Detalhe da pesquisa
1.
Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.
Am J Med Genet A
; 191(2): 391-399, 2023 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-36341765
2.
Conducting inclusive research in genetics for transgender, gender-diverse, and sex-diverse individuals: Case analyses and recommendations from a clinical genomics study.
J Genet Couns
; 2023 Sep 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-37667436
3.
Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study.
BMC Med Ethics
; 24(1): 73, 2023 09 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-37735658
4.
Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.
Genet Med
; 24(3): 610-621, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-34906471
5.
Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.
Hered Cancer Clin Pract
; 20(1): 22, 2022 Jun 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-35689290
6.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Genet Med
; 22(6): 1094-1101, 2020 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-32089547
7.
Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.
J Med Ethics
; 2020 Oct 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33023975
8.
What Does the Word "Treatable" Mean? Implications for Communication and Decision-Making in Critical Illness.
Crit Care Med
; 47(3): 369-376, 2019 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30585833
9.
The evolving landscape of expanded carrier screening: challenges and opportunities.
Genet Med
; 21(4): 790-797, 2019 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-30245516
10.
"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.
Genet Med
; 21(1): 107-113, 2019 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-29887604
11.
Engaging populations underrepresented in research through novel approaches to consent.
Am J Med Genet C Semin Med Genet
; 178(1): 75-80, 2018 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-29512940
12.
Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results.
Am J Med Genet A
; 176(2): 376-385, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-29250907
13.
Centering Patients' Voices in Artificial IntelligenceâBased Telemedicine.
Am J Public Health
; 113(5): 470-471, 2023 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-36926958
14.
Distinguishing Clinical and Research Risks in Pragmatic Clinical Trials: The Need for Further Stakeholder Engagement.
Am J Bioeth
; 23(8): 39-42, 2023 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-37450523
15.
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Am J Bioeth
; 18(4): 3-20, 2018 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-29621457
16.
A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.
Clin Trials
; 14(1): 94-102, 2017 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-27625314
17.
Respecting Donor-Recipient Relationships in Research Decision-Making Commentary on: When Living Donor and Kidney Transplant Recipient Are Both Research Subjects.
Am J Bioeth
; 21(4): 112-114, 2021 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-33825630
18.
Fostering Relationships in Pediatric Oncology Research: A Relational Ethics Approach to Clinically Integrated Research.
Am J Bioeth
; 21(4): 85-88, 2021 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-33825652
19.
Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule "Key Information" Requirement.
Am J Bioeth
; 21(5): 70-72, 2021 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-33945415
20.
Respect and Trustworthiness in the Patient-Provider-Machine Relationship: Applying a Relational Lens to Machine Learning Healthcare Applications.
Am J Bioeth
; 20(11): 51-53, 2020 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-33103984