Standardised representation of healthcare information in secondary care research: a Central England case study.

Interoperability and reuse of healthcare information, for patient care and clinical research, rely on standardised approaches in its representation. The medical domain is rich with terminologies and dictionaries to support the representation of clinical data, but these are not necessarily interoperable. Secondary care research has long been conducted with study-specific requirements, and the valuable information collected was, however, difficult to reuse and share due to incomplete data collection and its non-standard representation. As a way to resolve some of these issues, we are designing and building sustainable database applications that clinicians and researchers alike can use as research registries, with the main aim to have research-quality healthcare information for future research studies and trials. This paper looks at a case study of how these applications are being developed in Central England through the use of controlled vocabularies. Specialty teams are keen to improve the interoperability, sharing and reuse of health information within and across specialties.

Reuse of routinely collected health data for clinical research: considerations in a central England case study.

An increasing amount of electronic health data is being collected for patient care, and with it the opportunity to explore reusing this data, for example to support clinical research. We explore how researchers can be supported in identifying potential study participants using a semi-automated approach to query anonymised datasets remotely. This paper describes the socio-technical considerations when answering this question in a central England case study.