The experience of albinism in France: a qualitative study on dyads of parents and their adult child with albinism.

BACKGROUND: To date, almost no research on the psychosocial implications of albinism has been conducted in France and an exploration of albinism-related experiences could be beneficial, in order to better understand this condition. The aim of this study was to examine how French people with albinism and their parents live with and adapt to this condition in all the areas of their lives. METHODS: Semi-structured phone interviews were conducted with 9 parent-child dyads, each participating separately. Participants were recruited by convenience sampling, thanks to the combined efforts of a patient association (Genespoir) and professionals from the partner medical referral centers involved in the project. Dyads in which the individual with albinism had any comorbidity were excluded. The interviews were then transcribed and subjected to in-depth thematic analysis. Two codebooks were constructed in a mirrored process: one for people with albinism; the other for their parents. They were finally merged at the end of the coding step. RESULTS: Four main categories were identified: personal perceptions and social representations of albinism, difficulties and obstacles encountered by people with albinism, resources and facilitators, and the importance of parent-child functioning. The results indicated that experiences of stigmatization during childhood and adolescence are common and that people with albinism face challenges in adapting to certain obstacles related to their visual impairments (VI) (e.g., inability to drive a car; eye strain...). Parents emerged as one, if not as the main, source of support for people with albinism throughout their development. Although external support systems exist to assist them in various aspects of their lives, some of them primarily rely on their own personal resources to cope. CONCLUSIONS: This research highlights the importance of a systemic and transdisciplinary approach to make sure families receive the support that best meets their needs.

Völkerpsychologie as a field science: José Miguel de Barandiarán and Basque ethnology.

José Miguel de Barandiarán considered the central figure of Basque anthropology, played a prominent role in the Basque people's cultural rescue (material and spiritual). His dual status as an ethnologist and priest prepared him to study collective mentalities and rural societies. However, the scientific approach of the Völkerpsychologie (roughly translated as ethnic psychology), as proposed by Wilhelm Wundt, greatly influenced him and aroused broad interests of ethnological and sociological-religious concerns. This essay examines the scope and depth of Wundt's influence on Barandiarán, and suggests that, by combining the techniques of folklore with those of ethnography, Barandiarán stamped Basque anthropology with a unique defining quality in Europe.

Comparing stigma between French people experiencing schizophrenia versus bipolar disorders.

BACKGROUND: Among the multiple challenges that people experiencing mental illness in general, and schizophrenia or bipolar disorders in particular, have to face, stigma appears to be one of the most difficult to tackle. In France, the body of research about stigma regarding people experiencing schizophrenia or bipolar disorders is growing, but not as much as in other western countries. AIMS: In this context, our study aims to explore and compare stigma in French people experiencing schizophrenia or bipolar disorders, along with their respective mental healthcare system experience, in order to better address them within public health policies. METHODS: 20 French mental health service users experiencing schizophrenia and 20 experiencing bipolar disorders answered the Stigma Scale, which assesses three dimensions of stigma (discrimination, difficulties of divulgation and lack of positive aspects). A semi-structured interview was used to collect information about the experience of the mental healthcare system (level of information, access to diagnosis, treatment, access to psychoeducation, etc.). RESULTS: People experiencing schizophrenia and people experiencing bipolar disorders are different populations in terms of social impairment. However, they share a comparable negative experience of the mental healthcare system and a comparable level of information about their illness, to the exception of diagnosis divulgation, as people experiencing bipolar disorders have a better access to their diagnosis. People experiencing schizophrenia perceive a higher actual discrimination than people experiencing bipolar disorders. CONCLUSIONS: Public health policies should take into account the strong perception of actual discrimination of people experiencing schizophrenia, with capitalizing on what seems beneficial for people experiencing bipolar disorders.

InterFaces: On the relationality of vision, face and race in practices of identification. A multimodal intervention.

This article problematizes vision in practices of identification. It draws on the metaphor of the 'interface' to emphasize that vision emerges 'in between' eyes, faces, bodies, objects and ideas of belonging and otherness. As such, vision can be a material and political technology that enacts certain people as racial others. To attend to the materiality and politics of vision and its messy relationship with race, I bring together three European stories in which faces are drawn, seen or identified, while race hides or surfaces in intriguing ways. Through these stories we learn that race is saturated with affect and is recalled in objects and bodies. In addition, this article offers a novel methodological approach. It employs the eyes of the reader not only to read but also to watch. Vision itself becomes a technology, this time not to produce or reinforce, but to disturb and perhaps even undo ideas of racial otherness. Through the use of experimental montage, I attend to the complexities and incongruities of seeing faces and race without settling on a single narrative. I actively engage the eyes of the viewer to argue that vision is always relational and partial and therefore, it can also be harnessed to undo racial otherness by fragmenting, multiplying and affecting.

Within- and between-group heterogeneity in cultural models of emotion among people of European, Asian, and Latino heritage in the United States.

Research on cultural variation in emotion values and beliefs has usually explained this variation in terms of individualism and collectivism, typically comparing European American against East Asian cultural contexts. This study examined emotion model variability across as well as within cultural contexts in a large sample of young adults of Latino heritage along with people of European and East Asian heritage. Using latent class analysis, we characterized and predicted endorsement of emotion models, distinguishing emotion ideals (the emotions one desires) from beliefs about injunctive norms for emotion (the emotions one believes are appropriate). Students from three universities in different regions of the United States (N = 1,618; 490 of European heritage, 463 of Asian heritage, 665 of Latino heritage) provided data on the desirability and appropriateness of experiencing 19 specific emotions in daily life, as well as their U.S. cultural orientation and sociodemographic characteristics. Four distinct classes/models of emotion desirability and four classes/models of emotion appropriateness emerged. Latent class regression demonstrated that endorsement of emotion models was systematically related to heritage group membership and mainstream cultural orientation. Findings suggest meaningful within-group heterogeneity in emotion models and highlight the ways in which emotion models among people of Latino heritage are both similar to and distinct from models among people of European and Asian heritage. By developing a more nuanced understanding of between- and within-group variation in emotion models and highlighting the Latin American form of collectivism as in need of further research, this study advances cultural psychology, affective science, and their integration. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

Is there no beauty in sexually dimorphic eyes? Facial attractiveness and White Europeans ocular morphology-Brief communication.

The link between human ocular morphology and attractiveness, especially in the context of its potential adaptive function, is an underexplored area of research. In our study, we examined the association between facial attractiveness and three sexually dimorphic measures of ocular morphology in White Europeans: the sclera size index, width-to-height ratio, and relative iris luminance. Sixty participants (30 women) assessed the attractiveness of the opposite-sex photographs of 50 men and 50 women. Our results show that in both men and women, none of the three measures was linked to the opposite sex ratings of facial attractiveness. We conclude that those ocular morphology measures may play a limited role in human mate preferences.

Caregiver experiences of racism and child mental health outcomes: cross-sectional analysis from Aotearoa New Zealand.

AIMS: This study aimed to estimate the prevalence of vicarious racism experienced by children (0-14 years) in Aotearoa New Zealand and investigate the association between vicarious racism and diagnosed child mental health conditions. METHODS: Adult and child 2016/2017 New Zealand Health Survey data were merged to create child-caregiver dyads. Multivariable logistic regression models were used to investigate the association between the caregiver experiences of racism (exposure) and diagnosed child mental health conditions (outcome), adjusting for confounders and exploring potential pathway variables. RESULTS: Looking at 2,989 dyads, the prevalence of "any" vicarious racism was higher for Maori (28.1%; 95% CI 24.2-31.9), Pacific (23.2%; 95% CI 17.9-28.5) and Asian (29%; 95% CI 23.6-34.5) children compared to European/Other children (12.5%; 95% CI 10.2-14.8). A statistically significant association was identified between >2 reports of vicarious racism and the outcome (OR= 2.53, 95% 1.18-5.43). Adding caregiver psychological distress reduced this association (OR= 1.92, 95% 0.91-4.08). CONCLUSIONS: Children in Maori, Pacific and Asian ethnicity groupings experience higher exposure to vicarious racism than those in the European/Other grouping. Multiple experiences of vicarious racism are associated with increased odds of diagnosed child mental health conditions in a dose-response distribution.

Compliance with recommended preventive behaviours and restrictions for Covid-19: an exploratory analysis of Italians' attitudes.

BACKGROUND AND AIM: as a reaction to the COVID-19 pandemic, countries all over the world have undertaken wide-scale measures to prevent and limit the spread of the virus. Suggested preventative measures mainly included "lockdown", social distancing, wearing facemasks, and vaccinations. The success of these measures was widely dependent on the cooperation of citizens. However, people reacted differently to the several types of restrictions and recommendations. Even if the majority followed the rules, others ignored them. This study aims to investigate the reasons for the compliance or violation of the rules developed to fight against the COVID-19 pandemic in Italy. METHODS: to answer the research question, the analysis of two different surveys conducted on a representative sample of Italians (N=2000) were conducted and analysed through descriptive statistics. RESULTS: the data collection agreed with published literature. Compliance with rules during emergencies followed diligence and altruistic patterns. Fear of sanctions did not seem to work in relation to rules compliance during emergency situations. The lack of clarity of regulations in terms of complexity or constant changes led to non-compliance even intervening as a neutralization technique. CONCLUSIONS: government's fear-based interventions did not seem to work since Italians tended to adhere to the rules primarily out of respect for legitimate authority. Future research should focus more on the topic of trust in institutions in emergency situations with the aim of highlighting the key points for successful governance, also in terms of rules compliance.