Your browser doesn't support javascript.
loading
The Willingness of Patients to Participate in an Eye Donation Registry for Research.
Huss, Muriel B; Schmitz-Valckenberg, Steffen; Finger, Robert P; Löffler, Karin U; Fleckenstein, Monika; Holz, Frank G; Pfau, Maximilian.
Affiliation
  • Huss MB; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
  • Schmitz-Valckenberg S; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany, steffen.schmitz-valckenberg@ukbonn.de.
  • Finger RP; GRADE Reading Center, Bonn, Germany, steffen.schmitz-valckenberg@ukbonn.de.
  • Löffler KU; John A. Moran Eye Center, University of Utah, Salt Lake, Utah, USA, steffen.schmitz-valckenberg@ukbonn.de.
  • Fleckenstein M; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
  • Holz FG; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
  • Pfau M; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
Ophthalmologica ; 244(3): 179-186, 2021.
Article in En | MEDLINE | ID: mdl-33316801
ABSTRACT

INTRODUCTION:

For ophthalmologic research, the systematic correlation of clinical data with data obtained from postmortem tissue donation is of great benefit. In this respect, the establishment of an eye donation registry represents a prerequisite for the acquisition of such data.

METHODS:

A total of 300 patients were interviewed at a tertiary referral center in Germany by means of a standardized questionnaire. Binary questions were evaluated by percentage; Likert-scaled questions (1 = does apply; 5 = does not apply) were analyzed by the median and 25th (Q25) and 75th (Q75) percentiles.

RESULTS:

The majority of patients (77.0%) would agree to donate their eyes for research purposes. When asked about reasons against an eye donation, 60.9% of all patients only stated reasons in the category "addressable" (e.g., not enough awareness of the topic). The vast majority of patients considered it appropriate for an ophthalmologist to approach them on the issue of postmortem eye donation (median 1, Q25 1, Q75 1).

CONCLUSION:

Overall, patients had a positive attitude towards postmortem eye donation for research purposes. Importantly, reasons given against postmortem eye donation were often related to misconceptions and were potentially addressable. These results underline the fundamental willingness of ophthalmological patients in Germany to donate their eyes postmortem for research purposes.
Subject(s)
Key words

Full text: 1 Database: MEDLINE Main subject: Tissue and Organ Procurement Limits: Humans Country/Region as subject: Europa Language: En Journal: Ophthalmologica Year: 2021 Type: Article Affiliation country: Germany

Full text: 1 Database: MEDLINE Main subject: Tissue and Organ Procurement Limits: Humans Country/Region as subject: Europa Language: En Journal: Ophthalmologica Year: 2021 Type: Article Affiliation country: Germany