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1.
Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home.
Eur J Pediatr
; 183(2): 629-637, 2024 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-37950793
2.
Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study.
Eur J Pediatr
; 182(10): 4683-4706, 2023 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-37561196
3.
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review.
Palliat Med
; 37(9): 1303-1325, 2023 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-37461310
4.
Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning.
Palliat Med
; 37(5): 707-718, 2023 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-36515362
5.
A grounded theory study on the dynamics of parental grief during the children's end of life.
Acta Paediatr
; 112(5): 1101-1108, 2023 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-36806310
6.
Effective communication in palliative care from the perspectives of patients and relatives: A systematic review.
Palliat Support Care
; 21(5): 890-913, 2023 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-37646464
7.
Impacts of an advance care planning intervention on close relationships.
Palliat Support Care
; : 1-6, 2023 May 30.
Artículo
en Inglés
| MEDLINE | ID: mdl-37249086
8.
How can advance care planning support hope in patients with advanced cancer and their families: A qualitative study as part of the international ACTION trial.
Eur J Cancer Care (Engl)
; 31(6): e13719, 2022 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-36168108
9.
Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review.
Acta Paediatr
; 111(4): 716-732, 2022 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-34995378
10.
Parental experiences and perspectives on the value of seizure detection while caring for a child with epilepsy: A qualitative study.
Epilepsy Behav
; 124: 108323, 2021 Sep 28.
Artículo
en Inglés
| MEDLINE | ID: mdl-34598099
11.
Parents' perspectives on nusinersen treatment for children with spinal muscular atrophy.
Dev Med Child Neurol
; 63(7): 816-823, 2021 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-33550591
12.
Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals.
Eur J Pediatr
; 180(3): 949-957, 2021 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-33030601
13.
Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation.
BMC Pediatr
; 21(1): 376, 2021 09 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-34470598
14.
Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial.
PLoS Med
; 17(11): e1003422, 2020 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-33186365
15.
Treatment decision-making in diffuse cutaneous systemic sclerosis: a patient's perspective.
Rheumatology (Oxford)
; 59(8): 2052-2061, 2020 08 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-31808528
16.
Parental experiences in end-of-life decision-making in allogeneic pediatric stem cell transplantation: "Have I been a good parent?"
Pediatr Blood Cancer
; 67(5): e28229, 2020 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-32134215
17.
Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child.
Eur J Pediatr
; 179(9): 1461-1468, 2020 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-32193658
18.
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning.
Acta Paediatr
; 109(5): 1011-1018, 2020 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-31625623
19.
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories.
BMC Palliat Care
; 19(1): 28, 2020 Mar 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-32164668
20.
Assessing Emotional Functioning with Increased Power: Relative Validity of a Customized EORTC Short Form in the International ACTION Trial.
Value Health
; 22(1): 92-98, 2019 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30661639