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1.
Cereb Cortex ; 34(8)2024 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-39118215

RESUMO

Freedom of choice enhances our sense of agency. During goal-directed behavior, the freedom to choose between different response options increases the neural processing of positive and negative feedback, indicating enhanced outcome monitoring under conditions of high agency experience. However, it is unclear whether this enhancement is predominantly driven by an increased salience of self- compared to externally determined action outcomes or whether differences in the perceived instrumental value of outcomes contribute to outcome monitoring in goal-directed tasks. To test this, we recorded electroencephalography while participants performed a reinforcement learning task involving free choices, action-relevant forced choices, and action-irrelevant forced choices. We observed larger midfrontal theta power and N100 amplitudes for feedback following free choices compared with action-relevant and action-irrelevant forced choices. In addition, a Reward Positivity was only present for free but not forced choice outcomes. Crucially, our results indicate that enhanced outcome processing is not driven by the relevance of outcomes for future actions but rather stems from the association of outcomes with recent self-determined choice. Our findings highlight the pivotal role of self-determination in tracking the consequences of our actions and contribute to an understanding of the cognitive processes underlying the choice-induced facilitation in outcome monitoring.


Assuntos
Comportamento de Escolha , Eletroencefalografia , Autonomia Pessoal , Humanos , Masculino , Feminino , Comportamento de Escolha/fisiologia , Adulto Jovem , Adulto , Recompensa , Potenciais Evocados/fisiologia , Encéfalo/fisiologia , Aprendizagem/fisiologia , Reforço Psicológico , Ritmo Teta/fisiologia
2.
Scand J Rheumatol ; 53(5): 307-315, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38275151

RESUMO

OBJECTIVE: To identify factors associated with two self-reported measures of physical activity (PA) in patients with rheumatoid arthritis (RA). METHOD: Hospital outpatients with RA from central Norway filled in questionnaires about symptoms, psychological factors, and PA. Outcomes were two alternative self-reported measures of PA: (i) fulfilling the aerobic PA recommendations of ≥ 150 min/week at moderate intensity or ≥ 75 min/week at vigorous intensity; or (ii) being in the PA maintenance stage of the Stages of Exercise Behaviour Change framework. Logistic regression was applied to identify factors associated with PA. Step 1 included the independent variables sex, age, and smoking habits. Step 2a added self-reported function, joint pain during the past 6 months, and fatigue to Step 1. Step 2b added Exercise Self-Efficacy and the Relative Autonomy Index (RAI), calculated from the Behavioural Regulation in Exercise Questionnaire-2, to Step 1. Step 3 included all the mentioned independent variables. Steps 1-3 were analysed for each PA measure. RESULTS: In total, 227 patients participated. The RAI had a statistically significant positive association with being physically active according to both PA definitions. Joint pain had a significant negative association with meeting the aerobic PA recommendations but was not associated with being in the PA maintenance stage. CONCLUSION: The degree of self-determined motivation was the most consistent variable associated with self-reported PA behaviour. Joint pain was associated with one of the two PA measures. Motivation and joint pain may be useful targets for intervention in clinical practice to improve PA engagement among patients with RA.


Assuntos
Artrite Reumatoide , Exercício Físico , Motivação , Humanos , Artrite Reumatoide/psicologia , Artrite Reumatoide/fisiopatologia , Masculino , Feminino , Pessoa de Meia-Idade , Estudos Transversais , Exercício Físico/psicologia , Idoso , Noruega , Autorrelato , Autoeficácia , Adulto , Inquéritos e Questionários , Autonomia Pessoal
3.
Prev Med ; 185: 108039, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38862030

RESUMO

This study examines the association between Afghan women's autonomy (WA) and experience of domestic violence (physical, sexual, and emotional) in the previous 12 months, and whether this association is moderated by education status. We used data from 19,098 married women aged 15-49, who completed the 2015 Afghanistan Demographic and Health Survey- the first and only national survey administered in the country. WA was measured across 5 domains (healthcare, visiting family, household purchases, spending, and contraceptive use). Adjusted odds ratios and 95% confidence intervals for the association between domestic violence in the past 12 months (any vs. none) and WA were estimated using multiple logistic regression and adjusted for covariates. Interaction terms between education status and WA were also assessed. We found that the experience of physical, emotional, and sexual violence was 45% 30%, and 7%, and at least 1 in 2 had no autonomy. After adjustment, compared to women without autonomy, WA in healthcare decisions, spending, visiting families, and household purchases significantly decreased the odds of physical violence. Similarly, WA in healthcare decisions and spending significantly decreased the odds of sexual violence. Lastly, WA in spending and not using contraception was associated with reduced odds of emotional violence. We also found a greater protective effect of WA in visiting family among women with any education across each domestic violence outcome. These findings provide insights into areas for intervention to address gender inequalities (Sustainable Development Goal 3) and mitigate adverse health outcomes for mothers and their children (Goal 5).


Assuntos
Violência Doméstica , Escolaridade , Autonomia Pessoal , Humanos , Feminino , Afeganistão , Adulto , Violência Doméstica/estatística & dados numéricos , Violência Doméstica/psicologia , Adolescente , Pessoa de Meia-Idade , Inquéritos Epidemiológicos , Adulto Jovem
4.
Am J Ther ; 31(5): e541-e549, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38557480

RESUMO

BACKGROUND: The nocebo effect is often disregarded in medical practice and is certainly much less known than the placebo effect, although, in reality, both can influence therapeutic decision making and the quality of life of patients. However, the nocebo effect raises a number of issues not only of a practical nature related to clinical activity but also ethical dilemmas related to the observance of the patient's autonomy, nonmaleficence, or informed consent and the information on which it is based. AREAS OF UNCERTAINTY: The ethical dilemmas raised by the nocebo effect revolve around how informed consent can be achieved, the accuracy and volume of information that is transmitted to the patient, and how to report negative side effects of therapeutic treatment. DATA SOURCES: In September 2023, a narrative analysis of the literature was conducted using a combination of keywords such as nocebo, placebo, ethics, therapeutic relationship from PubMed, Scopus, Google Scholar, and so on, as well as from official documents developed at an international level (World Health Organization), for a period of 10 years (2012-2021). RESULTS: Analyzing the articles that remarked upon the significant impact of ethics in nocebo research or in the therapeutic relationship, we can state that the existence of several relevant issues of interest have been detected regarding the ethical use of nocebo and its impact in research or in clinics and thus the need for proper knowledge and management of the impact of nocebo effects. The ethical paradox of obtaining informed consent with the 2 goals, first, the need for complete information and second, the preservation of the autonomy of the patient, respectively, that of "primum non-nocere" and of avoiding unnecessary harm by revealing probable adverse effects is a point of interest for numerous studies. The potential for a nocebo effect is present when we inform patients about the risks and benefits of treatment, there being a clear link between the moral and ethical duty to inform patients and the need to avoid situations that increase the nocebo impact on how the disease or the adverse effects of the treatment are perceived. Adapting information about the side effects of medicines should focus on ensuring a balance between transparency and caution, especially in patients with a high potential for nocebo effect. CONCLUSIONS: The nocebo effect had for a long time been unknown or denied, although it can interfere with the results of the treatment used. As the nocebo phenomenon becomes increasingly known in medical practice, the clinical and ethical implications are identified by medical staff, and nocebo's adverse responses are no longer ignored.


Assuntos
Consentimento Livre e Esclarecido , Efeito Nocebo , Humanos , Consentimento Livre e Esclarecido/ética , Efeito Placebo , Autonomia Pessoal , Ética Médica , Qualidade de Vida , Viés
5.
Int J Equity Health ; 23(1): 129, 2024 Jun 28.
Artigo em Inglês | MEDLINE | ID: mdl-38937839

RESUMO

Addressing the sexuality of individuals with disabilities is important within the framework of global health and societal inclusivity. Despite comprising 16% of the world's population, this demographic faces sexual autonomy inequality. Acknowledging this intersection is pertinent for achieving inclusive healthcare and upholding the commitments of the 1994 International Conference on Population and Development and the 2006 United Nations Convention on the Rights of Persons with Disabilities. Dispelling stereotypes and promoting dialogue are key to empowering individuals with disabilities and ensuring equitable access to sexual health resources. Integrating sexual health and rights into broader healthcare systems is vital for creating an inclusive society where no one is left behind. This article advocates for the need to address the specific sexual health needs and rights of individuals with disabilities, to implement inclusive policies, and to foster a healthcare environment that respects and supports their autonomy and dignity.


Assuntos
Pessoas com Deficiência , Direitos Humanos , Sexualidade , Humanos , Pessoas com Deficiência/psicologia , Sexualidade/psicologia , Saúde Sexual , Autonomia Pessoal , Saúde Global , Acessibilidade aos Serviços de Saúde
6.
Int J Geriatr Psychiatry ; 39(9): e6142, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-39231810

RESUMO

OBJECTIVES: Timely detection and diagnosis of dementia are beneficial for providing appropriate, anticipatory care and preventing acute situations. However, initiating diagnostic testing is a complex and dynamic process that requires general practitioners (GPs) to balance competing priorities. Previously identified barriers, such as a lack of time, knowledge, and resources, may not fully represent the challenges involved in this process. Therefore, this study aimed to examine GPs' more implicit considerations on starting the diagnostic trajectory for dementia. METHODS: A qualitative study was conducted using semi-structured interviews with 14 Dutch GPs who were purposively selected through maximum variation sampling. The interview transcripts were inductively analyzed in multiple rounds by a multidisciplinary research team using thematic analysis. RESULTS: GPs' considerations on starting the diagnostic trajectory for dementia can be summarized in three main themes that are interconnected: (1) 'the presumed patient's willingness', that is, facing a dilemma of wanting to respect patient autonomy in cases of denial or an absence of a diagnostic request, while at the same time identifying a problem and feeling the urgency to act; (2) 'the GP's attempt not to harm', that is, balancing between not wanting to harm the patient and/or relatives with the burdensome label of dementia and with the possible negative consequences of a late diagnosis; and (3) 'time, trust, and interprofessional collaboration influence timeliness of diagnostic work-up', that is, time available for consultations, time as a diagnostic factor, GP's diagnostic confidence, and trustful physician-patient relationship. CONCLUSIONS: This study revealed that important ethical dilemmas regarding patient autonomy and the principle of doing no harm lie behind practical GP barriers to initiating diagnostic testing for dementia. Time, trust, and interprofessional collaboration were found to facilitate GPs in determining the right decision and timing with each individual patient and their relatives. Future research could explore the value of diagnostic decision aids that explicitly involve patients and their relatives in this balancing act.


Assuntos
Atitude do Pessoal de Saúde , Demência , Clínicos Gerais , Pesquisa Qualitativa , Humanos , Demência/diagnóstico , Demência/psicologia , Feminino , Masculino , Clínicos Gerais/psicologia , Países Baixos , Pessoa de Meia-Idade , Idoso , Adulto , Autonomia Pessoal
7.
Support Care Cancer ; 32(9): 599, 2024 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-39167224

RESUMO

PURPOSE: The aim of this study was to investigate the experiences of living with glioblastoma from the perspective of patients themselves as well as their closest relatives, focusing on the changes in the life situation and the need for support. METHODS: Twenty-two semi-structured interviews were conducted with 12 patients (mean age 61 years, 7 male, 5 female) and 10 relatives (mean age 56 years, 3 male, 7 female). The relatives comprised of partners (n = 7), child (n = 1), sister (n = 1), or friend (n = 1). Questions focused on changes in the life situation and support needed to face these changes. Data was analyzed using inductive qualitative content analysis (QCA). RESULTS: Living with glioblastoma dramatically changes the lives of both patients and relatives. Cognitive symptoms (e.g., speech and memory disturbances), deterioration of physical function (e.g., paresis), and psychological function (e.g., behavioral changes, anxiety) can lead to impaired family dynamics, social isolation, and fear of the future. Support from other family members, friends, and healthcare professionals is crucial. Timely, tangible, and easily available support from the healthcare system the entire disease trajectory is sought after, enabling individualized care with emotional support, clearer information, and faster feedback. CONCLUSION: The changes in life situations faced by patients with glioblastoma and their closest relatives are dramatic and underline the importance of providing integrated care throughout the entire healthcare continuum, encompassing specialist neuro-oncological care, municipal support, and palliative care. Individualized support for both patients and relatives can enhance the sense of safety amid the chaos in their life situation.


Assuntos
Neoplasias Encefálicas , Família , Glioblastoma , Apoio Social , Humanos , Glioblastoma/psicologia , Masculino , Feminino , Pessoa de Meia-Idade , Idoso , Família/psicologia , Neoplasias Encefálicas/psicologia , Isolamento Social/psicologia , Pesquisa Qualitativa , Adulto , Autonomia Pessoal , Entrevistas como Assunto
8.
Conscious Cogn ; 124: 103732, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-39151389

RESUMO

The question of whether free will exists or not has intrigued philosophers for centuries. About 40 years ago, cognitive neuroscientists such as Benjamin Libet have joined the discussion by demonstrating that an ERP component, the readiness potential (RP), precedes the reported time of decision to act by a few hundred milliseconds. Libet et al. (1983) argued that our brains unconsciously prepare the movement before we experience any conscious intention, which led some free will skeptics (e.g., Ebert & Wegner, 2011) to argue that free will does not exist. While Libet's interpretation of his findings initiated an intense philosophical debate, alternative interpretations have been put forward more recently (Bode et al., 2014; Brass et al., 2019; Schurger et al., 2012; 2021). Integration to bound models (ITB) of Libet-style experiments suggest that we accumulate information until an intention threshold is reached, which triggers our experience of intention and execution of voluntary behaviors. The RP, from this perspective reflects the decision process itself rather than the consequence of an unconscious decision. To determine if the ITB model better predicts behavioral patterns in Libet-style experiments, we added a whether-component to the classical Libet task (the Veto Libet task) and compared the behavioral measures in the Veto Libet task with the Classical Libet task. We hypothesized that the signal accumulation in the Veto Libet task would be less steep than in the Classical Libet task, resulting in longer wait times and earlier self-reported intentions to act (i.e., the W). The result in general supported our hypotheses. In addition, these behavioral differences between the Classical Libet task and the Veto Libet task established valuable behavioral correlates for future investigations into the vetoing phenomenon. Finally, this study was also the first application of the Libet task in an online setting, and the behavioral parameters were highly comparable to the previous offline studies, further supporting the possibility of using the online platform to study arbitrary decision-making.


Assuntos
Tomada de Decisões , Eletroencefalografia , Humanos , Adulto , Tomada de Decisões/fisiologia , Masculino , Adulto Jovem , Feminino , Intenção , Modelos Psicológicos , Variação Contingente Negativa/fisiologia , Autonomia Pessoal , Potenciais Evocados/fisiologia
9.
Age Ageing ; 53(5)2024 05 01.
Artigo em Inglês | MEDLINE | ID: mdl-38706392

RESUMO

Cognitive decline, mental health and mindset factors can all affect the autonomy and well-being of older adults. As the number of older adults across the globe increases, interventions to improve well-being are urgently needed. Improvisational theatre (improv) and improv-based interventions are well-suited to address this need. Studies have shown that participation in improv-based interventions has a positive impact on mental health indicators, including depressive symptoms, well-being and social connectedness, as well as cognitive skills such as attention and memory. In addition, improv-based interventions have been beneficial for people with dementia, improving positive affect, self-esteem and communication. In this article, we describe improvisational theatre, or improv, and the reasons it has emerged from a form of spontaneous theatre that involves playfulness and creativity to an important tool to effect behavioural change in individuals and groups. We then review the literature on the effects of improv in ageing populations, with a focus on social, emotional and cognitive functioning. Finally, we make recommendations on designing improv-based interventions so that future research, using rigorous quantitative methods, larger sample sizes and randomised controlled trials, can expand the use of improv in addressing important factors related to autonomy and well-being in older adults.


Assuntos
Envelhecimento , Saúde Mental , Humanos , Envelhecimento/psicologia , Idoso , Cognição , Criatividade , Fatores Etários , Autonomia Pessoal , Emoções , Envelhecimento Saudável/psicologia
10.
Int Urogynecol J ; 35(8): 1585-1591, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38900161

RESUMO

INTRODUCTION AND HYPOTHESIS: Urinary incontinence (UI) is relatively common among middle-aged and elderly women and can have significant impacts on patients' physiological, psychological, and quality-of-life aspects. A higher level of autonomy can encourage better health behaviors in patients, so as to promote rehabilitation of the disease and improve their quality of life. The study is aimed at exploring the level of autonomy and influencing factors among middle-aged and elderly women with UI. METHODS: A cross-sectional study was conducted at a tertiary hospital in Shenzhen, China. Middle-aged and elderly women were asked to complete the Index of Autonomous Functioning scale (IAF), the International Consultation on Incontinence Questionnaire-Urinary Incontinence Short Form (ICIQ-UI SF), and the Urinary Incontinence Quality of Life (I-QOL) scale. Data were collected in January 2024 to March 2024. Descriptive statistics, univariate analysis, bivariate correlation and multivariate linear regression were used to analyze data. RESULTS: A total of 646 women completed the questionnaire. The means and standard deviations (SD) of the IAF section were 45.40 ± 8.92, those of the ICIQ-UI SF section were 11.54 ± 3.67, and those of the I-QOL section were 43.95 ± 9.83. Multivariate linear regression models for the IAF revealed that questionnaire scores were independently associated with family's monthly income, education level, regular exercise, UI severity, and I-QOL score (p < 0.05). CONCLUSIONS: The factors influencing the level of autonomy among middle-aged and elderly women with UI include family's monthly income, education level, regular exercise, UI severity, and I-QOL score. Higher levels of autonomy were observed among women with high family income, high education level, regular exercise habits, mild to moderate UI, and high quality of life.


Assuntos
Autonomia Pessoal , Qualidade de Vida , Incontinência Urinária , Humanos , Feminino , Pessoa de Meia-Idade , Estudos Transversais , Incontinência Urinária/psicologia , Idoso , Inquéritos e Questionários , China/epidemiologia
11.
BMC Pregnancy Childbirth ; 24(1): 566, 2024 Aug 30.
Artigo em Inglês | MEDLINE | ID: mdl-39215211

RESUMO

BACKGROUND: Patient autonomy is central to the provision of respectful maternity care. Enabling women to make decisions free of discrimination and coercion, and respecting their privacy and confidentiality can contribute to positive childbirth experiences. This study aimed to deepen the understanding of how patient autonomy is reflected through social practices during intrapartum care in Benin. METHODS: Semi-structured interviews with women and midwives, a focus-group discussion with women's birth companions, and non-participant observations in the delivery room were conducted within the frame of the ALERT research project. This study analysed data through a reflexive thematic analysis approach, in line with Braun and Clarke. RESULTS: We identified two themes and five sub-themes. Patient autonomy was systemically suppressed over the course of birth as a result of the conditions of care provision, various forms of coercion and women's surrendering of their autonomy. Women used other care practices, such as alternative medicine and spiritual care, to counteract experiences of limited autonomy during intrapartum care. CONCLUSIONS: The results pointed to women's experiences of limited patient autonomy and their use of alternative and spiritual care practices to reclaim their patient autonomy. This study identified spiritual autonomy as an emergent dimension of patient autonomy. Increasing women's autonomy during childbirth may improve their experiences of childbirth, and the provision of quality and respectful maternity care.


Assuntos
Grupos Focais , Autonomia Pessoal , Humanos , Feminino , Benin , Gravidez , Adulto , Pesquisa Qualitativa , Parto/psicologia , Parto Obstétrico/psicologia , Tocologia , Coerção , Serviços de Saúde Materna/normas , Adulto Jovem
12.
BMC Pregnancy Childbirth ; 24(1): 511, 2024 Jul 29.
Artigo em Inglês | MEDLINE | ID: mdl-39075436

RESUMO

BACKGROUND: Testing positive for COVID-19 was associated with higher rates of detrimental psycho-social and physical health outcomes. The COVID-19 pandemic caused unprecedented disruption to everyday life. This included major reconfiguration of maternal, child, and perinatal mental health and care services and provision. This study aimed to investigate the experiences of those who tested positive for COVID-19 during pregnancy, labour and birth, or the early postnatal period. METHODS: National on-line recruitment from across the United Kingdom resulted in sixteen mothers being invited to qualitative semi-structured interviews to understand the experiences of mothers who had been infected by COVID-19 during pregnancy, labour and birth, or the early postnatal period. Interviews were conducted, recorded, and transcribed using video-conferencing software. A Grounded Theory approach was used to analyse the data gathered pertaining to women's experiences of their positive COVID-19 diagnosis during pregnancy, labour and birth, or the early postnatal period. RESULTS: The theory of 'Oscillating Autonomy - Losing and Seeking to Regain Control by Striving for Agency' was developed, comprising three main themes: 'Anxious Anticipation: The fear of infection was worse than COVID-19 itself'; 'Fluctuating Agency: What changed when COVID-19 took control'; and 'Reclaiming Control: Seeking reassurance during COVID-19 positivity'. Testing positive for COVID-19 whilst pregnant, during labour or birth, or in the early postnatal period was associated with a perceived loss of control. Those who were able to regain that control felt more secure in their situation. CONCLUSIONS: Support was paramount to manage increased vulnerability, as was reassurance achieved by information seeking and positive action including increased health monitoring and COVID-19 vaccination.


Assuntos
COVID-19 , Teoria Fundamentada , Complicações Infecciosas na Gravidez , Humanos , Feminino , COVID-19/psicologia , COVID-19/epidemiologia , Gravidez , Adulto , Complicações Infecciosas na Gravidez/psicologia , Reino Unido , Pesquisa Qualitativa , SARS-CoV-2 , Período Pós-Parto/psicologia , Trabalho de Parto/psicologia , Mães/psicologia , Parto/psicologia , Autonomia Pessoal , Medo/psicologia
13.
Neurol Sci ; 45(3): 861-871, 2024 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-37870645

RESUMO

Debates about the concept of Free Will date back to ancient times. About 40 years ago, Benjamin Libet designed an experiment showing that the conscious intention to move is preceded by a specific pattern of brain activation. His finding suggested that unconscious processes determine our decisions. Libet-style experiments have continued to dominate the debate about Free Will, pushing some authors to argue that the existence of Free Will is a mere illusion. We believe that this dispute is because we often measure Free Will using arbitrary human decisions rather than deliberate actions. After reviewing the definition of Free Will and the related literature, we conclude that the scientific evidence does not disprove the existence of Free Will. However, our will encounters several constraints and limitations that should be considered when evaluating our deeds' personal responsibility.


Assuntos
Autonomia Pessoal , Prisioneiros , Humanos , Encéfalo , Estado de Consciência/fisiologia , Intenção , Volição/fisiologia
14.
Med Educ ; 58(1): 118-128, 2024 01.
Artigo em Inglês | MEDLINE | ID: mdl-37593835

RESUMO

THE PROBLEM: Medical schools require highly skilled and committed clinical faculty to teach, assess, supervise and mentor students' clinical care. Medical education is facing a crisis in recruiting and sustaining these clinical teachers. Faced with multiple demands and responsibilities in fast-paced clinical environments, teachers may not have the time, resources or stamina to sustain these critical roles. Medical school leaders must commit to and provide structures and processes to attract, sustain and retain clinical teachers. CONCEPTUAL FRAMEWORK: The authors use the lens of self-determination theory to frame approaches to support teacher sustainability. Self-determination theory describes sources of human motivation. The theory and its evidence base characterise three human psychological needs: autonomy, competence, and relatedness. This theory can bridge individual psychological and institutional leadership perspectives to help medical school leaders anticipate and respond to their clinical teachers' needs. The authors propose three practical steps: practices to advance employee-centredness, processes to align individual and institutional values, and restructuring education to support clinical teachers' needs alongside student and patient needs. The authors describe limitations to this relational approach that focuses on leadership actions and consider individual agency as another key factor for sustainability. DISCUSSION: Medical school leaders can develop and apply theory-driven approaches to advance sustainability. Sustainability now and in the future requires careful attention to the needs of clinical teachers and to their relationships with and within medical schools.


Assuntos
Educação Médica , Faculdades de Medicina , Humanos , Estudantes/psicologia , Autonomia Pessoal , Motivação
15.
Arch Phys Med Rehabil ; 105(9): 1649-1656, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38851554

RESUMO

OBJECTIVE: To determine if the receipt of occupational performance coaching (OPC) by adults living with multiple sclerosis (MS) improves participants' satisfaction with performance in daily activities (primary outcome); improves perceived performance in daily activities, resilience, autonomy, and participation; and reduces illness intrusiveness and effect of MS (secondary outcomes). DESIGN: Two-group randomized clinical trial with a waitlist control. SETTING: Community. PARTICIPANTS: Convenience sample of adults with MS were recruited through a research registry. Eighty-three individuals were approached; 35 were assessed for eligibility and 31 were enrolled and 30 completed baseline assessment (Final sample size, N=30). Participants were English-speaking, were without serious cognitive impairment or severe depression, and were not receiving other coaching interventions. INTERVENTIONS: Six telephone sessions of OPC were delivered by a trained facilitator over 10 weeks. Initial sessions focused on goal setting, prioritization, and action planning. Subsequent sessions involved goal and action plan review, discussion of facilitators and barriers, and goal and plan refinement. MAIN OUTCOME MEASURES: Primary outcome was participants' satisfaction with performance in daily activities, as measured by the Canadian Occupational Performance Measure (COPM). Secondary outcome measures included the COPM performance rating, Connor-Davidson Resilience Scale, Impact on Participation and Autonomy Questionnaire, Adapted Illness Intrusiveness Rating Scale, and MS Impact Scale. Measures were administered by a blinded assessor at baseline, 10 weeks, and 2 months. RESULTS: Participants in the intervention and waitlist control groups were equivalent on demographic and outcome measures at baseline. At 10 weeks, the intervention group had significantly higher COPM ratings for both satisfaction (P<.001) and performance (P=.002). No other outcomes were significantly different. For the intervention group, the benefits of OPC were maintained at 2 months. CONCLUSIONS: OPC led to improved satisfaction with performance and performance in daily activities. Future research with a larger sample is needed to determine other effects and who benefits most from OPC.


Assuntos
Atividades Cotidianas , Tutoria , Esclerose Múltipla , Terapia Ocupacional , Humanos , Esclerose Múltipla/reabilitação , Esclerose Múltipla/psicologia , Masculino , Feminino , Pessoa de Meia-Idade , Terapia Ocupacional/métodos , Adulto , Tutoria/métodos , Satisfação do Paciente , Resiliência Psicológica , Objetivos , Autonomia Pessoal
16.
J Med Ethics ; 50(3): 195-200, 2024 Feb 20.
Artigo em Inglês | MEDLINE | ID: mdl-37137696

RESUMO

Disease radically changes the life of many people and satisfies formal criteria for being a transformative experience. According to the influential philosophy of Paul, transformative experiences undermine traditional criteria for rational decision-making. Thus, the transformative experience of disease can challenge basic principles and rules in medical ethics, such as patient autonomy and informed consent. This article applies Paul's theory of transformative experience and its expansion by Carel and Kidd to investigate the implications for medical ethics. It leads to the very uncomfortable conclusion that disease involves transformative experiences in ways that can reduce people's rational decision-making ability and undermine the basic principle of respect for autonomy and the moral rule of informed consent. While such cases are limited, they are crucial for medical ethics and health policy and deserve more attention and further scrutiny.


Assuntos
Consentimento Livre e Esclarecido , Autonomia Pessoal , Humanos , Ética Médica , Princípios Morais , Filosofia
17.
J Med Ethics ; 50(7): 498-500, 2024 Jun 21.
Artigo em Inglês | MEDLINE | ID: mdl-38290854

RESUMO

Resnik and Pugh recently explored the ethical implications of routinely integrating environmental concerns into clinical decision-making. While we share their concern for the holistic well-being of patients, our response offers a different clinical and bioethical stance on green informed consent and patient autonomy. Contrary to the authors' lack of data to support their concerns about provider and patient willingness to engage in climate-related conversations, we provide evidence supporting their sustainability engagement and stress the importance of a proactive, anticipatory approach in healthcare to align with evolving societal values. If climate change is perceived as a politicised issue, though it is not inherently so, healthcare providers are professionally trained to address sensitive subjects and have a duty to inform patients about potential health risks. Recognising the environmental crisis as a health crisis underscores the direct connection between environmental hazards and patients' well-being. Our perspective advocates for integrating individual considerations, societal responsibilities and systemic changes to promote environmentally sustainable healthcare.


Assuntos
Mudança Climática , Tomada de Decisão Clínica , Consentimento Livre e Esclarecido , Autonomia Pessoal , Humanos , Consentimento Livre e Esclarecido/ética , Tomada de Decisão Clínica/ética , Conservação dos Recursos Naturais
18.
Scand J Med Sci Sports ; 34(4): e14616, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-38553779

RESUMO

PURPOSE: The purpose of this prospective cohort study was to investigate the influence of types of motivation, basic psychological needs satisfaction and of a coach-created motivational climate on continued participation in youth sports across types of sport, competitive levels, ages, and gender. METHODS: Participants were 7110 adolescent (age 12-20 years) members of leisure time club organized in basketball, handball, football, badminton, and gymnastics in Denmark. Motivational regulation was measured with BRSQ-6, basic psychological needs satisfaction and frustration were measured with PNSS-S, and coach-created climate was measured with the EDMCQ-C. The participants' continuation or dropout was measured at the beginning of the following season with a short electronic questionnaire. RESULTS: Intrinsic motivation, identified behavior regulation, experiences of competence, relatedness, and autonomy, as well as a coach-created empowering motivational climate, were associated with continuation both in the sport and in the club the following season across different sports, genders, age groups, and competitive levels. Introjected and external behavior regulation, frustrations with the need to experience competence, relatedness, and autonomy, as well as a disempowering coach-created climate, were associated with dropout. CONCLUSION: In Danish youth sports, autonomous motivation, satisfaction of basic psychological needs, and an empowering coach-created motivational climate have a positive impact on the continuation of the sport and the club the following season. In contrast, controlled types of motivation, needs frustration, and a disempowering coach-created climate are associated with dropout. This is the case at both elite and recreational levels, for boys and girls, adolescents, and youth.


Assuntos
Futebol Americano , Motivação , Adolescente , Humanos , Masculino , Feminino , Criança , Adulto Jovem , Adulto , Estudos Prospectivos , Dinamarca , Satisfação Pessoal , Autonomia Pessoal
19.
J Exp Child Psychol ; 247: 106034, 2024 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-39128444

RESUMO

We conducted a time series analysis of parents' autonomy supportive and directive language and parents' and children's STEM (science, technology, engineering, and mathematics) talk during and after a problem-solving activity (i.e., tinkering). Parent and child dyads (N = 61 children; Mage = 8.10 years; 31 boys; 54% White) were observed at home via Zoom. After tinkering, a researcher elicited children's reflections, and approximately 2 weeks later dyads reminisced together about the experience. During tinkering, the more autonomy supportive STEM talk parents used in 1 min, the more children talked about STEM in the next minute. During reminiscing, parents' autonomy support was also associated with children's STEM talk. Results suggest the importance of considering how both the content and style of parents' talk can support children's STEM engagement.


Assuntos
Engenharia , Matemática , Relações Pais-Filho , Autonomia Pessoal , Ciência , Tecnologia , Humanos , Masculino , Feminino , Criança , Matemática/educação , Pais/psicologia , Poder Familiar/psicologia , Idioma , Adulto , Resolução de Problemas
20.
BMC Public Health ; 24(1): 327, 2024 01 30.
Artigo em Inglês | MEDLINE | ID: mdl-38291408

RESUMO

OBJECTIVE: Guided by Self-Determination Theory, this study aimed to examine the potential mediating effects of autonomous and controlled motivations on physical activity (PA) experiences of afterschool program (ASP) staff with occupational stress. METHOD: A total of 58 ASP staff provided full data. Staff occupational stress and self-determination motivations for PA were assessed. Participants' daily moderate-to-vigorous physical activity (MVPA) was measured using accelerometer wear. A path analysis was used to address the research purpose. RESULTS: Occupational stress negatively and indirectly predicted daily MVPA which was mediated by controlled motivation (ß = - 4.15, p <.05). Autonomous motivation directly and positively predicted daily MVPA across all types and levels of ASP staff occupational stress (ß = 9.93, p =.01). CONCLUSIONS: Autonomous motivation is a powerful predictor of staff PA levels despite the degree to which they experience stress. In contrast, controlled motivations are more vulnerable to occupational stress, and can lead to lower MVPA. TRIAL REGISTRATION: Connect Through PLAY: A Staff-based Physical Activity Intervention for Middle School Youth (Connect). https://clinicaltrials.gov/ct2/show/NCT03732144 . Registered 11/06/2018. REGISTRATION NUMBER: NCT03732144.


Assuntos
Exercício Físico , Motivação , Adolescente , Humanos , Autonomia Pessoal , Instituições Acadêmicas
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