Detalhe da pesquisa
1.
The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.
Orphanet J Rare Dis
; 19(1): 128, 2024 Mar 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-38515144
2.
The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults.
Orphanet J Rare Dis
; 19(1): 222, 2024 Jun 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-38831282
3.
The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review.
Orphanet J Rare Dis
; 18(1): 34, 2023 Feb 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-36814274
4.
Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic.
Front Public Health
; 10: 951569, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36684962
5.
Patients' priorities and expectations on an EU registry for rare bone and mineral conditions.
Orphanet J Rare Dis
; 16(1): 463, 2021 11 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-34732217