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2.
Dermatitis ; 35(S1): S98-S102, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-36724458

RESUMO

Background: Atopic dermatitis (AD) induces alterations of external appearance and self-esteem, with impact on the personal development of the children. However, tools for estimating such suffering are lacking. We aimed to assess how children with AD represent themselves through their drawings. Methods: In this retrospective study, we included children (<18 years) suffering from AD who followed the instruction "draw yourself with and without eczema" at the end of a routine follow-up consultation. Drawings were interpreted with the child and then classified in different analysis groups by 5 independent evaluators. Results: A total of 64 children (41 [64.1%] girls and 23 [35.9%] boys, median [range] age 8 [3-7] years) made 64 drawings. Five groups of drawing were identified: "amputee" (n = 8, 12.5%), "identical" (n = 18, 28.1%), "sad" (n = 19, 29.7%), "complex" (n = 11, 17.2%), and "other" (n = 8, 12.5%). Univariate analysis found that age was differently distributed among the different drawing groups (P = 0.0047), as was the predominance of light colors (P = 0.038). The distribution of the other variables (gender, investigator global assessment score, active AD, and duration of activity) was not different among drawing groups. Conclusions: The drawing allows a majority of the AD children to express their self-image with and without eczema, as well as their feelings and their interactions with the environment and with their entourage. The visual tool proposed herein could be used during consultations, to (a) become aware of the need to treat AD, (b) better evaluate the impact of AD burden in childhood, and (c) adjust appropriately AD treatment.


Assuntos
Dermatite Atópica , Eczema , Criança , Masculino , Feminino , Humanos , Pré-Escolar , Dermatite Atópica/terapia , Estudos Retrospectivos
3.
Eur J Dermatol ; 28(6): 823-827, 2018 Dec 01.
Artigo em Inglês | MEDLINE | ID: mdl-30530411

RESUMO

Therapeutic patient education (TPE) allows patients to better understand their disease and cope with treatment. TPE programmes have not yet been evaluated for chronic spontaneous urticaria (CSU). To investigate the cognitive and behavioural impact of TPE on CSU patients. CSU patients were selected who completed a TPE programme. A pre-post comparison was performed using a skill/knowledge questionnaire, based on six educational objectives, before and after the intervention. The course of CSU was also analysed, according to daily hive count and itch intensity. All of the 61 enrolled patients improved their knowledge and skills following TPE, with greatest improvement in itch management and use of alternatives to scratching. CSU activity was reduced at the end of the programme in 60% of patients. TPE improves knowledge and skills for CSU patients. Further research is needed to demonstrate the positive impact of TPE on CSU activity.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Educação de Pacientes como Assunto/métodos , Prurido/terapia , Urticária/terapia , Adulto , Idoso , Idoso de 80 Anos ou mais , Antialérgicos/uso terapêutico , Doença Crônica , Feminino , Antagonistas dos Receptores Histamínicos H1/uso terapêutico , Humanos , Imunossupressores/uso terapêutico , Masculino , Pessoa de Meia-Idade , Omalizumab/uso terapêutico , Prurido/etiologia , Estudos Retrospectivos , Índice de Gravidade de Doença , Inquéritos e Questionários , Urticária/complicações , Adulto Jovem
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