Detalhe da pesquisa
1.
Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study.
BMC Med Ethics
; 24(1): 73, 2023 09 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-37735658
2.
Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.
Genet Med
; 24(3): 610-621, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-34906471
3.
Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.
Hered Cancer Clin Pract
; 20(1): 22, 2022 Jun 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-35689290
4.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Genet Med
; 22(6): 1094-1101, 2020 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32089547
5.
Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.
J Med Ethics
; 2020 Oct 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33023975
6.
Reexamining the categorical exclusion of pediatric participants from controlled human infection trials.
Bioethics
; 34(8): 785-796, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32715497
7.
Researcher Obligations to Participants in Novel COVID-19 Vaccine Research.
Am J Bioeth
; 23(10): 119-120, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-37812093
8.
To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes.
Am J Bioeth
; 22(10): 87-88, 2022 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36170065
9.
Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.
Am J Bioeth
; 22(4): 81-82, 2022 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-35420512
10.
Conjoined Consent: Informed Consent When Donor and Recipient Are Both Research Participants.
Am J Bioeth
; 21(4): 106-107, 2021 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-33825622
11.
Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action.
Am J Bioeth
; 21(4): 98-99, 2021 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-33825623
12.
When Professional Meets Personal: How Should Research Staff Advertise on Social Media for Research Opportunities?
Am J Bioeth
; 21(10): 38-39, 2021 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-34554059
13.
Supporting Community-Academic Research Partnerships: Reflections from the Ground.
Am J Bioeth
; 21(10): 44-45, 2021 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-34554061
14.
Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent.
Am J Bioeth
; 20(10): 82-83, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32945745
15.
Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers.
Am J Bioeth
; 20(10): 90-91, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32945746
16.
Greater Than Minimal Risk, No Direct Benefit - Bridging Drug Trials and Novel Therapy in Pediatric Populations.
Am J Bioeth
; 20(4): 102-103, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32208073
17.
Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?
Am J Bioeth
; 20(4): 111-113, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32208077
18.
Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research.
Am J Bioeth
; 20(4): 8-10, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32208084
19.
Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.
Am J Bioeth
; 20(5): 31-33, 2020 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32364474
20.
Incentives in Pediatric Research in Developing Countries: When Are They Too Much?
Pediatrics
; 151(2)2023 02 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36660851