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Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study.
Resseguier, Noémie; Rosso-Delsemme, Natacha; Beltran Anzola, Any; Baumstarck, Karine; Milien, Vanessa; Ardillon, Laurent; Bayart, Sophie; Berger, Claire; Bertrand, Marie-Anne; Biron-Andreani, Christine; Borel-Derlon, Annie; Castet, Sabine; Chamouni, Pierre; Claeyssens Donadel, Ségolène; De Raucourt, Emmanuelle; Desprez, Dominique; Falaise, Céline; Frotscher, Birgit; Gay, Valérie; Goudemand, Jenny; Gruel, Yves; Guillet, Benoît; Harroche, Annie; Hassoun, Abel; Huguenin, Yoann; Lambert, Thierry; Lebreton, Aurélien; Lienhart, Anne; Martin, Michèle; Meunier, Sandrine; Monpoux, Fabrice; Mourey, Guillaume; Negrier, Claude; Nguyen, Philippe; Nyombe, Placide; Oudot, Caroline; Pan-Petesch, Brigitte; Polack, Benoît; Rafowicz, Anne; Rauch, Antoine; Rivaud, Delphine; Schneider, Pascale; Spiegel, Alexandra; Stoven, Cecile; Tardy, Brigitte; Trossaërt, Marc; Valentin, Jean-Baptiste; Vanderbecken, Stéphane; Volot, Fabienne; Voyer-Ebrard, Annelise.
Affiliation
  • Resseguier N; CERESS, Aix Marseille University, Marseille, France.
  • Rosso-Delsemme N; LPCPP, Aix Marseille Unviersity, Aix-en-Provence, France.
  • Beltran Anzola A; Department of Paediatric Haematology, Children Hospital La Timone, , APHM, Marseille, France.
  • Baumstarck K; CERESS, Aix Marseille University, Marseille, France.
  • Milien V; CERESS, Aix Marseille University, Marseille, France.
  • Ardillon L; FranceCoag Network, Marseille, France.
  • Bayart S; Department of Paediatric Haematology, Children Hospital La Timone, , APHM, Marseille, France.
  • Berger C; FranceCoag Network, Marseille, France.
  • Bertrand MA; Haemophilia Treatment Centre, University Hospital of Tours, Tours, France.
  • Biron-Andreani C; Haemophilia Treatment Centre, University Hospital of Rennes, Rennes, France.
  • Borel-Derlon A; Haemophilia Treatment Centre, University Hospital of Saint-Etienne, Saint-Etienne, France.
  • Castet S; Haemophilia Treatment Centre, University Hospital of Besançon, Besançon, France.
  • Chamouni P; Haemophilia Treatment Centre, University Hospital of Montpellier, Montpellier, France.
  • Claeyssens Donadel S; Haemophilia Treatment Centre, University Hospital of Caen, Caen, France.
  • De Raucourt E; Haemophilia Treatment Centre, University Hospital of Bordeaux, Bordeaux, France.
  • Desprez D; Haemophilia Treatment Centre, University Hospital of Rouen, Rouen, France.
  • Falaise C; Haemophilia Treatment Centre, University Hospital of Toulouse, Toulouse, France.
  • Frotscher B; Haemophilia Treatment Centre, Hospital of Versailles, Versailles, France.
  • Gay V; Haemophilia Treatment Centre, University Regional Hospital of Strasbourg, Strasbourg, France.
  • Goudemand J; Department of Paediatric Haematology, Children Hospital La Timone, , APHM, Marseille, France.
  • Gruel Y; Haemophilia Treatment Centre, University Hospital of Nancy, Nancy, France.
  • Guillet B; Haemophilia Treatment Centre, Hospital of Chambery, Chambery, France.
  • Harroche A; Haemophilia Treatment Centre, University Regional Hospital of Lille, Lille, France.
  • Hassoun A; Haemophilia Treatment Centre, University Hospital of Tours, Tours, France.
  • Huguenin Y; Haemophilia Treatment Centre, University Hospital of Rennes, Rennes, France.
  • Lambert T; Haemophilia Treatment Centre, Hospital Necker, Assistance Publique-Hopitaux de Paris, Paris, France.
  • Lebreton A; Haemophilia Treatment Centre, Hospital of Simone Veil d'Eaubonne, Montmorency, France.
  • Lienhart A; Haemophilia Treatment Centre, University Hospital of Bordeaux, Bordeaux, France.
  • Martin M; Haemophilia Treatment Centre, Hospital Bicêtre, Assistance Publique-Hopitaux de Paris, Paris, France.
  • Meunier S; Haemophilia Treatment Centre, University Hospital of Clermont-Ferrand, Clermont-Ferrand, France.
  • Monpoux F; Haemophilia Treatment Centre, Hospital Edouard Herriot, University Hospital of Lyon, Lyon, France.
  • Mourey G; Haemophilia Treatment Centre, University Hospital of Nancy, Nancy, France.
  • Negrier C; Haemophilia Treatment Centre, Hospital Edouard Herriot, University Hospital of Lyon, Lyon, France.
  • Nguyen P; Haemophilia Treatment Centre, University Hospital of Nice, Nice, France.
  • Nyombe P; Haemophilia Treatment Centre, University Hospital of Besançon, Besançon, France.
  • Oudot C; Haemophilia Treatment Centre, Hospital Edouard Herriot, University Hospital of Lyon, Lyon, France.
  • Pan-Petesch B; Haemophilia Treatment Centre, University Hospital of Reims, Reims, France.
  • Polack B; Haemophilia Treatment Centre, University Hospital of Reunion, Reunion Island, France.
  • Rafowicz A; Haemophilia Treatment Centre, University Hospital of Limoges, Limoges, France.
  • Rauch A; Haemophilia Treatment Centre, University Hospital of Brest, Brest, France.
  • Rivaud D; Haemophilia Treatment Centre, University Hospital of Grenoble, Grenoble, France.
  • Schneider P; Haemophilia Treatment Centre, Hospital of Versailles, Versailles, France.
  • Spiegel A; Haemophilia Treatment Centre, Hospital Bicêtre, Assistance Publique-Hopitaux de Paris, Paris, France.
  • Stoven C; Haemophilia Treatment Centre, University Regional Hospital of Lille, Lille, France.
  • Tardy B; Haemophilia Treatment Centre, University Hospital of Reunion, Reunion Island, France.
  • Trossaërt M; Haemophilia Treatment Centre, University Hospital of Rouen, Rouen, France.
  • Valentin JB; Haemophilia Treatment Centre, University Regional Hospital of Strasbourg, Strasbourg, France.
  • Vanderbecken S; Haemophilia Treatment Centre, University Hospital of Reunion, Reunion Island, France.
  • Volot F; Haemophilia Treatment Centre, University Hospital of Saint-Etienne, Saint-Etienne, France.
  • Voyer-Ebrard A; Haemophilia Treatment Centre, University Hospital of Nantes, Nantes, France.
BMJ Open ; 8(7): e022409, 2018 07 25.
Article in En | MEDLINE | ID: mdl-30049701
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Full text: 1 Database: MEDLINE Main subject: Transition to Adult Care / Treatment Adherence and Compliance / Hemophilia A Type of study: Clinical_trials / Etiology_studies / Guideline / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Limits: Adolescent / Adult / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: BMJ Open Year: 2018 Type: Article Affiliation country: France
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Full text: 1 Database: MEDLINE Main subject: Transition to Adult Care / Treatment Adherence and Compliance / Hemophilia A Type of study: Clinical_trials / Etiology_studies / Guideline / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Limits: Adolescent / Adult / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: BMJ Open Year: 2018 Type: Article Affiliation country: France