS: We will follow the Joanna Briggs Institute's scoping review methodology to ensure scientific rigour. We will collect literature of all languages with abstracts in English from CINAHL, Medline, Scopus, Embase, Web of Science and ProQuest database until 31 December 2023. Grey literature from Google Scholar and AgeWell websites will be included. Inclusion criteria encompass papers involving paid staff (Population), fully immersive VR training on dementia care (Concept) and LTC settings (Context). Literature referring only to non-paid caregivers, non-fully immersive VR or other chronic diseases will be excluded. Literature screening, data extraction and analysis will be conducted by two reviewers separately. We will present a narrative summary with a charting table on the main findings. ETHICS AND DISSEMINATION: This work does not require ethics approval, given the public data availability for this scoping review. Through a comprehensive overview of the current evidence regarding impacts, barriers and facilitators on this topic, potential insights and practical recommendations will be generated to support the implementation of VR training to enhance staff competence in LTC settings. The findings will be presented in a journal article and shared with practitioners on the frontline.


Asunto(s)
Demencia , Cuidados a Largo Plazo , Realidad Virtual , Humanos , Demencia/terapia , Personal de Salud/educación
15.
BMJ Open ; 14(3): e080751, 2024 Mar 12.
Artículo en Inglés | MEDLINE | ID: mdl-38479730

RESUMEN

INTRODUCTION: Social robots including telepresence robots have emerged as potential support in dementia care. However, the effectiveness of these robots hinges significantly on their design and utility. These elements are often best understood by their end-users. Codesign involves collaborating directly with the end-users of a product during its development process. Engaging people with dementia in the design of social robots ensures that the products cater to their unique requirements, preferences, challenges, and needs. The objective of this scoping review is to understand the facilitators, barriers, and strategies in codesigning social robots with older adults with dementia. METHODS AND ANALYSIS: The scoping review will follow the Joanna Briggs Institute scoping review methodology and will be conducted from November 2023 to April 2024. The steps of search strategy will involve identifying keywords and index terms from CINAHL and PubMed, completing search using identified keywords and index terms across selected databases (Medline, CINAHL, PubMed, AgeLine, Web of Science, PsycINFO, Scopus, IEEE, and Google Scholar), and hand-searching the reference lists from chosen literature for additional literature. The grey literature will be searched using Google. Three research assistants will screen the titles and abstracts independently by referring to the inclusion criteria. Three researchers will independently assess the full text of literature following to the inclusion criteria. The data will be presented in a table with narratives that answers the questions of the scoping review. ETHICS AND DISSEMINATION: This scoping review does not require ethics approval because it collects data from publicly available resources. The findings will offer insights to inform future research and development of robots through collaboration with older people with dementia. In addition, the scoping review results will be disseminated through conference presentations and an open-access publication in a peer-reviewed journal.


Asunto(s)
Demencia , Robótica , Humanos , Anciano , Proyectos de Investigación , Interacción Social , Bibliometría , Demencia/terapia , Literatura de Revisión como Asunto
16.
Stud Health Technol Inform ; 315: 727-728, 2024 Jul 24.
Artículo en Inglés | MEDLINE | ID: mdl-39049401

RESUMEN

This poster presents the use of Interpretive Description in ontology development. The methods selected attended to the need for quality and rigour.


Asunto(s)
Ontologías Biológicas , Humanos , Vocabulario Controlado
17.
Can J Nurs Res ; 56(1): 49-60, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-37844601

RESUMEN

BACKGROUND: Nurses and healthcare providers need practical tools to deliver person-centred care in hospitals and long-term care homes. Few non-pharmacological interventions are designed to meet the needs of people with moderate to severe dementia. Dementia-friendly television videos (TV videos) offer a familiar stimulation with the potential for meaningful engagement in the relational space of technology. TV videos refer to moving visuals with audio that can be shown on TV and other devices. They can be used for different purposes for people with dementia, such as stimulating memories and facilitating expressions. PURPOSE: This study aims to understand the perspectives of nurses and healthcare providers on the potential function and practice considerations of using TV videos for people with moderate to severe dementia. METHODS: We conducted five focus groups with 23 nurses and healthcare providers in a long-term care home and a geriatric hospital unit. Data were analyzed using reflexive thematic analysis and guided by Kitwood's person-centred care model. RESULTS: Our analysis identified five themes about the use of TV videos: (1) calm the person with dementia who is in emotional distress, (2) form connections with the person with dementia, (3) bring people with dementia together, (4) facilitate the Person's Activities of Daily Living (ADLs), (5) help the person connect with their past. CONCLUSION: TV videos should be designed to match the person's cognitive abilities, interests, and cultural and linguistic backgrounds. Our findings supplemented Kitwood's model by identifying the person's cultural and language needs.


Asunto(s)
Actividades Cotidianas , Demencia , Humanos , Anciano , Demencia/psicología , Cuidados a Largo Plazo , Personal de Salud , Televisión
18.
JMIR Aging ; 7: e55257, 2024 Aug 27.
Artículo en Inglés | MEDLINE | ID: mdl-39190455

RESUMEN

BACKGROUND: Long-term care (LTC) homes face the challenges of increasing care needs of residents and a shortage of health care providers. Literature suggests that artificial intelligence (AI)-enabled robots may solve such challenges and support person-centered care. There is a dearth of literature exploring the perspectives of health care providers, which are crucial to implementing AI-enabled robots. OBJECTIVE: This scoping review aims to explore this scant body of literature to answer two questions: (1) what barriers do health care providers perceive in adopting AI-enabled robots in LTC homes? (2) What strategies can be taken to overcome these barriers to the adoption of AI-enabled robots in LTC homes? METHODS: We are a team consisting of 3 researchers, 2 health care providers, 2 research trainees, and 1 older adult partner with diverse disciplines in nursing, social work, engineering, and medicine. Referring to the Joanna Briggs Institute methodology, our team searched databases (CINAHL, MEDLINE, PsycINFO, Web of Science, ProQuest, and Google Scholar) for peer-reviewed and gray literature, screened the literature, and extracted the data. We analyzed the data as a team. We compared our findings with the Person-Centered Practice Framework and Consolidated Framework for Implementation Research to further our understanding of the findings. RESULTS: This review includes 33 articles that met the inclusion criteria. We identified three barriers to AI-enabled robot adoption: (1) perceived technical complexity and limitation; (2) negative impact, doubted usefulness, and ethical concerns; and (3) resource limitations. Strategies to mitigate these barriers were also explored: (1) accommodate the various needs of residents and health care providers, (2) increase the understanding of the benefits of using robots, (3) review and overcome the safety issues, and (4) boost interest in the use of robots and provide training. CONCLUSIONS: Previous literature suggested using AI-enabled robots to resolve the challenges of increasing care needs and staff shortages in LTC. Yet, our findings show that health care providers might not use robots because of different considerations. The implication is that the voices of health care providers need to be included in using robots. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-doi:10.1136/bmjopen-2023-075278.


Asunto(s)
Inteligencia Artificial , Personal de Salud , Cuidados a Largo Plazo , Robótica , Inteligencia Artificial/tendencias , Humanos , Cuidados a Largo Plazo/métodos , Casas de Salud , Actitud del Personal de Salud
19.
PLoS One ; 19(6): e0305266, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38870211

RESUMEN

Older people living with dementia or mild cognitive impairment (MCI) are more vulnerable to experiencing social isolation and loneliness due to their cognitive and physical impairments. Increasingly integrating technology into group exercises contributed to the improved resilience and well-being of older adults living with dementia and MCI. The purpose of this scoping review was to identify the various types, feasibility, outcome measures, and impacts of technology-based group exercise interventions for people with dementia or MCI. We utilized the Joanna Briggs Institute approach, a three-step process. A comprehensive literature search on five databases-CINAHL, MEDLINE, Embase, Web of Science, and PsycInfo-until January 2024 yielded 1,585 publications; the final review included 14 publications that recruited a total of 379 participants, with mean age of 69 (SD = 4.21) years to 87.07 (SD = 3.92) years. Analysis of data showed three types of technology-based group exercise interventions for people with dementia or MCI: (a) exergames, (b) virtual cycling or kayak paddling, and (c) video-conferencing platforms. In addition, we identified three key impacts: (a) feasibility and accessibility; (b) physical, psychosocial, and cognitive benefits; and (c) adaptations necessary for persons with dementia or MCI. Our study suggests that technology-based group exercise interventions are feasible and acceptable to persons with dementia or MCI. Future studies should involve individuals with dementia and their caregivers in the design and implementation of technology-based group exercise programs.


Asunto(s)
Disfunción Cognitiva , Demencia , Terapia por Ejercicio , Humanos , Disfunción Cognitiva/terapia , Disfunción Cognitiva/psicología , Demencia/psicología , Demencia/terapia , Terapia por Ejercicio/métodos , Anciano , Anciano de 80 o más Años , Ejercicio Físico , Calidad de Vida , Femenino
20.
Front Dement ; 3: 1422820, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-39081613

RESUMEN

Introduction: Research involvement of people with lived experiences is increasing. Few tools are designed to evaluate their engagement in research. The Patient Engagement In Research Scale (PEIRS) is one of the few validated tools. Our team employed the PEIRS with patient and family partners with lived experiences of dementia every 6 months in a two-year telepresence robot project. This reflection paper reports our self-study on key learnings and proposes practical tips on using the PEIRS to evaluate patient and family partners' engagement in dementia research. It is the first to document a case using the PEIRS multiple times in a dementia research project. Methods: Guided by Rolfe et al.'s reflective model, we conducted three team reflective sessions to examine the team's experiences using the PEIRS to improve and evaluate patient and family partners' engagement in the research. We also reviewed our meeting notes and fieldnotes documented in the research journal. A reflexive thematic analysis was performed. Results: The team identified three key learnings: the values of using the PEIRS survey, the adaptations, and the factors influencing its implementation as an evaluation tool. Using the PEIRS provided significant benefits to the project, although some patient and family partners felt it was burdensome. The evaluation tool was enhanced with emojis and comment boxes based on suggestions from patient partners. The emojis introduced an element of fun, while the comment boxes allowed for personalized responses. Several factors influenced the PEIRS tool's effectiveness: the interviewer's identity, the confidentiality of responses and follow-ups, the timing and frequency of using the tool, and the presentation of the evaluations. These learnings led to the development of six practical tips,-"ENGAGE": Enjoyable and fun process, Never impose, Get prepared early, Adapt to the team's needs, Give people options, and Engage and reflect. Conclusion: With the emerging trend of including people with lived experiences in dementia research, there is a need for ongoing assessment of engagement from both patient and family partners and the research team strategies. Future research can further explore survey logistics, co-development of evaluation tools, and the use of tools with people living with dementia.

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