Detalhe da pesquisa
1.
Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research: The PRO Ethics Guidelines.
JAMA
; 327(19): 1910-1919, 2022 05 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-35579638
2.
The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt.
Res Involv Engagem
; 9(1): 98, 2023 Oct 24.
Artigo
em Inglês
| MEDLINE | ID: mdl-37876009
3.
Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson's.
J Patient Rep Outcomes
; 7(1): 40, 2023 04 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-37079119
4.
Patient Experience in Early-Stage Parkinson's Disease: Using a Mixed Methods Analysis to Identify Which Concepts Are Cardinal for Clinical Trial Outcome Assessment.
Neurol Ther
; 11(3): 1319-1340, 2022 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-35778541
5.
'Give Us The Tools!': development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension.
BMJ Open
; 11(6): e046450, 2021 06 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-34193492
6.
A Preliminary Investigation of the Views of People With Parkinson's (With and Without Psychosis) and Caregivers on Participating in Clinical Trials During the Covid-19 Pandemic: An Online Survey.
Front Psychiatry
; 11: 602480, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-33424665
7.
Correction to: The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt.
Res Involv Engagem
; 10(1): 5, 2024 Jan 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-38195529