Detalhe da pesquisa
1.
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services.
Am J Hum Genet
; 109(3): 486-497, 2022 03 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35216680
2.
Genomic sequencing research in pediatric cancer care: Decision-making, attitudes, and perceived utility among adolescents and young adults and their parents.
Genet Med
; : 101168, 2024 May 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-38767058
3.
Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".
J Genet Couns
; 2024 Jan 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-38225886
4.
Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.
Am J Med Genet A
; 191(2): 391-399, 2023 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-36341765
5.
Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression.
J Genet Couns
; 31(1): 218-229, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34309124
6.
Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique.
PLoS Biol
; 16(10): e2006906, 2018 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-30278047
7.
Educating military primary health-care providers in genomic medicine: lessons learned from the MilSeq Project.
Genet Med
; 22(10): 1710-1717, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32647274
8.
Responsibility, culpability, and parental views on genomic testing for seriously ill children.
Genet Med
; 21(12): 2791-2797, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31186522
9.
Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.
Genet Med
; 21(3): 622-630, 2019 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30209271
10.
Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies.
Genet Med
; 21(12): 2781-2790, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31189963
11.
Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project.
Genet Med
; 20(9): 1069-1076, 2018 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-29300387
12.
Short-term costs of integrating whole-genome sequencing into primary care and cardiology settings: a pilot randomized trial.
Genet Med
; 20(12): 1544-1553, 2018 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-29565423
13.
Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.
J Genet Couns
; 27(5): 1220-1227, 2018 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-29497922
14.
The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial.
Ann Intern Med
; 167(3): 159-169, 2017 08 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-28654958
15.
IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy.
Forensic Sci Int
; 356: 111946, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38422559
16.
Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study.
AJOB Empir Bioeth
; : 1-11, 2024 Apr 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-38588389
17.
Research Participants' Perspectives on Precision Diagnostics for Alzheimer's Disease.
J Alzheimers Dis
; 97(3): 1261-1274, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38250770
18.
Public mental health during and after the SARS-CoV-2 pandemic: Opportunities for intervention via emotional self-efficacy and resilience.
Front Psychol
; 14: 1016337, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36755671
19.
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
J Law Biosci
; 10(2): lsad022, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37456713
20.
Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
J Adolesc Young Adult Oncol
; 12(5): 773-781, 2023 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36595372