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1.
Ann Hematol ; 97(7): 1283-1292, 2018 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-29525897

RESUMO

Due to fewer cancer services in rural locations, rural survivors may have unique unmet needs compared to urban survivors. This study compared among rural and urban haematological cancer survivors the most common "high/very high" unmet supportive care needs and the unmet need scores for five domains (information, financial concerns, access and continuity of care, relationships and emotional health). Survivors' socio-demographics, rurality, cancer history and psychological factors associated with each unmet need domain were also explored. A total of 1511 haematological cancer survivors were recruited from five Australian state cancer registries and 1417 (1145 urban, 272 rural) allowed extraction of their residential postcode from registry records. A questionnaire that contained the Survivor Unmet Needs Survey was mailed to survivors. Dealing with feeling tired was the most common "high/very high" unmet need for rural (15.2%) and urban (15.5%) survivors. The emotional health domain had the highest mean unmet need score for rural and urban survivors. Rurality was associated with a decreased unmet emotional health domain score whereas travelling for more than 1 h to treatment was associated with increased unmet financial concerns and unmet access and continuity of care. Depression, anxiety and stress were associated with increased unmet need scores for all five domains. Unmet need domain scores generally did not differ by rurality. Travelling for more than 1 h to treatment was associated with increased unmet need scores on two domains. Telemedicine and increased financial assistance with travel and accommodation may help those travelling long distances for treatment.


Assuntos
Necessidades e Demandas de Serviços de Saúde , Neoplasias Hematológicas , População Rural , Sobreviventes , População Urbana , Adolescente , Adulto , Assistência ao Convalescente/economia , Assistência ao Convalescente/psicologia , Idoso , Austrália , Continuidade da Assistência ao Paciente , Emoções , Fadiga/etiologia , Fadiga/terapia , Feminino , Acessibilidade aos Serviços de Saúde , Humanos , Comportamento de Busca de Informação , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Fatores Socioeconômicos , Sobreviventes/psicologia , Telemedicina , Viagem , Adulto Jovem
2.
Psychooncology ; 26(11): 1952-1958, 2017 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-28253431

RESUMO

OBJECTIVE: To compare the prevalence of anxiety, depression, and stress among rural and urban support persons of haematological cancer survivors and explore factors associated with having one or more of these outcomes. METHODS: Haematological cancer survivors were identified via 1 of 5 state-based cancer registries and invited to take part in a survey. Those who agreed were asked to pass on a questionnaire package to their support person. Measures included the Depression, Anxiety, and Stress Scale, Support Persons' Unmet Need Survey, and sociodemographic questions. RESULTS: Nine-hundred and eighty-nine (66%) participating survivors had a participating support person. There were no significant differences in the proportion of urban versus rural support persons who reported elevated levels of depression (21% vs 23%), anxiety (16% vs 17%), or stress (16% vs 20%), P > .05. Odds of reporting at least 1 indicator of psychological morbidity increased by 10% to 17% for each additional high or very high unmet need and by 2% for those who had relocated from their usual place of residence for the survivor to receive treatment and was decreased by 5% to 54% for those support persons who reported that they had no chronic health conditions. CONCLUSIONS: Psychological outcomes for rural and urban support persons are similar. Those who have poor health, have had to relocate, and who have multiple unmet needs are particularly vulnerable to poor psychological outcomes. These factors should be assessed to enable early intervention for those at risk of poor outcomes.


Assuntos
Ansiedade/epidemiologia , Sobreviventes de Câncer/psicologia , Cuidadores/psicologia , Depressão/epidemiologia , População Rural , Apoio Social , População Urbana , Adulto , Idoso , Ansiedade/psicologia , Austrália/epidemiologia , Depressão/psicologia , Feminino , Neoplasias Hematológicas/etnologia , Neoplasias Hematológicas/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Prevalência , Grupos Raciais/psicologia , Características de Residência , Inquéritos e Questionários , Adulto Jovem
3.
Support Care Cancer ; 24(10): 4413-22, 2016 10.
Artigo em Inglês | MEDLINE | ID: mdl-27245984

RESUMO

PURPOSE: To explore outcomes of psychological distress, including anxiety, depression and stress, amongst adult haematological cancer survivors, with a specific focus on potential differences between rural and urban survivors. METHODS: One thousand four hundred fourteen urban and rural survivors were recruited from five Australian population-based cancer registries and completed a self-report pen-and-paper survey on their well-being, including the Depression Anxiety and Stress Scale 21-item version. RESULTS: A quarter of survivors were identified as reporting above normal levels of anxiety and depression, respectively, and almost one fifth (17 %) reported above normal levels of stress. There were no statistically significant differences in the percentage of rural and urban survivors reporting above normal levels of anxiety, depression, or stress. Survivors who had experienced financial burden due to their cancer or were of middle age had higher odds of reporting multiple domains of psychological distress, compared to their counterparts. CONCLUSIONS: Haematological cancer survivors diagnosed during middle age or who experience increased financial burden as a result of their diagnosis may require additional support and care with regards to psychological distress.


Assuntos
Neoplasias Hematológicas/psicologia , Estresse Psicológico/psicologia , Adolescente , Adulto , Idoso , Feminino , Neoplasias Hematológicas/mortalidade , Humanos , Masculino , Pessoa de Meia-Idade , Prevalência , Inquéritos e Questionários , Sobreviventes/psicologia , Adulto Jovem
4.
Prev Med ; 81: 243-50, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-26400639

RESUMO

OBJECTIVE: To examine the impact of the new Canadian tobacco package warning labels with a quitline toll-free phone number for seven provincial quitlines, focusing on treatment reach and reach equity in selected vulnerable groups. METHODS: A quasi-experimental design assessed changes in new incoming caller characteristics, treatment reach for selected vulnerable sub-populations and the extent to which this reach is equitable, before and after the introduction of the labels in June, 2012. Administrative call data on smokers were collected at intake. Pre- and post-label treatment reach and reach equity differences were analysed by comparing the natural logarithms of the reach and reach equity statistics. RESULTS: During the six months following the introduction of the new warning labels, 86.4% of incoming new callers indicated seeing the quitline number on the labels. Treatment reach for the six-month period significantly improved compared to the same six-month period the year before from .042% to .114% (p<.0001) and reach equity significantly improved for young males (p<.0001) and those with high school education or less (p=.004). CONCLUSIONS: The introduction of the new tobacco warning labels with a quitline toll-free number in Canada was associated with an increase in treatment reach. The toll-free number on tobacco warning labels aided in reducing tobacco related inequalities, such as improved reach equity for young males and those with high school or less education.


Assuntos
Linhas Diretas , Rotulagem de Produtos/legislação & jurisprudência , Abandono do Hábito de Fumar/estatística & dados numéricos , Produtos do Tabaco , Adolescente , Adulto , Canadá , Escolaridade , Humanos , Masculino , Pessoa de Meia-Idade , Fatores Sexuais , Fatores Socioeconômicos , Adulto Jovem
5.
Qual Life Res ; 24(10): 2375-84, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25814473

RESUMO

PURPOSE: If measurement invariance (MI) is demonstrated for a scale completed by respondents from two different language groups, it means that the scale measures the same construct in the same way in both groups. We assessed MI of the French- and English-language versions of the five Health Education Impact Questionnaire (heiQ) empowerment scales validated for the cancer setting. METHODS: Data came from two cross-sectional studies of Canadian cancer survivors (704 English, 520 French). Single-group confirmatory factor analysis (CFA) was used to test whether the hypothesized factor structure of the French-language heiQ empowerment scales fit the data. Multi-group CFAs were conducted to assess different levels of MI conditions (configural, metric, scalar, strict, as well as MI of factor variances, covariances, and latent means) of the French- and English-language heiQ empowerment scales. RESULTS: The correlated five-factor model showed good fit in both language groups (goodness-of-fit indices: CFI ≥ .97; RMSEA ≤ .07). Goodness-of-fit indices and tests of differences in fit between models supported MI of the five-factor model across the two language groups (∆CFI ≤ -.010 combined with ∆RMSEA ≤ .015). CONCLUSIONS: The French- and English-language heiQ empowerment scales measure the same five dimensions of empowerment in the same way across both language groups. Thus, any observed similarities or differences between French- and English-speaking respondents completing these scales are valid and reflect similarities or differences in empowerment across language groups, not measurement artifact. Consequently, heiQ empowerment data from English- and French-speaking respondents can be directly pooled or contrasted in data analyses.


Assuntos
Educação em Saúde , Neoplasias/diagnóstico , Inquéritos e Questionários , Adolescente , Adulto , Idoso , Canadá , Estudos Transversais , Feminino , Humanos , Idioma , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Sobreviventes , Adulto Jovem
6.
Cancer ; 120(20): 3219-27, 2014 Oct 15.
Artigo em Inglês | MEDLINE | ID: mdl-24990705

RESUMO

BACKGROUND: Community-based cancer organizations provide services to support patients. An anticipated benefit of these services is patient empowerment. However, this outcome has not been evaluated because of the lack of validated health-related empowerment questionnaires in the cancer context. In this validation study, the authors assessed the extent to which 16 indicators used by the Canadian Cancer Society (CCS) and the Cancer Council Victoria, Australia (CCV) to evaluate their services were associated with health-related empowerment. METHODS: Cancer patients/survivors who were diagnosed < 3 years earlier and who used CCS programs completed a questionnaire that included the 16 CCS-CCV indicators and 5 scales from the Health Education Impact Questionnaire (heiQ) measuring key dimensions of empowerment. To determine whether the CCS-CCV indicators captured empowerment, differences in heiQ scores were compared between 2 groups: those with higher levels of agreement (agreeing or agreeing strongly) with an indicator and those with lower levels of agreement (agreeing slightly or disagreeing to any degree). RESULTS: Participation was 72% (207 of 289 eligible CCS users). Compared with participants who had lower levels of agreement on CCS-CCV indicators, those who had higher levels of agreement were more likely to report higher levels of empowerment on the different heiQ scales. For 15 of 16 indicators, these differences were significant (Wilcoxon rank-sum test; P < .10) on ≥ 1 of 5 heiQ scales and for 10 of 16 indicators on ≥ 3 of 5 heiQ scales. Two indicators were associated significantly with all 5 heiQ scales (cope better and feel more in control). CONCLUSIONS: Using CCS-CCV indicators to evaluate community-based cancer organizations' services will help determine whether these services are reaching one of their important goals: namely empowering patients.


Assuntos
Neoplasias/psicologia , Neoplasias/terapia , Cuidados Paliativos/métodos , Medicina Paliativa/organização & administração , Poder Psicológico , Austrália , Feminino , Humanos , Masculino , Avaliação de Resultados em Cuidados de Saúde , Cuidados Paliativos/normas , Medicina Paliativa/normas , Inquéritos e Questionários
7.
Cancer ; 120(20): 3228-36, 2014 Oct 15.
Artigo em Inglês | MEDLINE | ID: mdl-24988944

RESUMO

BACKGROUND: Empowerment refers to an individual's feelings of being able to manage the challenges of the cancer experience and of having a sense of control over one's life. However, empowerment questionnaires that have been validated for the cancer setting are lacking. The objective of this study was to validate scales from the Health Education Impact Questionnaire (heiQ), which assesses the effects of health education programs among individuals with chronic conditions. The heiQ scales Social integration and support, Health service navigation, Constructive attitudes and approaches, Skill and technique acquisition, and Emotional distress were identified as key dimensions of empowerment for the cancer context. METHODS: Adults who were diagnosed with cancer < 3 years earlier were recruited from a population-based cancer registry and from the Canadian Cancer Society's information and peer-support programs. The 731 participants completed a mailed questionnaire, which included the heiQ scales, related constructs, and demographics. Reliability was assessed using Cronbach α values, and validity was determined using confirmatory factor analysis and scale correlations with related constructs (self-efficacy, intrusive thoughts about cancer, and mental and physical health). RESULTS: The hypothesized 5-factor model fit the data adequately (chi-square statistic, 528.17; degrees of freedom, 265; root mean square error of approximation, .04; non-normed fit index, .99; comparative fit index, 1.00; standardized root mean residual, .05). Factor loadings were high (23 of 25 were ≥ .70), and the factor correlations indicated separate but related constructs. Cronbach α values ranged from .75 to .90. A priori hypotheses about the correlations between heiQ scales and related constructs all were supported. CONCLUSIONS: The current results support the validity of these 5 heiQ scales as generic measures of health-related empowerment in the cancer setting. These scales could fill an important gap in the measures currently available to evaluate proximal effects of support interventions.


Assuntos
Neoplasias/psicologia , Poder Psicológico , Adolescente , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/epidemiologia , Reprodutibilidade dos Testes , Inquéritos e Questionários , Adulto Jovem
8.
Nicotine Tob Res ; 16(4): 491-5, 2014 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24311698

RESUMO

INTRODUCTION: There is growing concern about population disparities in tobacco-related morbidity and mortality. This paper introduces the reach ratio as a complementary measure to reach for monitoring whether quitline interventions are reaching high risk groups of smokers proportionate to their prevalence in the population. METHODS: Data on smokers were collected at intake by 7 Canadian provincial quitlines from 2007 to 2009 and grouped to identify 4 high risk subgroups: males, young adults, heavy smokers, and those with low education. Provincial data are from the Canadian Tobacco Use Monitoring Survey. Reach ratios (ReRas), defined as the proportion of quitline callers from a subgroup divided by the proportion of the smoking population in the subgroup, and 95% confidence intervals were calculated for the subgroups. A ReRa of 1.0 indicates proportionate representation. RESULTS: ReRas for male smokers and young adults are consistently less than 1.0 across all provinces, indicating that a lower proportion of these high-risk smokers were receiving evidence-based smoking cessation treatment from quitlines. Those with high levels of tobacco addiction and less than high school education have ReRas greater than 1.0, indicating that a greater proportion of these smokers were receiving cessation treatments. CONCLUSION: ReRas complement other measures of reach and provide a standardized estimate of the extent to which subgroups of interest are benefiting from available cessation interventions. This information can help quitline operators, funders, and policymakers determine the need for promotional strategies targeted to high risk subgroups, and allocate resources to meet program and policy objectives.


Assuntos
Linhas Diretas/estatística & dados numéricos , Abandono do Hábito de Fumar/estatística & dados numéricos , Fumar/epidemiologia , Tabagismo/epidemiologia , Adolescente , Adulto , Idoso , Canadá/epidemiologia , Coleta de Dados , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
9.
Support Care Cancer ; 22(4): 1071-9, 2014 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24292016

RESUMO

PURPOSE: The Survivor Unmet Needs Survey (SUNS) is one of the only unmet needs measures that was developed and evaluated utilising a population-based sample of cancer survivors. At 89 items, the current scale is quite burdensome. The current study aimed to develop a valid and reliable short version of this survey. METHODS: A heterogeneous sample of 1,589 cancer survivors, aged 19 years or over at diagnosis, diagnosed with a histologically confirmed cancer in the previous 12 to 60 months, completed the SUNS. Using these data, we employed a combined theoretical and statistical method of reducing the number of items in the SUNS. The shortened survey was examined for construct validity, internal consistency, discriminant validity and floor and ceiling effects. RESULTS: Fifty-nine items were removed. Construct validity closely reflected the original structure of the SUNS. However, all items from the Emotional health and Relationships domains loaded onto one factor. Cronbach's alpha for the final four domains were 0.85 or above, demonstrating strong internal consistency. Intra-class correlations of the three domains from the original survey (Financial concerns, Information and Access and continuity of care) and shortened survey were high (>0.9). Discriminant validity illustrated the short-form SUNS' ability to discriminate between those who had recently received treatment and those who had not. CONCLUSIONS: This study describes the development and psychometric evaluation of the short-form SUNS (SF-SUNS). Future studies should confirm the test-retest reliability and predictive validity of the SF-SUNS utilising large, independent, population-based samples of cancer survivors.


Assuntos
Necessidades e Demandas de Serviços de Saúde , Sobreviventes , Adulto , Idoso , Idoso de 80 Anos ou mais , Emoções , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Inquéritos e Questionários , Sobreviventes/psicologia , Adulto Jovem
10.
Am J Public Health ; 103(2): 362-8, 2013 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-23237165

RESUMO

OBJECTIVES: We identified the most effective mix of school-based policies, programs, and regional environments associated with low school smoking rates in a cohort of Canadian high schools over time. METHODS: We collected a comprehensive set of student, school, and community data from a national cohort of 51 high schools in 2004 and 2007. Hierarchical linear modeling was used to predict school and community characteristics associated with school smoking prevalence. RESULTS: Between 2004 and 2007, smoking prevalence decreased from 13.3% to 10.7% in cohort schools. Predictors of lower school smoking prevalence included both school characteristics related to prevention programming and community characteristics, including higher cigarette prices, a greater proportion of immigrants, higher education levels, and lower median household income. CONCLUSIONS: Effective approaches to reduce adolescent smoking will require interventions that focus on multiple factors. In particular, prevention programming and high pricing for cigarettes sold near schools may contribute to lower school smoking rates, and these factors are amenable to change. A sustained focus on smoking prevention is needed to maintain low levels of adolescent smoking.


Assuntos
Características de Residência/estatística & dados numéricos , Instituições Acadêmicas/estatística & dados numéricos , Fumar/epidemiologia , Adolescente , Adulto , Canadá , Estudos de Coortes , Escolaridade , Emigrantes e Imigrantes/estatística & dados numéricos , Feminino , Política de Saúde , Promoção da Saúde , Humanos , Renda , Estudos Longitudinais , Masculino , Prevalência , Instituições Acadêmicas/tendências , Fumar/tendências , Prevenção do Hábito de Fumar , Produtos do Tabaco/economia , Adulto Jovem
11.
Psychooncology ; 22(9): 2032-8, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23436539

RESUMO

OBJECTIVE: Few population-based studies have assessed the needs of haematological cancer survivors or conducted international comparisons. We aimed to assess and compare the unmet needs of Australian and Canadian haematological cancer survivors. METHODS: Two cross-sectional datasets were analysed. Survivors were recruited from population-based cancer registries and sent a self-report survey containing the Survivors Unmet Needs Survey. Australians were aged 18-80 years at the time of study and diagnosed in the last 3 years. Canadians were diagnosed 1-5 years prior and aged 19 years and over at diagnosis. RESULTS: A total of 268 Australian and 169 Canadian survivors returned a completed survey. 'Dealing with feeling tired' was identified as the highest concern by survivors. Country (LRχ(2)=4.0(1), p=0.045) was associated with survivors reporting a 'high/very high' unmet need with 'worry about earning money,' with Australians reporting marginally nonsignificantly higher odds than Canadians (OR 2.1; 95% CI; 0.99, 4.3). Country was not significantly associated with any other outcome. Having a personal expense in the last month as a result of having cancer, younger age at diagnosis, female sex, vocational or other level education, and consulting a health care professional for cancer treatment or concerns about cancer in the last month were associated with multiple areas of need. CONCLUSIONS: Australian and Canadian haematological cancer survivors were found to experience similar levels of unmet needs. Overall, haematological cancer survivors may require additional assistance in dealing with feeling tired.


Assuntos
Efeitos Psicossociais da Doença , Neoplasias Hematológicas/psicologia , Avaliação das Necessidades , Sobreviventes/psicologia , Adolescente , Adulto , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Ansiedade/etiologia , Ansiedade/psicologia , Austrália , Canadá , Estudos Transversais , Fadiga/etiologia , Feminino , Neoplasias Hematológicas/complicações , Humanos , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Fatores Sexuais , Adulto Jovem
12.
Support Care Cancer ; 19(2): 221-30, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-20099001

RESUMO

PURPOSE: This study aims to develop a psychometrically rigorous instrument to measure the unmet needs of adult cancer survivors who are 1 to 5 years post-cancer diagnosis. "Unmet needs" distinguishes between problems which survivors experience and problems which they desire help in managing. METHODS: The survey was developed from a comprehensive literature review, qualitative analysis of the six most important unmet needs of 71 cancer survivors, review of the domains and items by survivors and experts, cognitive interviews and a pilot test of 100 survivors. A stratified random sample of 550 cancer survivors, selected from a population-based Cancer Registry, completed a mailed survey to establish reliability and validity. RESULTS: The final 89-item Survivors Unmet Needs Survey (SUNS) has high acceptability, item test-retest reliability and internal consistency (Chronbach's alpha 0.990), face, content and construct validity. Five subscales measure Emotional Health needs (33 items, 19.4% of variance), Access and Continuity of Care (22 items, 15.1%), Relationships (15 items, 12.1%), Financial Concerns (11 items, 10.3%) and Information needs (eight items, 8.1% of the variance). CONCLUSIONS: This instrument has strong psychometric properties and is useful for determining the prevalence and predictors of cancer survivors' unmet needs across types of cancer, length of survivorship and socio-demographic characteristics. Use of the SUNS will enable more effective targeting of programmes and services and guide policy and health planning decisions. RELEVANCE: This study is an important step toward evidence-based planning and management of problems which the growing survivor population requires assistance in managing.


Assuntos
Avaliação das Necessidades , Neoplasias/psicologia , Sobreviventes/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Canadá , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria
13.
Can J Public Health ; 100(1): Suppl I27-30, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19263980

RESUMO

The Canadian Cancer Society's Centre for Behavioural Research and Program Evaluation (CBRPE) is a national asset for building pan-Canadian capacity to support intervention studies that guide population-level policies and programs. This paper briefly describes CBRPE's experience in advancing this work in the field of prevention. The aim is to illuminate issues of central importance for advancing the goals of the Population Health Intervention Research Initiative for Canada. According to our experience, success in building the population intervention field will depend heavily on purposeful alignment across organizations to enable integration of research, evaluation, surveillance, policy and practice. CBRPE's capacity development roles include a) a catalytic role in shaping this aligned inter-organizational milieu and b) investing our resources in building tangible assets (teams, indicators, data systems) that contribute relevant capacities within this emerging milieu. Challenges in building capacity in this field are described.


Assuntos
Pesquisa Comportamental , Medicina Baseada em Evidências , Neoplasias/prevenção & controle , Administração em Saúde Pública , Saúde Pública , Parcerias Público-Privadas/organização & administração , Canadá , Pesquisa Participativa Baseada na Comunidade , Tomada de Decisões Gerenciais , Comportamentos Relacionados com a Saúde , Humanos , Comunicação Interdisciplinar , Formulação de Políticas , Pesquisadores , Instituições Filantrópicas de Saúde
14.
J Youth Adolesc ; 38(10): 1374-87, 2009 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-19779813

RESUMO

The purpose of this study was to explore individual- and school-level policy characteristics on student smoking behavior using an ecological perspective. Participants were 24,213 (51% female) Grade 10-11 students from 81 schools in five Canadian provinces. Data were collected using student self-report surveys, written policies collected from schools, interviews with school administrators, and school property observations to assess multiple dimensions of the school tobacco policy. The multi-level modeling results revealed that the school a student attended was associated with his/her smoking behavior. Individual-level variables that were associated with student smoking included lower school connectedness, a greater number of family and friends who smoked, higher perceptions of student smoking prevalence, lower perceptions of student smoking frequency, and stronger perceptions of the school tobacco context. School-level variables associated with student smoking included weaker policy intention indicating prohibition and assistance to overcome tobacco addiction, weaker policy implementation involving strategies for enforcement, and a higher number of students smoking on school property. These findings suggest that the school environment is important to tobacco control strategies, and that various policy dimensions have unique relationships to student smoking. School tobacco policies should be part of a comprehensive approach to adolescent tobacco use.


Assuntos
Comportamento do Adolescente/psicologia , Política Organizacional , Fumar/epidemiologia , Fumar/psicologia , Estudantes/estatística & dados numéricos , Adolescente , Canadá/epidemiologia , Feminino , Humanos , Masculino , Percepção , Instituições Acadêmicas , Meio Social
15.
Psychooncology ; 17(7): 629-40, 2008 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-17973235

RESUMO

BACKGROUND: Studies examining quality of life (QoL) in cancer survivors have relied on instruments specific to the cancer patient population. METHOD: MEDLINE and PsycINFO were systematically searched to identify instruments and papers reporting the psychometric qualities of relevant instruments. Two reviewers undertook data extraction with respect to reliability, validity, predictive validity, responsiveness, acceptability, readability, cross cultural acceptability and feasibility. RESULTS: Forty-two instruments were identified. Most were either measures of general health-related QoL or developed for individuals in active treatment. Nine were developed specifically for cancer survivors. None met the rigorous psychometric standards set by the review. All established acceptable levels of validity, however, only one instrument (Quality of Life-Cancer Survivors) demonstrated adequate test-retest reliability. Acceptability, feasibility and predictive validity remain unexamined. Readability was examined in only two (Cancer Survivors' Unmet needs and Quality of Life in Adult Cancer Survivors (QLACS)). Only two instruments (QLACS and Impact of Cancer) have been developed with a wide range of cancer survivors. Generally, shorter-term cancer survivors (1-5 years) are underrepresented. CONCLUSION: There is a need for a psychometrically credible QoL instrument for cancer survivors who are 1-5 years post diagnosis.


Assuntos
Neoplasias/psicologia , Inventário de Personalidade/estatística & dados numéricos , Qualidade de Vida/psicologia , Inquéritos e Questionários , Sobreviventes/psicologia , Humanos , Avaliação das Necessidades , Psicometria/estatística & dados numéricos , Reprodutibilidade dos Testes
16.
Health Soc Care Community ; 16(1): 64-74, 2008 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-18181816

RESUMO

Policy diffusion is a process whereby political bodies 'learn' policy solutions to public health problems by imitating policy from similar jurisdictions. This suggests that diffusion is a critical element in the policy development process, and that its role must be recognised in any examination of policy development. Yet, to date, no systematic work on the diffusion of smoke-free spaces bylaws has been reported. We examined the diffusion of municipal smoke-free bylaws over a 30-year period in the provinces of Alberta and Ontario, Canada, to begin to address this gap and to determine whether spatial patterns could be identified to help explain the nature of policy development. Bylaw adoption and change were analysed within local, regional, and provincial contexts. Geographical models of hierarchical and expansion diffusion in conjunction with the diffusion of innovations framework conceptually guided the analyses. Study findings contribute to a broader understanding of how and why health policies diffuse across time and place. Policy development can be a powerful mechanism for creating environments that support healthy decisions; hence, an understanding of policy diffusion is critical for those interested in policy interventions aimed at improving population health in any jurisdiction.


Assuntos
Política de Saúde/legislação & jurisprudência , Fumar/legislação & jurisprudência , Alberta , Cidades/legislação & jurisprudência , Humanos , Ontário , Poluição por Fumaça de Tabaco/prevenção & controle
17.
Tob Control ; 16 Suppl 1: i60-4, 2007 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-18048634

RESUMO

OBJECTIVES: To conduct an exploratory, comparative study of the utilisation and effectiveness of tobacco cessation quitlines among aboriginal and non-aboriginal Canadian smokers. SETTING: Population based quitlines that provide free cessation information, advice and counselling to Canadian smokers. SUBJECTS: First time quitline callers, age 18 years of age and over, who called the quitline between August 2001 and December 2005 and who completed the evaluation and provided data on their ethnic status (n = 7082). MAIN MEASURES: Demographic characteristics and tobacco behaviours of participants at intake and follow-up; reasons for calling; actions taken toward quitting, and 6-month follow-up quit rates. RESULTS: 7% of evaluation participants in the time period reported aboriginal origins. Aboriginal participants were younger than non-aboriginals but had similar smoking status and level of addiction at intake. Concern about future health and current health problems were the most common reasons aboriginal participants called. Six months after intake aboriginals and non-aboriginals had taken similar actions with 57% making a 24-hour quit attempt. Quit rates were higher for aboriginals than non-aboriginals, particularly for men. The 6-month prolonged abstinence rate for aboriginal men was 16.7% compared with 7.2% for aboriginal women and 9.4% and 8.3% for non-aboriginal men and women, respectively. CONCLUSIONS: This exploratory analysis showed that even without targeted promotion, aboriginal smokers do call Canadian quitlines, primarily for health related reasons. We also showed that the quitlines are effective at helping them to quit. As a population focused intervention, quitlines can reach a large proportion of smokers in a cost efficient manner. In aboriginal communities where smoking rates exceed 50% and multiple health risks and chronic diseases already exist, eliminating non-ceremonial tobacco use must be a priority. Our results, although exploratory, suggest quitlines can be an effective addition to aboriginal tobacco cessation strategies.


Assuntos
Linhas Diretas/estatística & dados numéricos , Indígenas Norte-Americanos/estatística & dados numéricos , Abandono do Hábito de Fumar/etnologia , Adolescente , Adulto , Canadá/epidemiologia , Aconselhamento/métodos , Feminino , Seguimentos , Humanos , Indígenas Norte-Americanos/psicologia , Masculino , Pessoa de Meia-Idade , Aceitação pelo Paciente de Cuidados de Saúde/etnologia , Satisfação do Paciente , Fumar/etnologia , Abandono do Hábito de Fumar/métodos , Abandono do Hábito de Fumar/estatística & dados numéricos , Prevenção do Hábito de Fumar
18.
Tob Control ; 16 Suppl 1: i16-20, 2007 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-18048624

RESUMO

OBJECTIVES: This paper discusses the development of a minimal dataset (MDS) for tobacco cessation quitlines across North America. The goal was to create a standardised instrument and protocol that would allow for comparisons and pooling of data across quitlines for evaluation and research purposes. Principles of utilisation focused evaluation were followed to achieve consensus across diverse stakeholder groups in two countries. METHODS: The North American Quitline Consortium (NAQC) assembled a working group with representatives from quitline service providers, funders, evaluators and researchers from Canada and the United States. An extensive, iterative consultation process over two years led to consensus on the evaluation domains, indicators and specific items. Descriptive information on quitline service models, data collection protocols and methodological issues were addressed. RESULTS: The resulting minimal dataset (MDS) includes 15 items collected from eligible callers at intake and eight items collected from smokers participating in evaluation. Recommendations for selecting evaluation participants, length of follow-up and repeat callers were developed. Full MDS questions and technical documents are available on the NAQC website. CONCLUSION: Adoption and implementation of the MDS occurred in the majority of North American quitlines by the end of 2006. Key success factors included a focus on utility and feasibility, a commitment to meeting multiple and varied needs, sensitivity to situational factors and investment in working interactively with stakeholders. The creation and implementation of a MDS across two countries is an important "first" in tobacco control which will help speed the creation of practice based evidence and facilitate practice based research.


Assuntos
Linhas Diretas/normas , Garantia da Qualidade dos Cuidados de Saúde/métodos , Abandono do Hábito de Fumar/métodos , Protocolos Clínicos , Aconselhamento/normas , Estudos de Avaliação como Assunto , Humanos , América do Norte , Indicadores de Qualidade em Assistência à Saúde
19.
CMAJ Open ; 4(1): E59-65, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27280115

RESUMO

BACKGROUND: A policy for new pictorial health warning labels on tobacco packaging was introduced by Health Canada in 2012. The labels included, for the first time, a prominently displayed toll-free number for a quit-smoking line. We used data from the Ontario provincial quitline to investigate the call volume and number of new callers receiving treatment in the months before and after the new policy was introduced. METHODS: We used an interrupted time-series analysis to examine trends in the overall call volume and number of new callers receiving treatment (≥ 1 telephone counselling session) through Ontario's quitline (Smokers' Helpline) between January 2010 and December 2013. We analyzed data using Box-Jenkins autoregressive integrated moving-average models; we adjusted the models for a major campaign promoting the quitline, a seasonality (January) effect and tobacco pricing. RESULTS: We found a relative increase of 160% in the average monthly call volume during the 7 months after the introduction of the new labels (870 calls per month at baseline and 1391 additional calls per month on average after the policy change; standard error [SE] 108.94, p < 0.001), and a sustained increase of 43% in subsequent months. We observed a relative increase of 174% in the number of new callers receiving treatment (153 new callers per month at baseline and 267 additional new callers per month after the policy change; SE 40.03, p < 0.001) and a sustained increase of 80% in subsequent months. The effect was significant even after controlling for a major promotion campaign and the January effect. INTERPRETATION: We found a significant increase in the monthly overall call volume and number of new callers receiving treatment per month after the introduction of the new tobacco health warning labels, with a sustained increase in overall calls and new callers beyond the first 7 months. Our findings add to the body of evidence on the benefit of including a toll-free quitline number on tobacco packaging.

20.
Patient Educ Couns ; 55(1): 3-15, 2004 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-15476984

RESUMO

Cancer can be a devastating diagnosis, creating social, emotional, financial and psychological problems. Peer support programs are based on the premise that support from others who have been through a similar experience can help reduce the negative impacts of this disease. While there is strong theoretical rationale for this, empirical evidence that would guide program planning is scarce. We conducted a systematic literature review of evaluation studies published over the last 20 years. Seventeen volunteers delivered peer support programs were reviewed, ranging from needs assessments to randomized controlled trials. The scientific quality was moderate--most lacked a theoretical framework, adequate program descriptions, data on non-participants and validated instruments. Despite these methodological shortcomings, consistent informational, emotional and instrumental benefits were identified. We provide recommendations for practitioners to improve evaluation studies and suggest a research agenda to develop better methods for assessing the contribution of peer support to quality of life.


Assuntos
Neoplasias/psicologia , Grupo Associado , Avaliação de Programas e Projetos de Saúde , Grupos de Autoajuda/organização & administração , Efeitos Psicossociais da Doença , Coleta de Dados/métodos , Coleta de Dados/normas , Humanos , Avaliação das Necessidades , Neoplasias/prevenção & controle , Avaliação de Resultados em Cuidados de Saúde/organização & administração , Avaliação de Programas e Projetos de Saúde/métodos , Avaliação de Programas e Projetos de Saúde/normas , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto , Reprodutibilidade dos Testes , Projetos de Pesquisa/normas , Apoio Social
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