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1.
Bipolar Disord ; 20(7): 622-633, 2018 11.
Artículo en Inglés | MEDLINE | ID: mdl-29528180

RESUMEN

OBJECTIVES: Caregivers of people with bipolar disorder often have depression and health problems. This study aimed to evaluate the sustained effects of a 12-15 week psychoeducational intervention on the health and mental health of caregivers of persons with bipolar disorder. We also evaluated the effects of the intervention on patients' mood symptoms over 6 months post-treatment. METHODS: Caregivers of 46 persons with bipolar disorder were randomized to 12-15 weeks of a caregiver-only adaptation of family-focused treatment (FFT), in which caregivers were instructed on self-care strategies and ways to assist the patient in managing the illness, or to 8-12 sessions of standard health education. Independent evaluators assessed caregivers' depression and physical health and patients' mood symptoms before treatment, immediately after the treatment, and at 6 months post-treatment. RESULTS: Randomization to FFT was associated with greater decreases in depression for both caregivers and patients over a 6-month follow-up period post-treatment. Reductions in patients' depression scores over 6 months post-treatment were mediated by reductions in caregivers' depression scores (z = -2.74, P < .01). CONCLUSIONS: Interventions that are effective in reducing mood symptoms and improving health behavior in caregivers may have important health and mental health benefits for patients with bipolar disorder. Specifically, a treatment focused on caregiver education about bipolar disorder and the need for the caregiver to attend to his/her own health and mental health can benefit patients, even without their direct participation.


Asunto(s)
Trastorno Bipolar , Cuidadores , Depresión , Terapia Familiar/métodos , Educación en Salud/métodos , Autocuidado , Adulto , Trastorno Bipolar/psicología , Trastorno Bipolar/terapia , Cuidadores/educación , Cuidadores/psicología , Depresión/diagnóstico , Depresión/psicología , Depresión/terapia , Salud de la Familia , Femenino , Conductas Relacionadas con la Salud , Humanos , Masculino , Salud Mental , Persona de Mediana Edad , Autocuidado/métodos , Autocuidado/psicología , Resultado del Tratamiento
2.
Bipolar Disord ; 18(2): 183-91, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-27004622

RESUMEN

OBJECTIVES: Over one-third of caregivers of people with bipolar disorder report clinically significant levels of depressive symptoms. This study examined the causal relationship between depression and caregiver burden in a large sample of caregivers of adult patients with bipolar disorder. METHODS: Participants were 500 primary caregivers of persons with bipolar disorder enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder (STEP-BD).This study evaluates the strength and direction of the associations between caregiver burden and depressive symptoms at baseline and at six- and 12-month follow-up using cross-lagged panel analyses, controlling for the clinical status of patients and sociodemographic variables. RESULTS: Higher levels of overall caregiver burden at baseline were associated with increased levels of depressive symptoms among caregivers at follow-up (F = 8.70, df = 1,290, p < 0.001), after controlling for baseline caregiver depression, gender, race, age, social support, and patients' clinical status. By contrast, caregiver depression at baseline was not significantly associated with caregiver burden at follow-up (F = 1.65, p = 0.20). CONCLUSIONS: Caregiver burden is a stronger predictor of caregiver depressive symptoms over time than the reverse. Interventions that help alleviate caregiver burden may decrease depressive symptoms.


Asunto(s)
Adaptación Psicológica , Trastorno Bipolar , Cuidadores/psicología , Desgaste por Empatía , Costo de Enfermedad , Depresión , Adulto , Trastorno Bipolar/psicología , Trastorno Bipolar/terapia , Desgaste por Empatía/etiología , Desgaste por Empatía/prevención & control , Desgaste por Empatía/psicología , Estudios Transversales , Depresión/epidemiología , Depresión/etiología , Depresión/prevención & control , Femenino , Amigos/psicología , Humanos , Masculino , Persona de Mediana Edad , Apoyo Social , Estadística como Asunto , Estados Unidos/epidemiología
3.
J Ment Health ; 22(3): 254-62, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23662789

RESUMEN

BACKGROUND: Studies have indicated that family members of persons with mental illness often experience stigma in relation to their relatives' illness. Less is known about the type of experiences they face and how they cope with these experiences. AIMS: To explore family members' experiences and efforts to cope with mental illness stigma in social encounters. METHOD: A qualitative immersion/crystallization analysis of focus group data was used to examine family members' experiences and responses to perceived stigma. RESULTS: Family members reported experiencing rejection, blame and avoidance by others, engendering hurt, disappointment and shame. They employed flexible coping strategies depending on their personal resources, motivation and their relatives' willingness to disclose. CONCLUSION: Findings suggest that families learn from their own experience the "art of selective disclosure": what, when, how much and who to share information with. Coping strategies are developed based on the situation and family members' needs and personal resources which differ between families and over time.


Asunto(s)
Adaptación Psicológica , Familia/psicología , Enfermos Mentales , Estigma Social , Femenino , Humanos , Masculino
4.
Bipolar Disord ; 12(6): 627-37, 2010 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-20868461

RESUMEN

OBJECTIVES: Family members of patients with bipolar disorder experience high rates of subjective and objective burden which place them at risk for adverse physical health and mental health outcomes. We present preliminary efficacy data from a novel variation of Family Focused Treatment [Miklowitz DJ. Bipolar Disorder: A Family-Focused Treatment Approach (2(nd) ed.). New York: The Guilford Press, 2008] that aimed to reduce symptoms of bipolar disorder by working with caregivers to enhance illness management skills and self-care. METHODS: The primary family caregivers of 46 patients with bipolar I (n = 40) or II (n = 6) disorder, diagnosed by the Structured Clinical Interview for DSM-IV Axis I Disorders, were assigned randomly to receive either: (i) a 12-15-session family-focused, cognitive-behavioral intervention designed to provide the caregiver with skills for managing the relative's illness, attaining self-care goals, and reducing strain, depression, and health risk behavior [Family-Focused Treatment-Health Promoting Intervention (FFT-HPI)]; or (ii) an 8- to 12-session health education (HE) intervention delivered via videotapes. We assessed patients pre- and post-treatment on levels of depression and mania and caregivers on levels of burden, health behavior, and coping. RESULTS: Randomization to FFT-HPI was associated with significant decreases in caregiver depressive symptoms and health risk behavior. Greater reductions in depressive symptoms among patients were also observed in the FFT-HPI group. Reduction in patients' depression was partially mediated by reductions in caregivers' depression levels. Decreases in caregivers' depression were partially mediated by reductions in caregivers' levels of avoidance coping. CONCLUSIONS: Families coping with bipolar disorder may benefit from family interventions as a result of changes in the caregivers' ability to manage stress and regulate their moods, even when the patient is not available for treatment.


Asunto(s)
Trastorno Bipolar/enfermería , Cuidadores/psicología , Terapia Familiar , Adulto , Anciano , Terapia Cognitivo-Conductual , Depresión , Femenino , Estado de Salud , Humanos , Masculino , Persona de Mediana Edad , Autocuidado , Estrés Psicológico
5.
Bipolar Disord ; 11(8): 876-84, 2009 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-19922556

RESUMEN

OBJECTIVES: Few studies have addressed the physical and mental health effects of caring for a family member with bipolar disorder. This study examined whether caregivers' health is associated with changes in suicidal ideation and depressive symptoms among bipolar patients observed over one year. METHODS: Patients (N = 500) participating in the Systematic Treatment Enhancement Program for Bipolar Disorder and their primary caregivers (N = 500, including 188 parental and 182 spousal caregivers) were evaluated for up to one year as part of a naturalistic observational study. Caregivers' perceptions of their own physical health were evaluated using the general health scale from the Medical Outcomes Study 36-item Short-Form Health Survey. Caregivers' depression was evaluated using the Center for Epidemiological Studies of Depression Scale. RESULTS: Caregivers of patients who had increasing suicidal ideation over time reported worsening health over time compared to caregivers of patients whose suicidal ideation decreased or stayed the same. Caregivers of patients who had more suicidal ideation and depressive symptoms reported more depressed mood over a one-year reporting period than caregivers of patients with less suicidal ideation or depression. The pattern of findings was consistent across parent caregivers and spousal caregivers. CONCLUSIONS: Caregivers, rightly concerned about patients becoming suicidal or depressed, may try to care for the patient at the expense of their own health and well-being. Treatments that focus on the health of caregivers must be developed and tested.


Asunto(s)
Trastorno Bipolar/complicaciones , Trastorno Bipolar/psicología , Cuidadores/psicología , Depresión/etiología , Depresión/psicología , Suicidio/psicología , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Lista de Verificación/métodos , Salud de la Familia , Femenino , Humanos , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Observación , Valor Predictivo de las Pruebas , Escalas de Valoración Psiquiátrica , Estudios Retrospectivos , Autoimagen , Suicidio/estadística & datos numéricos , Factores de Tiempo , Adulto Joven
6.
Schizophr Res ; 99(1-3): 192-9, 2008 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-17851042

RESUMEN

PURPOSE: This study aimed to evaluate the association of positive and negative symptoms, as well as of neurocognition to functional status in patients with schizophrenia. Participants were 309 veterans with DSM-IV-diagnosed schizophrenia or schizoaffective disorder who were enrolled in a 12-month double-blind clinical trial and randomized to receive either 5 to 20 mg/d of oral olanzapine or haloperidol. Patients were assessed at study entry and at 3, 6 and 12-months on the PANSS and measures of verbal memory, verbal fluency, fine motor coordination, visual sequencing/set shifting, and conceptual reasoning. Functional status was evaluated by the Heinrichs-Carpenter Quality of Life Scale (QLS) and by days of employment in the past 30. Hierarchical regression models examined the association of functional status with symptomatology and three neurocognitive factors (motor skills, memory and card sorting), controlling for demographics and visit number. A mixed effects model was used to adjust for repeated observations from the same subjects. RESULTS: The PANSS explained 16% additional variance in QLS total score after accounting for demographics and visit number (p<.001), while the neurocognitive factors explained only 4% additional variance beyond the effect of symptoms. When neurocognition was entered before symptoms, it explained an additional 8% of the variance on the QLS total score, while the PANSS explained an additional 12% over and above neurocognition. CONCLUSIONS: These findings suggest that symptoms may pose an equal or greater impediment to functional capacity independent of neurocognition, at least in younger non-institutionalized people with schizophrenia.


Asunto(s)
Actividades Cotidianas/psicología , Trastornos del Conocimiento/diagnóstico , Trastornos Psicóticos/diagnóstico , Calidad de Vida/psicología , Esquizofrenia/diagnóstico , Psicología del Esquizofrénico , Veteranos/psicología , Administración Oral , Adulto , Antipsicóticos/efectos adversos , Antipsicóticos/uso terapéutico , Benzodiazepinas/efectos adversos , Benzodiazepinas/uso terapéutico , Trastornos del Conocimiento/tratamiento farmacológico , Trastornos del Conocimiento/psicología , Relación Dosis-Respuesta a Droga , Método Doble Ciego , Empleo/psicología , Femenino , Estudios de Seguimiento , Haloperidol/efectos adversos , Haloperidol/uso terapéutico , Humanos , Masculino , Persona de Mediana Edad , Pruebas Neuropsicológicas , Olanzapina , Escalas de Valoración Psiquiátrica , Trastornos Psicóticos/psicología , Esquizofrenia/tratamiento farmacológico , Ajuste Social
7.
J Nerv Ment Dis ; 196(6): 484-91, 2008 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-18552626

RESUMEN

To identify caregivers at risk for adverse health effects associated with caregiving, the stress, coping, health and service use of 500 primary caregivers of patients with bipolar disorder were assessed at baseline, 6, and 12 months. K-means cluster analysis and ANOVA identified and characterized groups with differing baseline stress/coping profiles. Mixed effects models examined the effects of cluster, time, and covariates on health outcomes. Three groups were identified. Burdened caregivers had higher burden and avoidance coping levels, and lower mastery and social support than effective and stigmatized caregivers; stigmatized caregivers reported the highest perceived stigma (p < 0.05). Effective and stigmatized groups had better health outcomes and less service use than the burdened group over time; stigmatized caregivers had poorer self-care than effective caregivers. Cluster analysis is a promising method for identifying subgroups of caregivers with different stress and coping profiles associated with different health-related outcomes.


Asunto(s)
Trastorno Bipolar/psicología , Cuidadores/psicología , Costo de Enfermedad , Estado de Salud , Adaptación Psicológica , Adulto , Afecto , Anciano , Trastorno Bipolar/terapia , Análisis por Conglomerados , Mecanismos de Defensa , Femenino , Conductas Relacionadas con la Salud , Humanos , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Inventario de Personalidad , Prejuicio , Escalas de Valoración Psiquiátrica , Autocuidado/psicología , Apoyo Social , Estrés Psicológico/complicaciones
8.
Psychiatr Serv ; 59(1): 40-8, 2008 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-18182538

RESUMEN

It is well documented that family psychoeducation decreases relapse rates of individuals with schizophrenia. Despite the evidence, surveys indicate that families have minimal contact with their relative's treatment team, let alone participate in the evidence-based practice of family psychoeducation. The Department of Veterans Affairs (VA) sponsored a conference, the Family Forum, to assess the state of the art regarding family psychoeducation and to form a consensus regarding the next steps to increase family involvement. The forum reached consensus on these issues: family psychoeducation treatment models should be optimized by efforts to identify the factors mediating their success in order to maximize dissemination; leadership support, training in family psychoeducation models for managers and clinicians, and adequate resources are necessary to successfully implement family psychoeducation; because family psychoeducation may not be appropriate, indicated, or acceptable for all families, additional complementary strategies are needed that involve families in the mental health care of the patient; and work is required to develop and validate instruments that appropriately assess the intervention process and consumer and family outcomes. A treatment heuristic for working with families of persons with severe mental illness is also offered and provides a match of interventions at varying levels of intensity, tailored to family and consumer needs and circumstances. The article describes opportunities for the research and clinical communities to expand the proportion of families served.


Asunto(s)
Educación en Salud , Trastornos Mentales/terapia , Relaciones Profesional-Familia , Adaptación Psicológica , Conflicto Psicológico , Costo de Enfermedad , Familia/psicología , Salud de la Familia , Humanos , Trastornos Mentales/tratamiento farmacológico , Trastornos Mentales/psicología , Servicios de Salud Mental/estadística & datos numéricos , Cooperación del Paciente , Calidad de Vida/psicología , Índice de Severidad de la Enfermedad , Conducta Social , Apoyo Social
9.
Psychiatr Serv ; 58(1): 41-8, 2007 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-17215411

RESUMEN

OBJECTIVE: Little is known about the factors contributing to mental illness stigma among caregivers of people with bipolar disorder. METHODS: A total of 500 caregivers of patients participating in the Systematic Treatment Enhancement Program for Bipolar Disorder (STEP-BD) study were interviewed in a cross-sectional design on measures of stigma, mood, burden, and coping. Relatives and friends with bipolar disorder were assessed on measures of diagnosis and clinical status, determined by a days-well measure derived from psychiatrist ratings of DSM-IV episode status. Because patients' clinical status varied widely, separate models were run for patients who were euthymic for at least three-fourths of the past year (well group) and for those who met criteria for an affective episode for at least one-fourth of the previous year (unwell group). Stepwise multiple regression was used to identify patient, illness, and caregiver characteristics associated with caregiver stigma. RESULTS: In the unwell group, greater mental illness stigma was associated with bipolar I (versus II) disorder, less social support for the caregiver, fewer caregiver social interactions, and being a caregiver of Hispanic descent. In the well group, greater stigma was associated with being a caregiver who is the adult child of a parent with bipolar disorder, who has a college education, who has fewer social interactions, and who cares for a female bipolar patient. CONCLUSIONS: Mental illness stigma was found to be prevalent among caregivers of persons with bipolar disorder who have active symptoms as well as for caregivers of those who have remitted symptoms. Stigma is typically associated with factors identifying patients as "different" during symptomatic periods. Research is needed to understand how the stigma experienced by caregivers during stable phases of illness differs from the stigma experienced during patients' illness states.


Asunto(s)
Trastorno Bipolar/psicología , Trastorno Bipolar/terapia , Cuidadores/psicología , Cuidadores/estadística & datos numéricos , Depresión/epidemiología , Depresión/psicología , Promoción de la Salud , Estereotipo , Adolescente , Adulto , Anciano , Costo de Enfermedad , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Psicología , Índice de Severidad de la Enfermedad , Apoyo Social
10.
Suicide Life Threat Behav ; 37(4): 482-91, 2007 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-17896888

RESUMEN

We examined whether caregivers of bipolar patients reporting current suicidal ideation and/or a history of a suicide attempt reported higher levels of burden and/or poorer health compared to caregivers of patients without these suicidality indices. In a cross-sectional design, caregivers (N = 480) associated with (a) patients with current suicidal ideation or (b) patients with a positive lifetime history of at least one suicide attempt, reported lower general health scores than caregivers associated with patients with neither of these indices. Parents of patients with at least one lifetime attempt reported more burden secondary to role dysfunction than spouses. Levels of depression in caregivers varied with whether the caregiver was a spouse or a parent, and whether patients had a history of suicide attempts, current suicidal ideation, or both.


Asunto(s)
Trastorno Bipolar/epidemiología , Cuidadores/estadística & datos numéricos , Salud de la Familia , Estado de Salud , Intento de Suicidio/estadística & datos numéricos , Suicidio/psicología , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Trastorno Bipolar/psicología , Cuidadores/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Recurrencia , Intento de Suicidio/psicología
11.
Mil Med Res ; 4: 21, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28680693

RESUMEN

Post-traumatic stress disorder (PTSD) is a disabling, potentially chronic disorder that is characterized by re-experience and hyperarousal symptoms as well as the avoidance of trauma-related stimuli. The distress experienced by many veterans of the Vietnam War and their partners prompted a strong interest in developing conjoint interventions that could both alleviate the core symptoms of PTSD and strengthen family bonds. We review the evolution of and evidence base for conjoint PTSD treatments from the Vietnam era through the post-911 era. Our review is particularly focused on the use of treatment strategies that are designed to address the emotions that are generated by the core symptoms of the disorder to reduce their adverse impact on veterans, their partners and the relationship. We present a rationale and evidence to support the direct incorporation of emotion-regulation skills training into conjoint interventions for PTSD. We begin by reviewing emerging evidence suggesting that high levels of emotion dysregulation are characteristic of and predict the severity of both PTSD symptoms and the level of interpersonal/marital difficulties reported by veterans with PTSD and their family members. In doing so, we present a compelling rationale for the inclusion of formal skills training in emotional regulation in couple-/family-based PTSD treatments. We further argue that increased exposure to trauma-related memories and emotions in treatments based on learning theory requires veterans and their partners to learn to manage the uncomfortable emotions that they previously avoided. Conjoint treatments that were developed in the last 30 years all acknowledge the importance of emotions in PTSD but vary widely in their relative emphasis on helping participants to acquire strategies to modulate them compared to other therapeutic tasks such as learning about the disorder or disclosing the trauma to a loved one. We conclude our review by describing two recent innovative treatments for PTSD that incorporate a special emphasis on emotion-regulation skills training in the dyadic context: structured approach therapy (SAT) and multi-family group for military couples (MFG-MC). Although the incorporation of emotion-regulation skills into conjoint PTSD therapies appears promising, replication and comparison to cognitive-behavioral approaches is needed to refine our understanding of which symptoms and veterans might be more responsive to one approach versus others.


Asunto(s)
Terapia Centrada en la Emoción/normas , Familia/psicología , Trastornos por Estrés Postraumático/psicología , Trastornos por Estrés Postraumático/terapia , Veteranos/psicología , Terapia Centrada en la Emoción/historia , Terapia Centrada en la Emoción/métodos , Historia del Siglo XX , Historia del Siglo XXI , Humanos , Exposición a la Guerra/efectos adversos
12.
Psychiatr Serv ; 57(8): 1117-25, 2006 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-16870962

RESUMEN

OBJECTIVE: Components and correlates of caregiver burden in schizophrenia were studied. METHODS: The family caregivers of 623 (43 percent) of 1,460 patients with schizophrenia enrolled in the Clinical Antipsychotic Trials of Intervention Effectiveness (CATIE) were interviewed about resources they provided and experiences with patient behavior over the previous month. Patients were independently evaluated on symptoms, quality of life, neurocognition, medication side effects, and service use. Factor analysis reduced the caregiver data into four orthogonal factors assessing perceptions of patient problem behavior, patient impairment in activities of daily living, patient helpfulness, and resource demands and disruptions in the caregiver's personal routine. RESULTS: Hierarchical regression analyses demonstrated differential correlates of burden for each factor, explaining 34 percent of variance each for problem behavior and resource demands and disruption, 21 percent for impairment in activities of daily living, and 38 percent for patient helpfulness. Demographic characteristics and patient symptoms explained the greatest proportion of variance, whereas quality of life and service use explained modest variance and patient neurocognition and medication side effects were not significantly associated with burden. CONCLUSIONS: Results underscore the need for continued intervention with family members after the acute inpatient phase of treatment to address the impacts of symptoms as well as incorporation of skills training into consumer treatment programs to improve consumer contributions to household maintenance.


Asunto(s)
Costo de Enfermedad , Familia , Esquizofrenia , Adulto , Cuidadores , Demografía , Análisis Factorial , Femenino , Servicios de Salud/estadística & datos numéricos , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Calidad de Vida , Estados Unidos
13.
J Ment Health Policy Econ ; 9(2): 99-110, 2006 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-17007487

RESUMEN

BACKGROUND: Informal caregiving contributes significantly to the health and well being of chronically ill persons. While a vast literature demonstrates this connection, the cost and financial burden of informal caregiving has received considerably less research attention, especially as it-pertains to bipolar disorder. AIMS OF THE STUDY: This paper develops an integrated burden model of informal caregiving, which is contrasted with other more traditional models of caregiving costs, and then uses these models to estimate the financial burden of bipolar disorder. The "goodness" of these various models is measured in terms of their correlation with measures of objective and subjective burden for caregivers of persons with bipolar disorder. METHODS: The study was an ancillary protocol to the Systematic Treatment Enhancement Program for Bipolar Disorder (STEP-BD) and included primary caregivers of 500 people with bipolar disorder. Approximately 96% (n=486) caregivers participated in the study. Caregivers were interviewed at baseline, and six and 12 months after an initial interview. The semi-structured interview included questions on (i) subjective distress; (ii) the types of support and services; (iii) caregiver use of formal and informal services and support; and (iv) contributions received from the relative with bipolar over the past month. RESULTS: The correlations between financial burden and psychological burden measures were positive and statistically significant in cases where all resource costs were measured but adjusted for reciprocated giving and customary generosity (the integrated model). The strength of correlations was greater when time is valued at its opportunity cost (and not imputed) and the caregiving costs based on this valuation approach were logarithmically transformed. DISCUSSION: The magnitude of the correlations is consistent with the notion that caregiver burden is a coherent construct with multiple different dimensions. Financial burden appears to be a unique dimension that is significantly intercorrelated with psychological measures but is not redundant with them. The robustness of these findings need to be tested with larger samples and across caregiver illness groups. IMPLICATIONS FOR HEALTH CARE PROVISION AND USE: Caregiving is likely to have health and stress-related consequences that increase caregiving costs. Understanding which costs are associated with feelings of burden can be used to inform the design of interventions to minimize the stressful or burdensome aspects of caregiving. Giving back reduces the magnitude of caregiving costs and the sense of psychological burden. Interventions that develop the potential to "give back" are likely to be beneficial for both the caregiver and the care receiver as it increases reciprocity and decreases dependency. IMPLICATIONS FOR FURTHER RESEARCH: Caution is needed in estimating the costs of informal caregiving needs as many costs are possible but their relationship to burden varies in strength and significance. Assumptions related to what is given and received and how this relates to expected patterns of giving and receiving in measuring and determining financial burden and costs are particularly important, as is the valuation of time.


Asunto(s)
Trastorno Bipolar/economía , Trastorno Bipolar/terapia , Cuidadores/economía , Costo de Enfermedad , Costos de la Atención en Salud , Atención Domiciliaria de Salud/economía , Trastorno Bipolar/epidemiología , Cuidadores/psicología , Áreas de Influencia de Salud , Enfermedad Crónica , Costos y Análisis de Costo , Femenino , Humanos , Masculino , Persona de Mediana Edad , Variaciones Dependientes del Observador , Apoyo Social , Factores Socioeconómicos , Estados Unidos/epidemiología
14.
Psychiatr Serv ; 56(12): 1564-9, 2005 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-16339619

RESUMEN

OBJECTIVE: This article describes the development, administration, and reliability of the Cornell Services Index (CSI), a new instrument that measures health service use. The CSI was developed to create a standardized measure of the quantity and characteristics (for example, site and provider) of services used by adults. Descriptive data are provided to illustrate the application of the CSI in a community sample of adults who were newly admitted to outpatient mental health clinics. These data provide information about the pathways to care. METHODS: The interrater and test-retest reliability of the CSI were evaluated by using a sample of 40 adults who were seeking mental health treatment. Descriptive data on service use in a sample of 1,279 adults seeking care in outpatient mental health clinics was provided to demonstrate the application of the CSI. RESULTS: The CSI is a portable, easy to use, and brief assessment of service use. It has good interrater and test-retest reliability among adults without cognitive impairment. In the three months before seeking care, 31 percent of the adults interviewed had made a mental health visit, 36 percent had been hospitalized, and more than half (59 percent) had made a medical visit. Twenty-three percent of adults had sought care from a hospital's emergency department. CONCLUSIONS: The CSI is a reliable method to assess health service use for adults. The measure can extend assessment of use beyond the traditional mental health service use questions and provide a snapshot of service use patterns across types, providers, and sites of service among adults who seek mental health care.


Asunto(s)
Instituciones de Atención Ambulatoria , Servicios Comunitarios de Salud Mental/estadística & datos numéricos , Investigación sobre Servicios de Salud , Recolección de Datos/métodos , Femenino , Humanos , Masculino , Variaciones Dependientes del Observador , Reproducibilidad de los Resultados , Estados Unidos
15.
Psychiatr Serv ; 55(9): 1029-35, 2004 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-15345763

RESUMEN

OBJECTIVE: This study evaluated the direct and indirect effects of family burden and affective response on medication adherence and outcome among patients with bipolar disorder. METHODS: Data were examined for 126 patients who were consecutively admitted to the psychiatric service at a university-affiliated hospital and who met research diagnostic criteria for bipolar I or II disorder or for schizoaffective disorder, manic type, and their family caregivers. A total of 101 pairs of patients and family caregivers (80 percent) completed 15 months of study and were included in the analyses. Patients and their identified caregivers were assessed within two weeks of either discharge from the index inpatient admission or initiation of outpatient treatment (baseline assessment). Patients and caregivers were also assessed seven and 15 months after the baseline assessment. Structural equation modeling was used to evaluate caregivers' influences on patients' medication adherence seven months after baseline and on clinical outcome 15 months after baseline. RESULTS: The indexes of overall fit for the path model confirmed the a priori measurement model. Significant paths were found from the caregiver's perceived burden at baseline to the caregiver's emotional overinvolvement at baseline, from the caregiver's emotional overinvolvement at baseline to the patient's medication adherence at the seven month follow-up, and from the patient's medication adherence at the seven-month follow-up to the patient's outcome at the 15-month follow-up. The paths from the caregiver's perceived burden at baseline to the patient's medication adherence seven months after baseline and the patient's outcome 15 months after baseline were not significant. CONCLUSIONS: When caregivers of patients with bipolar illness experience a high burden, patient outcome is adversely affected. This relationship is mediated through families' affective response and patients' medication adherence.


Asunto(s)
Afecto , Trastorno Bipolar/tratamiento farmacológico , Cuidadores/psicología , Costo de Enfermedad , Familia/psicología , Cooperación del Paciente , Adulto , Actitud Frente a la Salud , Trastorno Bipolar/rehabilitación , Femenino , Estudios de Seguimiento , Hospitalización , Hospitales Psiquiátricos , Humanos , Masculino , Evaluación de Resultado en la Atención de Salud , Conducta Social , Encuestas y Cuestionarios , Resultado del Tratamiento
16.
Psychol Sci Public Interest ; 15(2): 37-70, 2014 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-26171956

RESUMEN

Treatments have been developed and tested to successfully reduce the symptoms and disabilities of many mental illnesses. Unfortunately, people distressed by these illnesses often do not seek out services or choose to fully engage in them. One factor that impedes care seeking and undermines the service system is mental illness stigma. In this article, we review the complex elements of stigma in order to understand its impact on participating in care. We then summarize public policy considerations in seeking to tackle stigma in order to improve treatment engagement. Stigma is a complex construct that includes public, self, and structural components. It directly affects people with mental illness, as well as their support system, provider network, and community resources. The effects of stigma are moderated by knowledge of mental illness and cultural relevance. Understanding stigma is central to reducing its negative impact on care seeking and treatment engagement. Separate strategies have evolved for counteracting the effects of public, self, and structural stigma. Programs for mental health providers may be especially fruitful for promoting care engagement. Mental health literacy, cultural competence, and family engagement campaigns also mitigate stigma's adverse impact on care seeking. Policy change is essential to overcome the structural stigma that undermines government agendas meant to promote mental health care. Implications for expanding the research program on the connection between stigma and care seeking are discussed.

17.
Psychiatr Serv ; 64(6): 541-6, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23450326

RESUMEN

OBJECTIVE: This study evaluated the feasibility, acceptability, and helpfulness of implementation of multifamily group treatment for traumatic brain injury (TBI) among veterans who sustained a TBI during the wars in Iraq and Afghanistan and their families or caregivers. METHODS: Veterans and their family members who participated in an open clinical trial (August 2010-March 2011) of multifamily psychoeducation for TBI at two Veterans Affairs medical centers were invited to one of three focus groups. Participants were asked about problems experienced before and during the intervention, aspects of treatment that were helpful, and improvements that would facilitate effective implementation of multifamily group treatment for TBI. Postintervention focus group transcripts were analyzed by utilizing qualitative content analysis. RESULTS: Participants included eight veterans with TBI and eight family members. Five themes emerged: exploring common struggles and reducing isolation, building skills to cope with TBI and related problems, restoring relationships through communication and understanding, increasing understanding of the interconnection between TBI and posttraumatic stress disorder, and improving the multifamily group experience and increasing treatment engagement of veterans and families. Veterans and family members found multifamily group treatment for TBI highly acceptable and offered recommendations to improve and increase access to the program. CONCLUSIONS: The results supported the feasibility and acceptability of multifamily group treatment for TBI. Specific recommendations to improve this psychoeducational intervention and its implementation are offered.


Asunto(s)
Lesiones Encefálicas/terapia , Terapia Familiar/métodos , Familia/psicología , Grupos Focales/métodos , Veteranos/psicología , Adulto , Campaña Afgana 2001- , Cuidadores/psicología , Ensayos Clínicos como Asunto/psicología , Estudios de Factibilidad , Femenino , Humanos , Guerra de Irak 2003-2011 , Masculino , Persona de Mediana Edad , Resultado del Tratamiento , Estados Unidos , United States Department of Veterans Affairs
18.
Psychiatr Serv ; 64(6): 534-40, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23450320

RESUMEN

OBJECTIVE: This study evaluated the initial efficacy and feasibility of implementing multifamily group treatment for veterans with traumatic brain injury (TBI). METHODS: Veterans at two Veterans Affairs medical centers were prescreened by their providers for participation in an open trial of multifamily group treatment for TBI. Enrollment was limited to consenting veterans with a clinical diagnosis of TBI sustained during the Operation Enduring Freedom-Operation Iraqi Freedom era, a family member or partner consenting to participate, and a score ≥20 on the Mini-Mental State Examination. The nine-month (April 2010-March 2011) trial consisted of individual family sessions, an educational workshop, and bimonthly multifamily problem-solving sessions. Interpersonal functioning and symptomatic distress among veterans and family burden, empowerment, and symptomatic distress among families were assessed before and after treatment. RESULTS: Providers referred 34 (58%) of 59 veterans screened for the study; of those, 14 (41%) met criteria and consented to participate, and 11 (32%) completed the study. Severity of TBI, insufficient knowledge about the benefits of family involvement, and access problems influenced decisions to exclude veterans or refuse to participate. Treatment was associated with decreased veteran anger expression (p≤.01) and increased social support and occupational activity (p≤.05), with effect sizes ranging from .6 to 1.0. Caregivers reported decreased burden (p≤.05) and increased empowerment (p≤.01). CONCLUSIONS: The results supported implementation of a randomized controlled trial, building in education at the provider and family level.


Asunto(s)
Lesiones Encefálicas/terapia , Terapia Familiar/métodos , Familia/psicología , Veteranos/psicología , Adulto , Campaña Afgana 2001- , Lesiones Encefálicas/etiología , Lesiones Encefálicas/psicología , Estudios de Factibilidad , Femenino , Humanos , Guerra de Irak 2003-2011 , Masculino , Persona de Mediana Edad , Proyectos Piloto , Resultado del Tratamiento , Estados Unidos , United States Department of Veterans Affairs
19.
Psychol Serv ; 9(4): 349-60, 2012 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-22731838

RESUMEN

The Department of Veterans Affairs (VA) health care system's leadership has endorsed family involvement in veterans' mental health care as an important component of treatment. Both veterans and families describe family participation as highly desirable, and research has documented that having healthy social support is a strong protective factor for posttraumatic stress disorder (PTSD). Family psychoeducation has been shown to be effective in preventing relapse among severely mentally ill, and preliminary evidence suggests that family interventions for PTSD may improve veteran and family outcomes. The multifamily group (MFG) treatment model incorporates psychoeducation, communication training, and problem-solving skill building, and it increases social support through its group format. This article describes the rationale for further adaptation of the MFG model for PTSD, and it reviews issues related to its implementation as a promising adjunctive treatment as part of the continuum of PTSD services available in VA.


Asunto(s)
Campaña Afgana 2001- , Trastornos de Combate/terapia , Terapia Familiar/métodos , Guerra de Irak 2003-2011 , Psicoterapia de Grupo/métodos , Trastornos por Estrés Postraumático/terapia , Veteranos/psicología , Lesiones Encefálicas/diagnóstico , Lesiones Encefálicas/psicología , Lesiones Encefálicas/terapia , Cuidadores/educación , Cuidadores/psicología , Trastornos de Combate/diagnóstico , Trastornos de Combate/psicología , Terapia Combinada , Comunicación , Comorbilidad , Costo de Enfermedad , Hospitales de Veteranos , Humanos , Solución de Problemas , Apoyo Social , Traumatismos de la Médula Espinal/diagnóstico , Traumatismos de la Médula Espinal/psicología , Traumatismos de la Médula Espinal/terapia , Trastornos por Estrés Postraumático/diagnóstico , Trastornos por Estrés Postraumático/psicología , Resultado del Tratamiento
20.
Psychiatr Serv ; 62(12): 1456-62, 2011 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-22193793

RESUMEN

OBJECTIVE: This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness. METHODS: A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing. RESULTS: Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031). CONCLUSIONS: Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire


Asunto(s)
Cuidadores/psicología , Salud de la Familia , Familia/psicología , Educación en Salud/métodos , Trastornos Mentales/psicología , Grupo Paritario , Estigma Social , Adaptación Psicológica , Adulto , Confidencialidad/psicología , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Análisis de Intención de Tratar , Modelos Lineales , Masculino , Persona de Mediana Edad , Evaluación de Programas y Proyectos de Salud , Autoimagen , Vergüenza , Aislamiento Social/psicología , Resultado del Tratamiento , Servicios Urbanos de Salud , Grabación de Cinta de Video
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