Detalhe da pesquisa
1.
Acceptance and Commitment Therapy plus usual care for improving quality of life in people with motor neuron disease (COMMEND): a multicentre, parallel, randomised controlled trial in the UK.
Lancet
; 403(10442): 2381-2394, 2024 Jun 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-38735299
2.
End of life decision making when home mechanical ventilation is used to sustain breathing in Motor Neurone Disease: patient and family perspectives.
BMC Palliat Care
; 23(1): 115, 2024 May 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-38698397
3.
Response to "The opinion of French pulmonologists and palliative care physicians on non-invasive ventilation during palliative sedation at end of life: a nationwide survey''.
BMC Palliat Care
; 22(1): 18, 2023 Mar 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36872316
4.
Eye donation in hospice and hospital palliative care settings: perceptions, practice, and service development needs - findings from a national survey.
BMC Palliat Care
; 22(1): 173, 2023 Nov 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-37936148
5.
The potential for eye donation from hospice and palliative care clinical settings in England: a retrospective case note review of deceased patients' records.
Cell Tissue Bank
; 24(2): 341-349, 2023 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-36322205
6.
RealTalk evidence-based communication training resources: development of conversation analysis-based materials to support training in end-of-life-related health and social care conversations.
BMC Med Educ
; 22(1): 637, 2022 Aug 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-35996125
7.
Comparing associations between frailty and mortality in hospitalised older adults with or without COVID-19 infection: a retrospective observational study using electronic health records.
Age Ageing
; 50(2): 307-316, 2021 02 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-32678866
8.
An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.
BMC Palliat Care
; 19(1): 66, 2020 May 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-32393231
9.
Tracheostomy in motor neurone disease.
Pract Neurol
; 19(6): 467-475, 2019 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-31273080
10.
Is it acceptable to video-record palliative care consultations for research and training purposes? A qualitative interview study exploring the views of hospice patients, carers and clinical staff.
Palliat Med
; 31(8): 707-715, 2017 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-28590153
11.
Experiences of hospice inpatient nurses in supporting children before the death of a parent.
Int J Palliat Nurs
; 21(9): 453-9, 2015 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-26412276
12.
Influences on the decision to prescribe or administer anticholinergic drugs to treat death rattle: a focus group study.
Palliat Med
; 27(8): 732-8, 2013 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-23175510
13.
Thinking ahead about medical treatments in advanced illness: a qualitative study of barriers and enablers in end-of-life care planning with patients and families from ethnically diverse backgrounds.
Health Soc Care Deliv Res
; 11(7): 1-135, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-37464868
14.
Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol.
BMJ Open
; 13(3): e071624, 2023 03 13.
Artigo
em Inglês
| MEDLINE | ID: mdl-36914199
15.
The involvement of palliative care with neurology - a comparison of UK, Switzerland and Italy.
Amyotroph Lateral Scler Frontotemporal Degener
; 24(3-4): 256-262, 2023 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-36288469
16.
Measuring disability in amyotrophic lateral sclerosis/motor neuron disease: the WHODAS 2.0-36, WHODAS 2.0-32, and WHODAS 2.0-12.
Amyotroph Lateral Scler Frontotemporal Degener
; 24(1-2): 63-70, 2023 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-35876069
17.
Digital peer-to-peer support programme for informal caregivers of people living with motor neuron disease: study protocol for a multi-centre parallel group, single-blinded (outcome assessor) randomised controlled superiority trial.
Trials
; 24(1): 119, 2023 Feb 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-36805758
18.
Withdrawal of tracheostomy ventilation in motor neurone disease: implementing advance directives.
Pract Neurol
; 17(5): 339-340, 2017 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-28717052
19.
Mechanical ventilation withdrawal in motor neuron disease: an evaluation of practice.
BMJ Support Palliat Care
; 12(e6): e752-e758, 2022 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-32439630
20.
Impact on staff of providing non-invasive advanced respiratory support during the COVID-19 pandemic: a qualitative study in an acute hospital.
BMJ Open
; 12(6): e060674, 2022 06 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35649596