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The impact of demographic and clinical characteristics on the trajectories of health-related quality of life among patients with Fabry disease.
Sigurdardottir, Solrun; Bjerkely, Birgitte; Jenssen, Trond G; Mathisen, Per; von der Lippe, Charlotte; Ørstavik, Kristin; Heimdal, Ketil; Dahle, Dag Olav; Weedon-Fekjær, Mina Susanne; Solberg, Olga; Pihlstrøm, Hege K.
Affiliation
  • Sigurdardottir S; Centre for Rare Disorders, Oslo University Hospital, Postboks 4950 Nydalen, 0424, Oslo, Norway. sosigu@ous-hf.no.
  • Bjerkely B; Centre for Rare Disorders, Oslo University Hospital, Postboks 4950 Nydalen, 0424, Oslo, Norway.
  • Jenssen TG; Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology, Oslo University Hospital, Rikshospitalet HF, Oslo, Norway.
  • Mathisen P; Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Oslo, Norway.
  • von der Lippe C; Department of Cardiology, Oslo University Hospital, Rikshospitalet HF, Oslo, Norway.
  • Ørstavik K; Centre for Rare Disorders, Oslo University Hospital, Postboks 4950 Nydalen, 0424, Oslo, Norway.
  • Heimdal K; Department of Neurology, Section for Rare Neuromuscular Disorders, Oslo University Hospital, Rikshospitalet HF, Oslo, Norway.
  • Dahle DO; Department of Medical Genetics, Oslo University Hospital, Rikshospitalet HF, Oslo, Norway.
  • Weedon-Fekjær MS; Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology, Oslo University Hospital, Rikshospitalet HF, Oslo, Norway.
  • Solberg O; Centre for Rare Disorders, Oslo University Hospital, Postboks 4950 Nydalen, 0424, Oslo, Norway.
  • Pihlstrøm HK; Centre for Rare Disorders, Oslo University Hospital, Postboks 4950 Nydalen, 0424, Oslo, Norway.
Orphanet J Rare Dis ; 16(1): 427, 2021 10 12.
Article in En | MEDLINE | ID: mdl-34641933
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Full text: 1 Database: MEDLINE Main subject: Quality of Life / Fabry Disease Type of study: Observational_studies / Prognostic_studies / Qualitative_research Limits: Adult / Aged / Female / Humans / Male / Middle aged Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Norway
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Full text: 1 Database: MEDLINE Main subject: Quality of Life / Fabry Disease Type of study: Observational_studies / Prognostic_studies / Qualitative_research Limits: Adult / Aged / Female / Humans / Male / Middle aged Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Norway