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Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing?
McConkie-Rosell, Allyn; Hooper, Stephen R; Pena, Loren D M; Schoch, Kelly; Spillmann, Rebecca C; Jiang, Yong-Hui; Cope, Heidi; Palmer, Christina; Shashi, Vandana.
Affiliation
  • McConkie-Rosell A; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA. allyn.mcconkie@duke.edu.
  • Hooper SR; Department of Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
  • Pena LDM; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
  • Schoch K; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
  • Spillmann RC; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
  • Jiang YH; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
  • Cope H; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
  • Palmer C; Departments of Psychiatry and Biobehavioral Sciences, Human Genetics, and Institute for Society and Genetics, UCLA, Los Angeles, CA, USA.
  • Shashi V; Division of Medical Genetics, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
J Genet Couns ; 27(4): 935-946, 2018 08.
Article in En | MEDLINE | ID: mdl-29297108
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Full text: 1 Database: MEDLINE Main subject: Parents / Child Welfare / Rare Diseases / Uncertainty Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Child / Female / Humans / Male / Middle aged Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2018 Type: Article Affiliation country: United States
Fulltext
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Full text: 1 Database: MEDLINE Main subject: Parents / Child Welfare / Rare Diseases / Uncertainty Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Child / Female / Humans / Male / Middle aged Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2018 Type: Article Affiliation country: United States