1.
J Med Pract Manage
; 32(6): 413-416, 2017.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30637410
RESUMO
Value in healthcare must focus on accessibility, quality, and affordability. This article describes how a healthcare team provides value by meeting the needs of a rare disease patient and underscores the importance of a chronic multiorgan rare disease home. A nurse practitioner can ensure that barriers to evaluation are removed and communication is prioritized in order to provide accessible and affordable care to a patient with rare disease without jeopardizing quality of care.