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1.
JCO Oncol Pract ; 17(2): 102-106, 2021 02.
Artigo em Inglês | MEDLINE | ID: mdl-33417492

RESUMO

PURPOSE: Advance care planning (ACP) is a clinical skill that can be taught. An opportunity exists to teach how to conduct ACP to clinicians not typically engaged in these conversations to increase the likelihood that patients and caregivers engage in ACP. We conducted a prospective study exploring the feasibility of a pharmacist-led ACP intervention. METHODS: We completed a prospective, single-center study from July 2015 to July 2017. We included patients of age ≥ 18 years with incurable cancer referred to the palliative care clinic. A trained pharmacist led an ACP discussion with the patient and selected proxy. We defined feasibility as completion of ≥ 30 pharmacist-led ACP discussions over the study period. Additionally, we defined an informed healthcare proxy as someone who understood three key end-of-life (EOL) treatment preferences: the patient's personal definition of quality of life, desired resuscitation status, and preferred location of death (in or out of the hospital). Patients were followed until the end of the study or death. For those patients who died, the pharmacist contacted the proxy for follow-up and explored satisfaction with the ACP intervention. RESULTS: Thirty-four patients completed the study. All selected proxies completed the intervention and were able to understand the three EOL preferences. At the time of the patient's death (n = 20), proxies reported that 66.6% received their preferred resuscitation status and 72.2% died in their preferred location. Proxy satisfaction with the ACP process was 7.6 ± 2.5 (mean ± SD) on a 11-point Likert scale. CONCLUSION: These findings indicate the potential for pharmacists to lead and engage in ACP in the outpatient setting.


Assuntos
Planejamento Antecipado de Cuidados , Farmacêuticos , Adolescente , Diretivas Antecipadas , Humanos , Estudos Prospectivos , Qualidade de Vida
2.
Semin Oncol Nurs ; 34(3): 227-240, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-30120000

RESUMO

OBJECTIVE: To review effective approaches for non-pain symptom management for cancer patients focusing on treatment of nausea and vomiting, constipation, diarrhea, anorexia/cachexia, fatigue, and dyspnea. DATA SOURCES: Peer-reviewed articles, clinical practice guidelines, professional organization position statements. CONCLUSION: Oncology nurses are key advocates for optimal symptom management. Maximizing palliation of symptoms improves quality of life and prolongs survival. IMPLICATIONS FOR NURSING PRACTICE: To provide an evidence-based approach to symptom management, oncology nurses require a deep understanding of symptom pathophysiology while anticipating side effects, educating patients and caregivers, considering psychosocial/spiritual factors, exploring treatment expectations, and clarifying goals of treatment.


Assuntos
Enfermagem de Cuidados Paliativos na Terminalidade da Vida/organização & administração , Neoplasias/enfermagem , Papel do Profissional de Enfermagem , Enfermagem Oncológica/organização & administração , Manejo da Dor/enfermagem , Cuidados Paliativos/organização & administração , Assistência Integral à Saúde/organização & administração , Humanos , Relações Enfermeiro-Paciente , Qualidade da Assistência à Saúde
3.
J Oncol Pract ; 13(10): e851-e856, 2017 10.
Artigo em Inglês | MEDLINE | ID: mdl-28541788

RESUMO

Oncology guidelines clearly outline evidence-based recommendations for patients with newly diagnosed cancer to help oncologists determine which patients are appropriate for a genetic assessment. Ideally, patients with newly diagnosed cancer, who have personal or family histories suggestive of hereditary cancer predisposition, are referred for genetics work up in the nonurgent setting. However, in some cases, a genetics work up is delayed until the end of life. This is a time of heightened stress and additional obstacles, including discordance between family members regarding the obtainment of genetic information, paying for testing, selecting a surrogate to receive and disperse information in the case of a patient's death, and the use of DNA banking for future evaluation. To meaningfully participate and support patients, family members, and our colleagues facing requests at the end of life for genetic testing, we provide a practical approach and highlight resources to effectively engage in this rising challenge.


Assuntos
Família , Testes Genéticos , Síndromes Neoplásicas Hereditárias/diagnóstico , Assistência Terminal , Humanos , Consentimento Livre e Esclarecido , Síndromes Neoplásicas Hereditárias/genética
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