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1.
J Intellect Disabil ; : 17446295241259100, 2024 May 31.
Artigo em Inglês | MEDLINE | ID: mdl-38821559

RESUMO

Families cannot easily identify and cope with the changing health problems and needs of children transitioning into adulthood. This pilot randomized controlled study aims to improve the family's quality of life and reduce mothers' perceived stress levels by implementing an educational program (Transition to Adulthood Training Program - TATP). A total of 33 mothers of children with intellectual disabilities were randomly assigned to the groups. Data were collected using the Personal Information Form, Beach Center Family Quality of Life (BCFQOL), and Perceived Stress Scale. The intervention group showed a significant increase in the BCFQOL mean score rather than the control group (p<.001). There was a significant decrease in the perceived stress scores of the mothers in the intervention group after the TATP training sessions (p<0.05). The TATP intervention not only increased the quality of family life for these mothers but also led to a reduction in their perceived stress levels.

2.
Eur J Cancer Care (Engl) ; 31(6): e13703, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-36131608

RESUMO

OBJECTIVE: The purpose of this study was to describe factors affecting the place of death of children with cancer at the end of life. METHODS: The descriptive phenomenological approach was used. Eighteen mothers who lost their children to cancer participated in in-depth interviews. Data were analysed using MAXQDA software version. Codes and categories were developed inductively from participants' narratives. RESULTS: The factors affecting the place of death of children were categorised into two main themes: (1) desires and (2) conditions. Most of the mothers reported that their deceased children wanted to be with their families at the end of life and they wanted to go home. The conditions related to health services were defined as the barriers to the death of their children in the places of death preferred by the mothers. CONCLUSION: The desire to be close to the child was the main factor affecting the parents' decisions. The findings revealed the prevailing circumstances in the death place decision beyond parental desires. These were the child's health conditions, physical conditions of hospitals, and the lack of home care and paediatric palliative care services, which were factors related to the system, and the lack of other options for parents.


Assuntos
Neoplasias , Pais , Criança , Humanos , Turquia , Pesquisa Qualitativa , Neoplasias/terapia , Morte
3.
Eur J Cancer Care (Engl) ; 29(6): e13310, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32881155

RESUMO

OBJECTIVE: This is a descriptive, cross-sectional and observational study that determines the factors affecting the knowledge levels of oncology nurses for skin cancer and sun protection. MATERIALS & METHODS: This study was performed on the members of the Turkish Oncology Nursing Association and oncology nurses working in hospitals in Turkey between November 2019 and March 2020. Data were collected by using the Nurse Information Form and Skin Cancer and Sun Knowledge (SCSK) scale. For data analysis, average and percentage calculations and multiple linear regression analyses were used. The significance level was set at p < .05. RESULTS: We found those female nurses who were above 40 years of age and having darker skin tone due to excessive sun exposure, with a family history of skin cancer, and educated on skin cancer, performed better on the SCSK scale. We found a statistically significant difference between the mean scores of skin cancer and sun exposure. Using multiple regression analysis, a model was created based on the relationship between variables. In this model, the personality traits of oncology nurses are responsible for higher (91.1%) knowledge levels on skin cancer and sun exposure. CONCLUSION: In conclusion, it is important to consider factors that will influence an individual's behaviour while developing skin cancer and sun protection programmes.


Assuntos
Enfermeiras e Enfermeiros , Neoplasias Cutâneas , Queimadura Solar , Estudos Transversais , Feminino , Comportamentos Relacionados com a Saúde , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Neoplasias Cutâneas/prevenção & controle , Queimadura Solar/prevenção & controle , Luz Solar/efeitos adversos , Protetores Solares , Inquéritos e Questionários
4.
Eur J Oncol Nurs ; 68: 102466, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38101245

RESUMO

PURPOSE: Despite the numerous benefits of effective communication between patients, families, and healthcare professionals, there are still substantial barriers and communication challenges. This study investigated the experiences of nurses and doctors working in different pediatric hematology-oncology units in Turkey communicating with children and their parents about end-of-life issues. METHOD: This qualitative study was conducted with twenty-four physicians and nurses. A descriptive phenomenological approach was used. Data were analyzed using Braun and Clarke's six-step reflexive thematic analysis. The MAXQDA software was used to facilitate data management. RESULTS: The findings revealed three main themes describing end-of-life communication experiences of physicians and nurses: Avoiding communication with a dying child, Everyone knows but nobody talks, and Complicating aspects of the setting. CONCLUSIONS: Communication with dying children and their families is essential. However, multiple barriers remain for healthcare providers to do so. That issue burdens the child and their family more during the end-of-life, which is already a challenging experience to handle. Healthcare professionals need urgent training in communication with the dying children and their families.


Assuntos
Neoplasias , Médicos , Assistência Terminal , Criança , Humanos , Tabu , Comunicação , Pesquisa Qualitativa , Morte
5.
J Palliat Med ; 25(8): 1243-1248, 2022 08.
Artigo em Inglês | MEDLINE | ID: mdl-35442772

RESUMO

Background: Cancer incidence in the world is predicted to increase in the next decade. While progress has been in diagnosis and treatment, much still remains to be done to improve cancer pain therapy, mainly in underserved communities in low-income countries. Objective: To determine knowledge, beliefs, and barriers regarding pain management in both high- and low-income countries (according to the WHO classification); and to learn about ways to improve the current state of affairs. Design: Descriptive survey. Setting/Subjects: Fifty-six countries worldwide; convenience sample of 1639 consisted of 36.8% physicians; 45.1% nurses, and 4.5% pharmacists employed in varied settings. Results: Improved pain management services are key elements. Top barriers include religion factors, lack of appropriate education and training at all levels, nonadherence to guidelines, patients' reluctance to report on pains, over regulation associated with prescribing and access to opioid analgesics, fear of addiction to opioids, and lack of discussions around prognosis and treatment planning. Conclusion: The majority of patients with cancer in low-income countries are undertreated for their pain. Promoting cancer pain accredited program of training and education on pain management for physicians and nurses is crucial, as well as advocating policymakers and the public at large.


Assuntos
Dor do Câncer , Neoplasias , Analgésicos Opioides/uso terapêutico , Dor do Câncer/terapia , Humanos , Neoplasias/complicações , Neoplasias/terapia , Dor/etiologia , Manejo da Dor , Padrões de Prática Médica
6.
Florence Nightingale J Nurs ; 29(3): 334-341, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-35110172

RESUMO

AIM: The aim of this study is to define the plans for professional work in the field of nursing, of nursing students in their senior year of post-graduation studies, and the factors affecting them. METHOD: This descriptive study included 2818 senior nursing students from 27 schools of nursing from different geographical regions of Turkey. The Questionnaire for Career Planning and Affecting Factors was used to collect the data. RESULTS: Most of the students (59.2%) see themselves as nurses in the next five years, and 31.7% of them see themselves as academicians in the next ten years. The rate of students who wish to work in a non-nursing profession within the next five years is 2.3%. Geriatric services were the least preferred. CONCLUSION: Most students stated that they wanted to work as a nurse. The elder-care centers should be made attractive options for new graduate nurses to choose to work there.

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