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1.
Fam Pract ; 36(4): 473-478, 2019 07 31.
Artigo em Inglês | MEDLINE | ID: mdl-30346522

RESUMO

INTRODUCTION: The detection of harmful alcohol use and the delivery of brief advice in primary care are less than optimal. Given limited health care resources, deciding where best to allocate funding to optimize health outcomes is imperative. A simple data-based tool could be useful when access to specialist health economic advice is unavailable. This study aimed to examine the utility of a simple data-based calculator to facilitate priority setting in general practice for reducing alcohol-related harm. METHODS: A simple algorithm was developed within Microsoft Excel to allow comparison of hypothetical intervention scenarios that aimed to increase detection and brief advice for harmful alcohol use in general practice. The calculator accommodated varying implementation costs, size of effect and reach for each scenario created. The incremental costs of the intervention scenarios, the incremental number of successes (i.e. abstinence or drinking at safe levels) and the incremental costs-effectiveness ratio (ICER) were calculated for each hypothetical scenario and compared with a usual care scenario. RESULTS: In the hypothetical scenarios modelled, increasing both the detection of harmful alcohol consumption and the provision of brief advice produced the greatest number of incremental successes above baseline. Increasing detection alone produced fewer incremental successes but was the most cost-effective approach, as indicated by the lowest ICER. DISCUSSION: The data-based calculator provides a simple method of exploring reach and cost-effectiveness outcomes without the need for any specific skills. Although this approach has limitations, the calculator can be used by decision makers to guide intervention planning.


Assuntos
Alcoolismo/diagnóstico , Atenção à Saúde , Prioridades em Saúde , Atenção Primária à Saúde , Adolescente , Adulto , Idoso , Algoritmos , Austrália , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Alocação de Recursos , Adulto Jovem
2.
BMC Cancer ; 18(1): 125, 2018 02 06.
Artigo em Inglês | MEDLINE | ID: mdl-29402237

RESUMO

BACKGROUND: Depression is highly prevalent yet often poorly detected and treated among cancer patients. In light of the move towards evidence-based healthcare policy, we have developed a simple tool that can assist policy makers, organisations and researchers to logically think through the steps involved in improving patient outcomes, and to help guide decisions about where to allocate resources. METHODS: The model assumes that a series of filters operate to determine outcomes and cost-effectiveness associated with depression care for cancer patients, including: detection of depression, provider response to detection, patient acceptance of treatment, and effectiveness of treatment provided. To illustrate the utility of the model, hypothetical data for baseline and four scenarios in which filter outcomes were improved by 15% were entered into the model. RESULTS: The model provides outcomes including: number of people successfully treated, total costs per scenario, and the incremental cost-effectiveness ratio per scenario compared to baseline. The hypothetical data entered into the model illustrate the relative effectiveness (in terms of the number of additional incremental successes) and relative cost-effectiveness (in terms of cost per successful outcome and total cost) of making changes at each step or filter. CONCLUSIONS: The model provides a readily accessible tool to assist decision makers to think through the steps involved in improving depression outcomes for cancer patents. It provides transparent guidance about how to best allocate resources, and highlights areas where more reliable data are needed. The filter model presents an opportunity to improve on current practice by ensuring that a logical approach, which takes into account the available evidence, is applied to decision making.


Assuntos
Depressão/terapia , Modelos Teóricos , Neoplasias/psicologia , Guias de Prática Clínica como Assunto , Análise Custo-Benefício , Depressão/complicações , Depressão/diagnóstico , Humanos , Neoplasias/complicações , Avaliação de Resultados em Cuidados de Saúde/economia , Avaliação de Resultados em Cuidados de Saúde/métodos
3.
Ann Hematol ; 97(7): 1283-1292, 2018 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-29525897

RESUMO

Due to fewer cancer services in rural locations, rural survivors may have unique unmet needs compared to urban survivors. This study compared among rural and urban haematological cancer survivors the most common "high/very high" unmet supportive care needs and the unmet need scores for five domains (information, financial concerns, access and continuity of care, relationships and emotional health). Survivors' socio-demographics, rurality, cancer history and psychological factors associated with each unmet need domain were also explored. A total of 1511 haematological cancer survivors were recruited from five Australian state cancer registries and 1417 (1145 urban, 272 rural) allowed extraction of their residential postcode from registry records. A questionnaire that contained the Survivor Unmet Needs Survey was mailed to survivors. Dealing with feeling tired was the most common "high/very high" unmet need for rural (15.2%) and urban (15.5%) survivors. The emotional health domain had the highest mean unmet need score for rural and urban survivors. Rurality was associated with a decreased unmet emotional health domain score whereas travelling for more than 1 h to treatment was associated with increased unmet financial concerns and unmet access and continuity of care. Depression, anxiety and stress were associated with increased unmet need scores for all five domains. Unmet need domain scores generally did not differ by rurality. Travelling for more than 1 h to treatment was associated with increased unmet need scores on two domains. Telemedicine and increased financial assistance with travel and accommodation may help those travelling long distances for treatment.


Assuntos
Necessidades e Demandas de Serviços de Saúde , Neoplasias Hematológicas , População Rural , Sobreviventes , População Urbana , Adolescente , Adulto , Assistência ao Convalescente/economia , Assistência ao Convalescente/psicologia , Idoso , Austrália , Continuidade da Assistência ao Paciente , Emoções , Fadiga/etiologia , Fadiga/terapia , Feminino , Acessibilidade aos Serviços de Saúde , Humanos , Comportamento de Busca de Informação , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Fatores Socioeconômicos , Sobreviventes/psicologia , Telemedicina , Viagem , Adulto Jovem
4.
Aust J Rural Health ; 24(6): 371-377, 2016 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-27086673

RESUMO

OBJECTIVE: To indicate levels of monitoring of type 2 diabetes in rural and regional Australia by examining patterns of glycated haemoglobin (HbA1c) and blood lipid testing. DESIGN AND SETTING: Retrospective analysis of pathology services data from twenty regional and rural towns in eastern Australia over 24 months. PARTICIPANTS: Of 13 105 individuals who had either a single HbA1c result ≥7.0% (53 mmol mol-1 ); or two or more HbA1c tests within the study period. MAIN OUTCOME MEASURES: Frequency of testing of HbA1c and blood lipids (cholesterol, low-density lipoprotein (LDL) cholesterol, high-density lipoprotein (HDL) cholesterol and triglycerides) were compared with guideline recommendations. RESULTS: About 58.3% of patients did not have the recommended 6-monthly HbA1c tests and 30.6% did not have annual lipid testing. For those who did not receive tests at the recommended interval, the mean between-test interval was 10.5 months (95% CI = 7.5-13.5) rather than 6 months for HbA1c testing; and 15.7 (95% CI = 13.3-18.1) months rather than annually for blood lipids. For those with at least one out-of-range test result, 77% of patients failed to receive a follow-up HbA1c test and 86.5% failed to receive a follow-up blood lipid test within the recommended 3 months. Patients less than 50 years of age, living in a more remote area and with poor diabetes control were less likely to have testing at the recommended intervals (P < 0.0001). CONCLUSIONS: Although poor diabetes testing is not limited to rural areas, more intensive diabetes monitoring is likely to be needed for patients living in non-metropolitan areas, particularly for some subgroups.


Assuntos
Diabetes Mellitus Tipo 2/metabolismo , Hemoglobinas Glicadas/análise , Fidelidade a Diretrizes , Lipídeos/sangue , Idoso , Idoso de 80 Anos ou mais , Glicemia/análise , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos
5.
Cancer ; 121(14): 2383-92, 2015 Jul 15.
Artigo em Inglês | MEDLINE | ID: mdl-25877682

RESUMO

BACKGROUND: The Institute of Medicine (IOM) recommended 6 objectives for achieving patient-centered care. However, most patient-reported outcome measures developed with cancer populations fail to address all 6 patient-centeredness dimensions. The Quality of Patient-Centered Cancer Care (QPCCC) measure was developed on the basis of IOM recommendations, and the measure's validity, reliability, and floor and ceiling effects were examined. METHODS: The development of the QPCCC measure included interviews with hematological cancer survivors and feedback from hematologists and cancer patients. To evaluate the measure's psychometric properties, hematological cancer survivors were identified via 2 cancer registries and were mailed the QPCCC measure. To examine test-retest reliability, a second QPCCC measure was mailed to survivors 7 to 14 days after they had returned the first measure. RESULTS: Overall, 545 hematological cancer survivors completed the 48-item QPCCC measure. Exploratory factor analysis revealed a 10-factor structure with factor loadings > 0.40. The subscales were labeled Treatment Delivery, Treatment Decision Making, Coordinated and Integrated Care, Emotional Support, Timely Care, Follow-Up Care, Respectful Communication, Patient Preferences and Values, Cancer Information, and Equitable Care. The QPCCC measure demonstrated acceptable internal consistency for all subscales (Cronbach's α = .73-.94). When test-retest reliability was assessed, 4 items demonstrated substantial agreement (κ > 0.60), whereas 40 items showed moderate agreement (κ = 0.41-0.60). Ceiling effects were present for 8 subscales. CONCLUSIONS: The QPCCC measure has acceptable face and content validity, construct validity, and internal consistency. However, the measure's discriminant validity and test-retest reliability could be improved. The QPCCC measure could be used to improve patient-centered cancer care.


Assuntos
Neoplasias Hematológicas/terapia , Assistência Centrada no Paciente/normas , Qualidade da Assistência à Saúde , Inquéritos e Questionários/normas , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Assistência Centrada no Paciente/métodos , Psicometria , Sobreviventes , Estados Unidos
6.
Psychooncology ; 24(7): 796-803, 2015 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-25504965

RESUMO

OBJECTIVE: Patient-reported outcome measures (PROMs) that assess the quality of patient-centred cancer care have failed to measure all six patient-centredness dimensions endorsed by the Institute of Medicine (IOM). This study is the first to use the Quality of Patient-Centered Cancer Care (QPCCC) measure that covers all six IOM patient-centredness dimensions to examine haematological cancer survivors' perceptions of care and characteristics associated with perceived quality of care. METHODS: Haematological cancer survivors diagnosed in the last 6 years and aged 18-80 years were recruited from two Australian state population-based cancer registries. Survivors were mailed the 48-item QPCCC measure. RESULTS: Overall, 545 haematological cancer survivors completed the measure. Areas of care most commonly identified as delivered were hospital staff showing respect to survivors (93%) and making sure the correct treatment was received (93%). Aspects of care most frequently nominated as not delivered were hospital staff helping family and friends (34%) or the survivor (32%) to find other people with similar experiences to talk to. Characteristics associated with survivors perceiving higher quality care was delivered included being employed, having private health insurance, being younger, a Non-Hodgkin lymphoma diagnosis and more recent diagnosis. Being depressed or stressed was associated with perceived lower quality of care. CONCLUSIONS: Provision of peer support programs that allow haematological cancer survivors and families and friends to talk to others in similar situations could be improved. Using PROMs to identify areas where cancer survivors perceive improvements are needed is essential to quality improvement efforts.


Assuntos
Atitude Frente a Saúde , Neoplasias Hematológicas , Satisfação do Paciente , Assistência Centrada no Paciente , Qualidade da Assistência à Saúde , Sistema de Registros , Sobreviventes , Adolescente , Adulto , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Depressão , Emprego , Feminino , Humanos , Seguro Saúde , Linfoma não Hodgkin , Masculino , Pessoa de Meia-Idade , Percepção , Estresse Psicológico , Inquéritos e Questionários , Adulto Jovem
7.
Nicotine Tob Res ; 17(6): 746-9, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25634937

RESUMO

INTRODUCTION: Guidelines recommend assessment of smoking status, with advice and support for smoking cessation, as a routine and integral part of antenatal care. Approximately 50% of pregnant Australian Aboriginal and Torres Strait Islander women smoke through pregnancy, 3 times the rate of other pregnant Australian women. This study describes smoking cessation assessment and support reported by pregnant Aboriginal and Torres Strait Islander women. METHODS: Surveys of 261 pregnant Aboriginal and Torres Strait Islander women in New South Wales and the Northern Territory, Australia assessed women's reports of assessment, advice and support for smoking cessation from antenatal providers. RESULTS: The majority of women (90%, 95% CI = 85, 93) reported being asked their smoking status; 81% (95% CI = 73, 87) of smokers reported being advised to stop smoking and 62% (95% CI = 53, 71) of smokers reported being offered support to quit. CONCLUSIONS: Despite most pregnant women who smoke reporting advice and support to quit, the persisting high prevalence of smoking suggests that this support is insufficient to overcome the many factors pushing women to smoke. Improving the support provided to women will require empowering the antenatal providers with adequate skills, appropriate resources and effective interventions. Current guidelines are based on research from non-Indigenous populations, as there are no published effective interventions for Indigenous pregnant women. Trials of interventions designed specifically for pregnant Aboriginal and Torres Strait Islander women are urgently needed, as are approaches aimed at reducing uptake of smoking.


Assuntos
Acessibilidade aos Serviços de Saúde , Necessidades e Demandas de Serviços de Saúde , Havaiano Nativo ou Outro Ilhéu do Pacífico , Cuidado Pré-Natal/estatística & dados numéricos , Abandono do Hábito de Fumar/estatística & dados numéricos , Fumar/terapia , Tabagismo/terapia , Adulto , Austrália , Feminino , Humanos , New South Wales , Gravidez , Gestantes , Inquéritos e Questionários , Tabagismo/diagnóstico , Adulto Jovem
8.
Annu Rev Public Health ; 35: 9-27, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-24387088

RESUMO

The need to provide sound evidence of the costs and benefits of real-world public health interventions has driven advances in the development and analysis of designs other than the controlled trial in which individuals are randomized to an experimental condition. Attention to methodological quality is of critical importance to ensure that any evaluation can accurately answer three fundamental questions: (a) Has a change occurred, (b) did the change occur as a result of the intervention, and (c) is the degree of change significant? A range of alternatives to the individual randomized controlled trial (RCT) can be used for evaluating such interventions, including the cluster RCT, stepped wedge design, interrupted time series, multiple baseline, and controlled prepost designs. The key features and complexities associated with each of these designs are explored.


Assuntos
Saúde Pública , Projetos de Pesquisa , Causalidade , Análise Custo-Benefício , Comportamentos Relacionados com a Saúde , Promoção da Saúde , Disparidades nos Níveis de Saúde , Humanos , Reprodutibilidade dos Testes
9.
BMC Cancer ; 14: 41, 2014 Jan 25.
Artigo em Inglês | MEDLINE | ID: mdl-24460829

RESUMO

BACKGROUND: The Institute of Medicine (IOM) has endorsed six dimensions of patient-centredness as crucial to providing quality healthcare. These dimensions outline that care must be: 1) respectful to patients' values, preferences, and expressed needs; 2) coordinated and integrated; 3) provide information, communication, and education; 4) ensure physical comfort; 5) provide emotional support-relieving fear and anxiety; and 6) involve family and friends. However, whether patient-reported outcome measures (PROMs) comprehensively cover these dimensions remains unexplored. This systematic review examined whether PROMs designed to assess the quality of patient-centred cancer care addressed all six IOM dimensions of patient-centred care and the psychometric properties of these measures. METHODS: Medline, PsycINFO, Current Contents, Embase, CINAHL and Scopus were searched to retrieve published studies describing the development and psychometric properties of PROMs assessing the quality of patient-centred cancer care. Two authors determined if eligible PROMs included the six IOM dimensions of patient-centred care and evaluated the adequacy of psychometric properties based on recommended criteria for internal consistency, test-retest reliability, face/content validity, construct validity and cross-cultural adaptation. RESULTS: Across all 21 PROMs, the most commonly included IOM dimension of patient-centred care was "information, communication and education" (19 measures). In contrast, only five measures assessed the "involvement of family and friends." Two measures included one IOM-endorsed patient-centred care dimension, two measures had two dimensions, seven measures had three dimensions, five measures had four dimensions, and four measures had five dimensions. One measure, the Indicators (Non-small Cell Lung Cancer), covered all six IOM dimensions of patient-centred care, but had adequate face/content validity only. Eighteen measures met the recommended adequacy criteria for construct validity, 15 for face/content validity, seven for internal consistency, three for cross-cultural adaptation and no measure for test-retest reliability. CONCLUSIONS: There are no psychometrically rigorous PROMs developed with cancer patients that capture all six IOM dimensions of patient-centred care. Using more than one measure or expanding existing measures to cover all six patient-centred care dimensions could improve assessment and delivery of patient-centred care. Construction of new comprehensive measures with acceptable psychometric properties that can be used with the general cancer population may also be warranted.


Assuntos
Prestação Integrada de Cuidados de Saúde/normas , Oncologia/normas , National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division , Neoplasias/terapia , Avaliação de Processos e Resultados em Cuidados de Saúde/normas , Indicadores de Qualidade em Assistência à Saúde/normas , Inquéritos e Questionários/normas , Fidelidade a Diretrizes/normas , Humanos , Guias de Prática Clínica como Assunto/normas , Padrões de Prática Médica/normas , Psicometria , Reprodutibilidade dos Testes , Resultado do Tratamento , Estados Unidos
10.
BMC Med Inform Decis Mak ; 14: 34, 2014 Apr 16.
Artigo em Inglês | MEDLINE | ID: mdl-24739205

RESUMO

BACKGROUND: Aboriginal Australians experience significantly worse health and a higher burden of chronic disease than non-Aboriginal Australians. Electronic self-report data collection is a systematic means of collecting data about health risk factors which could help to overcome screening barriers and assist in the provision of preventive health care. Yet this approach has not been tested in an Aboriginal health care setting. Therefore, the aim of this study was to examine the acceptability and feasibility of a health risk questionnaire administered on a touch screen laptop computer for patients attending an Aboriginal Community Controlled Health Service (ACCHS). METHODS: In 2012, consecutive adult patients attending an ACCHS in rural New South Wales, Australia, were asked to complete a health risk survey on a touch screen computer. Health risk factors assessed in the questionnaire included smoking status, body mass index, and level of physical activity. The questionnaire included visual cues to improve accuracy and minimise literacy barriers and was completed while participants were waiting for their appointment. RESULTS: A total of 188 participants completed the questionnaire, with a consent rate of 71%. The mean time taken to complete the questionnaire was less than 12 minutes. Over 90% of participants agreed that: the questionnaire instructions were easy to follow; the touch screen computer was easy to use; they had enough privacy; the questions were easy to understand; they felt comfortable answering all the questions. CONCLUSIONS: Results indicate that the use of a touch screen questionnaire to collect information from patients about health risk factors affecting Aboriginal Australians is feasible and acceptable in the ACCHS setting. This approach has potential to improve identification and management of at-risk individuals, therein providing significant opportunities to reduce the burden of disease among Aboriginal Australians.


Assuntos
Serviços de Saúde Comunitária/métodos , Coleta de Dados/métodos , Programas de Rastreamento/métodos , Havaiano Nativo ou Outro Ilhéu do Pacífico/psicologia , Interface Usuário-Computador , Adulto , Estudos Transversais , Coleta de Dados/instrumentação , Estudos de Viabilidade , Feminino , Pesquisa sobre Serviços de Saúde , Humanos , Consentimento Livre e Esclarecido/psicologia , Masculino , Programas de Rastreamento/instrumentação , Pessoa de Meia-Idade , New South Wales/etnologia , Medição de Risco , Fatores de Risco , População Rural , Autorrelato/normas
11.
BMC Cancer ; 13: 13, 2013 Jan 10.
Artigo em Inglês | MEDLINE | ID: mdl-23305355

RESUMO

BACKGROUND: The aim of this study was to determine the proportions and predictors of first-degree relatives (FDRs) of colorectal cancer (CRC) patients (i) ever receiving any CRC testing and (ii) receiving CRC screening in accordance with CRC screening guidelines. METHODS: Colorectal cancer patients and their FDRs were recruited through the population-based Victorian Cancer Registry, Victoria, Australia. Seven hundred and seven FDRs completed telephone interviews. Of these, 405 FDRs were deemed asymptomatic and eligible for analysis. RESULTS: Sixty-nine percent of FDRs had ever received any CRC testing. First-degree relatives of older age, those with private health insurance, siblings and FDRs who had ever been asked about family history of CRC by a doctor were significantly more likely than their counterparts to have ever received CRC testing. Twenty-five percent of FDRs "at or slightly above average risk" were adherent to CRC screening guidelines. For this group, adherence to guideline-recommended screening was significantly more likely to occur for male FDRs and those with a higher level of education. For persons at "moderately increased risk" and "potentially high risk", 47% and 49% respectively adhered to CRC screening guidelines. For this group, guideline-recommended screening was significantly more likely to occur for FDRs who were living in metropolitan areas, siblings, those married or partnered and those ever asked about family history of CRC. CONCLUSIONS: A significant level of non-compliance with screening guidelines was evident among FDRs. Improved CRC screening in accordance with guidelines and effective systematic interventions to increase screening rates among population groups experiencing inequality are needed. TRIAL REGISTRATION: Australian and New Zealand Clinical Trial Registry: ACTRN12609000628246.


Assuntos
Colonoscopia , Neoplasias Colorretais/diagnóstico , Família , Programas de Rastreamento , Padrões de Prática Médica , Adulto , Idoso , Distribuição de Qui-Quadrado , Colonoscopia/normas , Neoplasias Colorretais/epidemiologia , Neoplasias Colorretais/genética , Neoplasias Colorretais/prevenção & controle , Estudos Transversais , Detecção Precoce de Câncer , Feminino , Predisposição Genética para Doença , Fidelidade a Diretrizes , Conhecimentos, Atitudes e Prática em Saúde , Hereditariedade , Humanos , Modelos Logísticos , Masculino , Programas de Rastreamento/métodos , Programas de Rastreamento/normas , Pessoa de Meia-Idade , Aceitação pelo Paciente de Cuidados de Saúde , Educação de Pacientes como Assunto , Linhagem , Guias de Prática Clínica como Assunto , Padrões de Prática Médica/normas , Valor Preditivo dos Testes , Sistema de Registros , Medição de Risco , Fatores de Risco , Vitória/epidemiologia
12.
Med J Aust ; 199(1): 39-41, 2013 Jul 08.
Artigo em Inglês | MEDLINE | ID: mdl-23829261

RESUMO

Aboriginal and Torres Strait Islander women are more than three times more likely to smoke during pregnancy than non-Indigenous women, greatly increasing the risk of poor birth outcomes. Our systematic review found that there is currently no evidence for interventions that are effective in supporting pregnant Aboriginal and Torres Strait Islander women to quit smoking, which impedes development and implementation of evidence-informed policy and practice. There is an urgent need for methodologically rigorous studies to test innovative approaches to addressing this problem.


Assuntos
Serviços de Saúde do Indígena/organização & administração , Havaiano Nativo ou Outro Ilhéu do Pacífico/psicologia , Cuidado Pré-Natal/organização & administração , Abandono do Hábito de Fumar , Prevenção do Hábito de Fumar , Fumar/etnologia , Austrália , Feminino , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Disparidades nos Níveis de Saúde , Humanos , Gravidez
13.
Support Care Cancer ; 21(10): 2799-807, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-23729225

RESUMO

PURPOSE: This study aimed to identify the prevalence and predictors of anxiety and depression among family caregivers of patients with cancer in Korea. METHODS: A national, multicenter, cross-sectional survey was conducted with 897 family caregivers. The Hospital Anxiety and Depression Scale was used to assess anxiety and depression in patient-family caregiver dyads. RESULTS: The prevalence of anxiety in family caregivers was 38.1 %:20.3 % reported mild anxiety, 13.3 % reported moderate anxiety, and 4.6 % reported severe anxiety. The prevalence of depression was 82.2 %:40.4 % reported mild depression, 25.5 % reported moderate depression, and 16.3 % reported severe depression. Family caregivers who were younger, were caring for male patients, or had a low quality of life (QOL) in relation to three of the variables measured in the Korean Caregiver Quality of Life Index-Cancer (CQOLC-K): burden, disturbance, and financial concerns reported increased anxiety. Becoming unemployed during caregiving, being the spouse of a patient and having low QOL in relation to three of the variables measured by the CQOLC-K: burden, disturbance, and positive adaptation were associated with depression among family caregivers. The predictive validity of the selected variables were 0.861 (95 % CI: 0.844-0.892) for anxiety and 0.794 (95 % CI: 0.751-0.828) for depression. CONCLUSIONS: Family caregivers of patients with cancer experienced high levels of anxiety and depression. Socio-demographic factors and QOL were predictors of anxiety and depression in family caregivers.


Assuntos
Ansiedade/epidemiologia , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , Depressão/epidemiologia , Neoplasias/psicologia , Ansiedade/etiologia , Estudos Transversais , Depressão/etiologia , Família/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/terapia , Prevalência , Escalas de Graduação Psiquiátrica , Qualidade de Vida , República da Coreia/epidemiologia , Fatores Socioeconômicos , Cônjuges/psicologia
14.
BMC Public Health ; 13: 248, 2013 Mar 20.
Artigo em Inglês | MEDLINE | ID: mdl-23514586

RESUMO

BACKGROUND: Participation rates in colorectal cancer screening (CRC) are low. Relatively little is known about screening uptake across varying levels of risk and across population groups. The purpose of the current study was to identify factors associated with (i) ever receiving colorectal cancer (CRC) testing; (ii) risk-appropriate CRC screening in accordance with guidelines; and (iii) recent colonoscopy screening. METHODS: 1592 at-risk persons (aged 56-88 years) were randomly selected from the Hunter Community Study (HCS), Australia. Participants self-reported family history of CRC was used to quantify risk in accordance with national screening guidelines. RESULTS: 1117 participants returned a questionnaire; 760 respondents were eligible for screening and analysis. Ever receiving CRC testing was significantly more likely for persons: aged 65-74 years; who had discussed with a doctor their family history of CRC or had ever received screening advice. For respondents "at or slightly above average risk", guideline-appropriate screening was significantly more likely for persons: aged 65-74 years; with higher household income; and who had ever received screening advice. For respondents at "moderately or potentially high risk", guideline-appropriate screening was significantly more likely for persons: with private health insurance and who had discussed their family history of CRC with a doctor. Colonoscopy screening was significantly more likely for persons: who had ever smoked; discussed their family history of CRC with a doctor; or had ever received screening advice. CONCLUSIONS: The level of risk-appropriate screening varied across populations groups. Interventions that target population groups less likely to engage in CRC screening are pivotal for decreasing screening inequalities.


Assuntos
Neoplasias Colorretais/prevenção & controle , Detecção Precoce de Câncer/estatística & dados numéricos , Fidelidade a Diretrizes/estatística & dados numéricos , Cooperação do Paciente/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Austrália , Neoplasias Colorretais/genética , Detecção Precoce de Câncer/normas , Predisposição Genética para Doença , Humanos , Pessoa de Meia-Idade , Relações Médico-Paciente , Guias de Prática Clínica como Assunto , Medição de Risco , Fatores de Risco , Fatores Socioeconômicos , Inquéritos e Questionários
15.
Aust Health Rev ; 47(1): 26-57, 2023 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-36356889

RESUMO

Objectives We set out to examine the volume, scope and quality of research related to First Nations peoples' perceptions of, and experiences with, child rearing and/or parenting programs. Methods We systematically reviewed the literature published between 2000 and 2020. Sixty-eight studies identified through electronic databases and references lists met inclusion criteria. Results The study found an 8% increase in publications in the field each year (P -value = 0.002), mostly conducted in Australia with Aboriginal and Torres Strait Islander people (n = 29, 41%). Scope included positive and negative experiences relating to: parenting from adult (n = 19 studies) and teenager (n = 4) perspectives; and pregnancy, antenatal and postnatal care from the perspective of adults (n = 23) and teenagers (n = 2). Descriptive studies included qualitative (n = 40; 58%), quantitative (n = 8, 12%) or mixed methods (n = 7, 10%). Thirteen experimental studies reported the development, acceptability and/or effectiveness of programs (19%), of which three met the Cochrane Effective Practice and Organisation of Care design criteria. Conclusions Despite an overall increase in volume, research efforts do not demonstrate a clear scientific progression. Further methodologically rigorous studies examining child rearing and/or parenting programs developed in collaboration with First Nations populations are needed.


Assuntos
Serviços de Saúde do Indígena , Poder Familiar , Adolescente , Adulto , Criança , Feminino , Humanos , Gravidez , Austrália , Educação Infantil , Países Desenvolvidos , Povos Aborígenes Australianos e Ilhéus do Estreito de Torres
16.
BMC Gastroenterol ; 12: 100, 2012 Aug 03.
Artigo em Inglês | MEDLINE | ID: mdl-22862960

RESUMO

BACKGROUND: Little data exists on the factors associated with health care seeking behaviour for primary symptoms of colorectal cancer (CRC). This study aimed to identify individual, provider and psychosocial factors associated with (i) ever seeking medical advice and (ii) seeking early medical advice for primary symptoms of colorectal cancer (CRC). METHODS: 1592 persons aged 56-88 years randomly selected from the Hunter Community Study (HCS) were sent a questionnaire. RESULTS: Males and those who had received screening advice from a doctor were at significantly higher odds of ever seeking medical advice for rectal bleeding. Persons who had private health coverage, consulted a doctor because the 'symptom was serious', or who did not wait to consult a doctor for another reason were at significantly higher odds of seeking early medical advice (< 2 weeks). For change in bowel habit, persons with lower income, within the healthy weight range, or who had discussed their family history of CRC irrespective of whether informed of 'increased risk' were at significantly higher odds of ever seeking medical advice. Persons frequenting their GP less often and seeing their doctor because the symptom persisted were at significantly higher odds of seeking early medical advice (< 2 weeks). CONCLUSIONS: The seriousness of symptoms, importance of early detection, and prompt consultation must be articulated in health messages to at-risk persons. This study identified modifiable factors, both individual and provider-related to consultation behaviour. Effective health promotion efforts must heed these factors and target sub-groups less likely to seek early medical advice.


Assuntos
Neoplasias Colorretais/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Avaliação de Sintomas/psicologia , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Defecação , Feminino , Hemorragia Gastrointestinal/psicologia , Pesquisas sobre Atenção à Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Índice de Gravidade de Doença , Fatores Sexuais , Classe Social , Inquéritos e Questionários
17.
Med J Aust ; 196(8): 516-20, 2012 May 07.
Artigo em Inglês | MEDLINE | ID: mdl-22571309

RESUMO

OBJECTIVES: To determine current colorectal cancer (CRC) screening rates and the level of adherence to screening guidelines @a community level. SETTING: A cross-sectional cohort of at-risk people aged 56-88 years randomly selected from the Hunter Community Study (HCS), Australia. MAIN OUTCOME MEASURES: Proportion ever reporting undertaking any CRC testing; current screening rates for each CRC screening modality; level of screening in accordance with national screening guidelines. RESULTS: Of the 1117 participants (70%) who returned a questionnaire, 777 were deemed asymptomatic and eligible for analysis. Overall, 63% of respondents had ever received any CRC testing. Forty-three per cent had ever had a faecal occult blood test (20% screened in the previous 2 years); 30% had ever had a colonoscopy (16% screened in the previous 5 years); and 7% had ever had a sigmoidoscopy (1% screened in the previous 5 years). Rates of adherence to screening guidelines were 21% for respondents who were @or slightly above average risk, and 45% for respondents who were @moderately increased or potentially high risk. CONCLUSIONS: Rates of CRC screening remain low. The screening rate for colonoscopy was particularly high among people who were @or slightly above average risk, despite such screening not being endorsed in the guidelines. Effective strategies to improve rates of CRC screening and appropriate use of colonoscopy are required across the entire at-risk population.


Assuntos
Neoplasias Colorretais/diagnóstico , Detecção Precoce de Câncer/estatística & dados numéricos , Fidelidade a Diretrizes/estatística & dados numéricos , Idoso , Idoso de 80 Anos ou mais , Austrália , Colonoscopia/estatística & dados numéricos , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Sangue Oculto , Guias de Prática Clínica como Assunto , Risco , Inquéritos e Questionários
18.
Support Care Cancer ; 20(11): 2687-95, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22350593

RESUMO

PURPOSE: This study aimed to assess levels of internet access, likelihood of using various sources of information or support, and sociodemographic characteristics related to high internet access among support persons of haematological cancer patients. METHODS: A cross-sectional sample of haematological cancer survivors was recruited via a state cancer registry in Australia. Participating survivors invited their support persons to complete a survey. Of the 268 survivors, 68% had a support person return a survey. Approximately 80% of support persons reported having internet access. RESULTS: Almost three quarters (74%) reported having 'high' access. Support persons reported their likelihood of using internet-based forms of information and support (59% and 26%, respectively) was lower than for other sources, including those delivered face-to-face (80% and 75%) or through print (87% and 70%). Participants who were older or had less education were less likely to report a high level of internet access or likelihood of using web-based sources. CONCLUSIONS: The results demonstrate the need to continue to provide information and support via multiple modes. Support persons who potentially are more vulnerable due to age and lower education are the least likely to use internet-based options. Consequently, these groups may require alternatives, including face-to-face or print-based information and support.


Assuntos
Cuidadores/estatística & dados numéricos , Neoplasias Hematológicas/terapia , Internet/estatística & dados numéricos , Apoio Social , Adulto , Fatores Etários , Idoso , Austrália , Cuidadores/psicologia , Estudos Transversais , Coleta de Dados , Escolaridade , Feminino , Neoplasias Hematológicas/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Sistema de Registros , Sobreviventes
19.
BMC Public Health ; 12: 165, 2012 Mar 07.
Artigo em Inglês | MEDLINE | ID: mdl-22397580

RESUMO

BACKGROUND: As with many Indigenous peoples, smoking rates among Aboriginal Australians are considerably higher than those of the non-Indigenous population. Approximately 50% of Indigenous women smoke during pregnancy, a time when women are more motivated to quit. Antenatal care providers are potentially important change agents for reducing the harms associated with smoking, yet little is known about their knowledge, attitudes or skills, or the factors associated with providing smoking cessation advice. METHODS: This paper aimed to explore the knowledge and attitudes of health care providers caring for pregnant Australian Aboriginal women with regard to smoking risks and cessation; and to identify factors associated with self-reported assessment of smoking. A cross-sectional survey was undertaken with 127 staff providing antenatal care to Aboriginal women from two jurisdictions: the Northern Territory and New South Wales, Australia. Measures included respondents' estimate of the prevalence of smoking among pregnant women; optimal and actual assessment of smoking status; knowledge of risks associated with antenatal smoking; knowledge of smoking cessation; attitudes to providing cessation advice to pregnant women; and perceived barriers and motivators for cessation for pregnant women. RESULTS: The median provider estimate of the smoking prevalence was 69% (95%CI: 60,70). The majority of respondents considered assessment of smoking status to be integral to antenatal care and a professional responsibility. Most (79%) indicated that they assess smoking status in 100% of clients. Knowledge of risks was generally good, but knowledge of cessation was poor. Factors independently associated with assessing smoking status among all women were: employer service type (p = 0.025); cessation knowledge score (p = 0.011); and disagreeing with the statement that giving advice is not worth it given the low level of success (p = 0.011). CONCLUSIONS: Addressing knowledge of smoking risks and cessation counselling is a priority and should improve both confidence and ability, and increase the frequency and effectiveness of counselling. The health system must provide supports to providers through appropriate policy and resourcing, to enable them to address this issue.


Assuntos
Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Pessoal de Saúde , Cuidado Pré-Natal , Prevenção do Hábito de Fumar , Fumar/etnologia , Aconselhamento , Estudos Transversais , Feminino , Humanos , Havaiano Nativo ou Outro Ilhéu do Pacífico , New South Wales/epidemiologia , Northern Territory/epidemiologia , Gravidez , Fumar/epidemiologia
20.
BMC Fam Pract ; 13: 17, 2012 Mar 14.
Artigo em Inglês | MEDLINE | ID: mdl-22414115

RESUMO

BACKGROUND: Family history is a common risk factor for colorectal cancer (CRC), yet it is often underused to guide risk assessment and the provision of risk-appropriate CRC screening recommendation. The aim of this study was to identify from a patient perspective health care providers' current practice relating to: (i) assessment of family history of CRC; (ii) notification of "increased risk" to patients at "moderately/potentially high" familial risk; and (iii) recommendation that patients undertake CRC screening. METHODS: 1592 persons aged 56-88 years randomly selected from the Hunter Community Study (HCS), New South Wales, Australia were mailed a questionnaire. 1117 participants (70%) returned a questionnaire. RESULTS: Thirty eight percent of respondents reported ever being asked about their family history of CRC. Ever discussing family history of CRC with a health care provider was significantly more likely to occur for persons with a higher level of education, who had ever received screening advice and with a lower physical component summary score. Fifty one percent of persons at "moderately/potentially high risk" were notified of their "increased risk" of developing CRC. Thirty one percent of persons across each level of risk had ever received CRC screening advice from a health care provider. Screening advice provision was significantly more likely to occur for persons who had ever discussed their family history of CRC with a health care provider and who were at "moderately/potentially high risk". CONCLUSIONS: Effective interventions that integrate both the assessment and notification of familial risk of CRC to the wider population are needed. Systematic and cost-effective mechanisms that facilitate family history collection, risk assessment and provision of screening advice within the primary health care setting are required.


Assuntos
Neoplasias Colorretais/diagnóstico , Detecção Precoce de Câncer/normas , Relações Médico-Paciente , Médicos de Família/normas , Idoso , Idoso de 80 Anos ou mais , Serviços de Saúde Comunitária , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , New South Wales , Satisfação do Paciente , Guias de Prática Clínica como Assunto , Encaminhamento e Consulta , Medição de Risco/normas , Inquéritos e Questionários
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