Detalhe da pesquisa
1.
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Nat Rev Genet
; 21(6): 377-384, 2020 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32251390
2.
Two-eyed seeing: Embracing the power of Indigenous knowledge for a healthy and sustainable Ocean.
PLoS Biol
; 20(10): e3001876, 2022 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36269777
3.
Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.
Proc Natl Acad Sci U S A
; 119(4)2022 01 25.
Artigo
em Inglês
| MEDLINE | ID: mdl-35042810
4.
Ethical, legal, and social issues in the Earth BioGenome Project.
Proc Natl Acad Sci U S A
; 119(4)2022 01 25.
Artigo
em Inglês
| MEDLINE | ID: mdl-35042809
5.
Genomic Research Through an Indigenous Lens: Understanding the Expectations.
Annu Rev Genomics Hum Genet
; 20: 495-517, 2019 08 31.
Artigo
em Inglês
| MEDLINE | ID: mdl-30892943
6.
Creating space for Indigenous perspectives on access and benefit-sharing: Encouraging researcher use of the Local Contexts Notices.
Mol Ecol
; 30(11): 2477-2482, 2021 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33880812
7.
Correction to: Native Hawaiian Views on Biobanking.
J Cancer Educ
; 35(1): 210, 2020 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-31728919
8.
Mapping a route to Indigenous engagement in cancer genomic research.
Lancet Oncol
; 20(6): e327-e335, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-31162106
9.
He Pikinga Waiora: supporting Maori health organisations to respond to pre-diabetes.
Int J Equity Health
; 18(1): 3, 2019 01 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-30612567
10.
Views on clinical trial recruitment, biospecimen collection, and cancer research: population science from landscapes of the Haudenosaunee (People of the Longhouse).
J Cancer Educ
; 33(1): 44-51, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-27392418
11.
Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.
Genet Med
; 19(3): 345-351, 2017 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-27632687
12.
Implementation framework for chronic disease intervention effectiveness in Maori and other indigenous communities.
Global Health
; 13(1): 69, 2017 Sep 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-28870225
13.
Lessons learned in genetic research with Indigenous Australian participants.
Med J Aust
; 212(5): 200-202.e1, 2020 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-32017112
14.
Native Hawaiian views on biobanking.
J Cancer Educ
; 29(3): 570-6, 2014 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-24683042
15.
Indigenous Peoples' Rights in Data: a contribution toward Indigenous Research Sovereignty.
Front Res Metr Anal
; 8: 1173805, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37215248
16.
Indigenous Peoples and research: self-determination in research governance.
Front Res Metr Anal
; 8: 1272318, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-38033627
17.
Benefit sharing: Why inclusive provenance metadata matter.
Front Genet
; 13: 1014044, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36212139
18.
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research.
Front Genet
; 13: 1052620, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36437947
19.
Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes.
Front Genet
; 13: 823309, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35386282
20.
The founding charter of the Omic Biodiversity Observation Network (Omic BON).
Gigascience
; 122022 12 28.
Artigo
em Inglês
| MEDLINE | ID: mdl-37632753