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1.
Transgend Health ; 9(2): 143-150, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-38585246

RESUMO

Purpose: Evaluation and comparison of outcomes following gender-affirming mastectomy have been hindered by the lack of a validated population- and surgery-specific patient-reported outcome measure (PROM). The purpose of this study was to explore the lived experiences of transgender individuals assigned female at birth (AFAB) from before-to-after gender-affirming mastectomy to identify key qualitative themes that might inform the creation of a quantitative PROM in the future. Methods: Identified candidates were transgender men AFAB, 18-65 years of age (mean±standard deviation: 30.3±12.2), who had undergone gender-affirming mastectomy from 2015 through 2017 (n=53). Twelve individuals participated in either focus groups (6) or phone interviews (6), carried out in a semistructured fashion. Verbatim transcriptions were anonymized. Conventional content analysis was used to code all transcripts. Results: Content analysis identified six key themes experienced by transgender men undergoing gender-affirming mastectomy. In contrast to their experiences before surgery, participant reported that after surgery they experienced fewer symptoms of gender dysphoria, lower anxiety associated with gender dysphoria, less fear about physical safety, no need to hide a female chest shape, and that they passed as male. Also explored were themes about experiences with the health care team. Conclusion: This study presents the first qualitative data based on the lived experiences of transgender individuals AFAB who underwent gender-affirming mastectomy. These qualitative themes should be heavily considered when creating a quantitative PROM that will fully capture the changes transgender individuals AFAB experience from before-to-after gender-affirming mastectomy.

2.
J Am Med Dir Assoc ; 25(1): 138-145.e6, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-37913819

RESUMO

OBJECTIVES: Medications with a higher risk of harm or that are unlikely to be beneficial are used by nearly all older patients in home health care (HHC). The objective of this study was to understand stakeholders' perspectives on challenges in deprescribing these medications for post-acute HHC patients. DESIGN: Qualitative individual interviews were conducted with stakeholders involved with post-acute deprescribing. SETTING AND PARTICIPANT: Older HHC patients, HHC nurses, pharmacists, and primary/acute care/post-acute prescribers from 9 US states participated in individual qualitative interviews. MEASURES: Interview questions were focused on the experience, processes, roles, training, workflow, and challenges of deprescribing in hospital-to-home transitions. We used the constant comparison approach to identify and compare findings among patient, prescriber, and pharmacist and HHC nurse stakeholders. RESULTS: We interviewed 9 older patients, 11 HHC nurses, 5 primary care physicians (PCP), 3 pharmacists, 1 hospitalist, and 1 post-acute nurse practitioner. Four challenges were described in post-acute deprescribing for HHC patients. First, PCPs' time constraints, the timing of patient encounters after hospital discharge, and the lack of prioritization of deprescribing make it difficult for PCPs to initiate post-acute deprescribing. Second, patients are often confused about their medications, despite the care team's efforts in educating the patients. Third, communication is challenging between HHC nurses, PCPs, specialists, and hospitalists. Fourth, the roles of HHC nurses and pharmacists are limited in care team collaboration and discussion about post-acute deprescribing. CONCLUSIONS AND IMPLICATIONS: Post-acute deprescribing relies on multiple parties in the care team yet it has challenges. Interventions to align the timing of deprescribing and that of post-acute care visits, prioritize deprescribing and allow clinicians more time to complete related tasks, improve medication education for patients, and ensure effective communication in the care team with synchronized electronic health record systems are needed to advance deprescribing during the transition from hospital to home.


Assuntos
Desprescrições , Serviços de Assistência Domiciliar , Humanos , Idoso , Pesquisa Qualitativa , Transferência de Pacientes , Cuidados Semi-Intensivos
3.
Clin Ther ; 45(10): 947-956, 2023 10.
Artigo em Inglês | MEDLINE | ID: mdl-37640614

RESUMO

PURPOSE: Nearly all older patients receiving postacute home health care (HHC) use potentially inappropriate medications (PIMs) that carry a risk of harm. Deprescribing can reduce and optimize the use of PIMs, yet it is often not conducted among HHC patients. The objective of this study was to gather perspectives from patient, practitioner, and HHC clinician stakeholders on tasks that are essential to postacute deprescribing in HHC. METHODS: A total of 44 stakeholders, including 14 HHC patients, 15 practitioners (including 9 primary care physicians, 4 pharmacists, 1 hospitalist, and 1 nurse practitioner), and 15 HHC nurses, participated. The stakeholders were from 12 US states, including New York (n = 29), Colorado (n = 2), Connecticut (n = 1), Illinois (n = 2), Kansas (n = 2), Massachusetts (n = 1), Minnesota (n = 1), Mississippi (n = 1), Nebraska (n = 1), Ohio (n = 1), Tennessee (n = 1), and Texas (n = 2). First, individual interviews were conducted by experienced research staff via video conference or telephone. Second, the study team reviewed all interview transcripts and selected interview statements regarding stakeholders' suggestions for important tasks needed for postacute deprescribing in HHC. Third, concept mapping was conducted in which stakeholders sorted and rated selected interview statements regarding importance and feasibility. A content analysis was conducted of data collected in the individual interviews, and a mixed-method analysis was conducted of data collected in the concept mapping. FINDINGS: Four essential tasks were identified for postacute deprescribing in HHC: (1) ongoing review and assessment of medication use, (2) patent-centered and individualized plan of deprescribing, (3) timely and efficient communication among members of the care team, and (4) continuous and tailored medication education to meet patient needs. Among these tasks, developing patient-centered deprescribing considerations was considered the most important and feasible, followed by medication education, review and assessment of medication use, and communication. IMPLICATIONS: Deprescribing during the transition of care from hospital to home requires the following: continuous medication education for patients, families, and caregivers; ongoing review and assessment of medication use; patient-centered deprescribing considerations; and effective communication and collaboration among the primary care physician, HHC nurse, and pharmacist.


Assuntos
Desprescrições , Serviços de Assistência Domiciliar , Cuidado Transicional , Humanos , Lista de Medicamentos Potencialmente Inapropriados , Transição do Hospital para o Domicílio , Polimedicação
4.
J Community Health Nurs ; 28(3): 144-55, 2011 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-21809930

RESUMO

Consistent daily routines have been associated with children's well-being, but children of single parents are less likely to engage in regular family meals or bedtime routines. This study explored routines and the challenges of maintaining routines as experienced by single mothers with a preschool age (3-5) child. Four focus groups (N = 12) were conducted and qualitative content analysis was used. Mothers described routines as an integral part of their parenting role and a reflection of successful parenting but maintaining routines around bedtimes and mealtimes were major concerns. Difficulties managing their child's behavior and their own fatigue were major challenges but mothers described a wide range of helpful strategies as well.


Assuntos
Comportamento Infantil , Mães/psicologia , Pais Solteiros/psicologia , Atividades Cotidianas/psicologia , Atitude , Comportamento Infantil/psicologia , Pré-Escolar , Comportamento Alimentar/psicologia , Feminino , Grupos Focais , Humanos , Relações Mãe-Filho , Poder Familiar/psicologia , Sono
5.
J Int Assoc Provid AIDS Care ; 20: 2325958220978113, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33733909

RESUMO

In Ghana, the HIV prevalence among MSM is more than 10 times greater than the general population of adults, and rates of engagement in HIV medical care are low among MSM diagnosed with HIV. Using structured surveys, we investigated the impact of HIV-related stigma, same-sex behavior stigma, and gender nonconformity stigma on linkage to HIV care (LTC) in MSM (N = 225) living with HIV in Ghana. Autonomy-supportive healthcare climate (OR = 1.63, p < .01), vicarious HIV stigma (OR = 2.73, p < .01), and age (OR = 1.06, p < .004) predicted LTC. Conversely, felt normative HIV stigma negatively predicted LTC (OR = 0.65, p < .05). Finally, we identified regional disparities, with MSM from Takoradi being 4 times and 5 times more likely to be LTC compared to Kumasi and Accra, respectively. Our findings highlight the nuanced roles of stigmas in shaping the HIV care continuum among MSM living with HIV, while revealing potential gaps in current measures of HIV-related stigma.


Assuntos
Atenção à Saúde , Infecções por HIV/psicologia , Homossexualidade Masculina/psicologia , Estigma Social , Adulto , Continuidade da Assistência ao Paciente , Estudos Transversais , Feminino , Gana , Infecções por HIV/tratamento farmacológico , Humanos , Masculino , Comportamento Sexual , Minorias Sexuais e de Gênero
7.
J Pediatr Health Care ; 28(1): 80-7, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-23360666

RESUMO

INTRODUCTION: Everyday routines promote children's health. In the present study, we examined whether children's participation in everyday routines at ages 4 and 6 years predicted their sleep duration at age 6 years. METHOD: A secondary analysis of data was performed for 177 families who participated in the Rochester Preschool Children Injuries Study. Mothers were interviewed when their children were ages 4 and 6 years and reported on their children's everyday routines and perceived sleep duration. Relationships were examined by multiple hierarchical regression analysis. RESULTS: It was found that children who participated in more frequent routines at age 4 years were more likely to do so at age 6 years. Children's inadequate sleep duration at age 6 years was predicted by less frequent routines at age 6 years and by inadequate sleep duration at age 4 years after controlling for mothers' ethnicity, mothers' education, and family structure. An indirect relationship of routines at age 4 years to sleep at age 6 years through routines at age 6 years was found. DISCUSSION: Continuous engagement in everyday routines seems to play an important role in children's sleep acquisition.


Assuntos
Sono , Criança , Pré-Escolar , Humanos , Estudos Longitudinais
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