RESUMEN
AIM: We describe the experience of a new paediatric heart transplant (HT) centre in Australia. New South Wales offers quaternary paediatric cardiac services including comprehensive care pre- and post-HT; however, perioperative HT care has previously occurred at the national paediatric centre or in adult centres. Internationally, perioperative HT care is highly protocol-driven and a majority of HT occurs in low volume centres. Establishing a low volume paediatric HT centre in New South Wales offers potential for quality HT care close to home. METHODS: Retrospective review of programme data for the first 12 months was undertaken. Patient selection was audited against the programme's intended initiation criteria. Longitudinal patient data on outcomes and complications were obtained from patient medical records. RESULTS: The programme's initial phase offered HT to children with non-congenital heart disease and no requirement for durable mechanical circulatory support. Eight patients met criteria for HT referral. Three underwent interstate transfer to the national paediatric centre. Five children (13-15 years, weight 36-85 kg) underwent HT in the new programme. Individual predicted 90-day mortality was 1.3-11.6%, with increased risk for recipients transplanted from veno-arterial extracorporeal membrane oxygenation (VA-ECMO) and with restrictive/hypertrophic cardiomyopathies. Survival at 90 days and for duration of follow-up is 100%. Observed programme benefits include mitigation of family dislocation and improved continuity of care within a family-centred programme. CONCLUSION: Audit of the first 12 months' activity of a second paediatric HT centre in Australia demonstrates adherence to proposed patient selection criteria and excellent 90-day patient outcomes. The programme demonstrates feasibility of care close to home, providing continuity for all patients including those requiring increased rehabilitation and psychosocial support post-transplantation.
Asunto(s)
Oxigenación por Membrana Extracorpórea , Trasplante de Corazón , Adulto , Humanos , Niño , Australia , Estudios Retrospectivos , Nueva Gales del SurRESUMEN
When presented with temporally displaced audiovisual events, observers shift their point of subjective simultaneity (PSS) in the direction of this prior lag. This effect, known as temporal recalibration (TR), has been inferred previously using single audiovisual events. Here we investigate TR using an audiovisual synchrony search paradigm employing spatiotemporally cluttered visual displays. By manipulating the relative modulation frequency of the adaptor (0.72 Hz) and test (0.36, 0.72 Hz) we find that following lag-adaptation, PSS shifts preserve the relative phase-not the latency-of the adapted lag. Applying this cross-frequency design to a classic simultaneity discrimination task, we find TR is unaffected by the relative frequency of adaptor and test in terms of latency rather than phase. This dissociation implies that under conditions of low spatial certainty TR obeys a relativistic (phase-conserving) temporal scaling law, whereas high spatial certainty affords PSS shifts, which operate in absolute (latency-conserving) temporal coordinates.
Asunto(s)
Adaptación Ocular/fisiología , Percepción Auditiva/fisiología , Fijación Ocular/fisiología , Percepción Visual/fisiología , Estimulación Acústica/métodos , Adulto , Femenino , Humanos , Masculino , Tiempo de ReacciónRESUMEN
Background: The COVID-19 pandemic has significantly increased stress and strain on health professionals. With a focus on paediatric cardiac care, this study explored health professionals' concerns about COVID-19, perceptions of the impact of pandemic on healthcare, and experiences of psychological stress. Methods: Paediatric health professionals working at a large quaternary hospital in Australia were invited to complete a survey between June 2020 and February 2021. Demographic factors, clinical role characteristics, and anxiety and depressive symptoms were assessed. Qualitative data on experiences and perceived effects of the pandemic on paediatric cardiac care were also collected. Results: 228 health professionals (152 nurses, 37 medical doctors, 22 allied and mental health professionals, 17 medical research and administrative staff) participated in the survey (54.4% response rate, 85% women). Half the sample (52.2%) endorsed 'moderate' to 'extreme' worry about COVID-19 and 38% of participants perceived healthcare services as adversely impacted by the pandemic to a 'great' or 'very great' extent. Almost one in five health professionals reported anxiety (18%) and 11% reported depressive symptoms indicative of a need for clinical intervention. Six themes were identified in the qualitative data: (1) Concern about the consequences of visitor restrictions and disrupted patient services, (2) Intensified strain on healthcare workers, (3) Feelings of fear and loss, (4) Social isolation and disconnection, (5) Adapting to change, and (6) Gratitude. Conclusion: Timely, tailored policies, supports, and interventions are needed to address health professionals' mental health needs during and beyond the pandemic, to minimize the far-reaching impact of situational stressors.