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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries.
Milne, Richard; Morley, Katherine I; Almarri, Mohamed A; Atutornu, Jerome; Baranova, Elena E; Bevan, Paul; Cerezo, Maria; Cong, Yali; Costa, Alessia; Feijao, Carolina; de Freitas, Cláudia; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, Heidi C; Hussain Sheikh, Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L; Jedrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A; Smith, James; Soulier, Alexandra; Steed, Claire; Stefànsdóttir, Vigdis; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H; Wang, Nan; Yoshizawa, Go; Middleton, Anna.
Affiliation
  • Milne R; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom; Cambridge Public Health, University of Cambridge, Cambridge, United Kingdom. Electronic address: rm23@sanger.ac.uk.
  • Morley KI; RAND Europe, Cambridge, United Kingdom; Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom; Centre for Epidemiology and Biostatistics, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.
  • Almarri MA; Wellcome Sanger Institute, Cambridge, United Kingdom; Department of Forensic Science and Criminology, Dubai Police GHQ, Dubai, United Arab Emirates.
  • Atutornu J; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom.
  • Baranova EE; Russian Medical Academy of Continuous Professional Education, Moscow, Russia.
  • Bevan P; Wellcome Sanger Institute, Cambridge, United Kingdom.
  • Cerezo M; EMBL-EBI, Wellcome Genome Campus, Cambridge, United Kingdom.
  • Cong Y; Medical Ethics Program, Peking University Health Science Center, Beijing, China.
  • Costa A; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom.
  • Feijao C; RAND Europe, Cambridge, United Kingdom.
  • de Freitas C; EPIUnit - Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal; Laboratório para a Investigação Integrativa e Translacional em Saúde Populacional (ITR), Porto, Portugal.
  • Fernow J; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden.
  • Goodhand P; Ontario Institute for Cancer Research, MaRS Centre, Toronto, Ontario, Canada.
  • Hasan Q; Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India; SAAZ Genetics, Hyderabad, India.
  • Hibino A; Faculty of Humanities and Social Sciences, Hirosaki University, Hirosaki, Japan.
  • Houeland G; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden.
  • Howard HC; Medical Ethics, Department of Clinical Sciences, Faculty of Medicine, Lund Universitet, Lund, Sweden; Division of Industrial Biotechnology, Department of Biology and Biological Engineering, Chalmers University of Technology, Gothenburg, Sweden.
  • Hussain Sheikh Z; SAAZ Genetics, Hyderabad, India.
  • Malmgren CI; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden; Department of Molecular Medicine and Surgery, Karolinska Institutet, Solna, Sweden.
  • Izhevskaya VL; Research Centre for Medical Genetics, Moscow, Russia.
  • Jedrzejak A; Independent Scholar, Warsaw, Poland.
  • Jinhong C; Department of Epidemiology and Biostatistics, School of Health Sciences, Wuhan University, Wuhan, China.
  • Kimura M; Institute of Innovation Research, Hitotsubashi University, Tokyo, Japan.
  • Kleiderman E; Centre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.
  • Liu K; Public Health, Department of Social Medicine, Graduate School of Medicine, Faculty of Medicine, Osaka University, Osaka, Japan; School of Public Health, Peking University Health Science Center, Beijing, China.
  • Mascalzoni D; Institute for Biomedicine, Eurac Research, Affiliated Institute of the University of Lübeck, Bolzano, Italy; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden.
  • Mendes Á; UnIGENe and CGPP-Centre for Predictive and Preventive Genetics, IBMC-Institute for Molecular and Cell Biology, i3S-Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Porto, Portugal.
  • Minari J; Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA), Kyoto University, Kyoto, Japan.
  • Nicol D; Centre for Law and Genetics, University of Tasmania, Hobart, Tasmania, Australia.
  • Niemiec E; Medical Ethics, Department of Clinical Sciences, Faculty of Medicine, Lund Universitet, Lund, Sweden.
  • Patch C; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom; Genomics England, Queen Mary University of London, London, United Kingdom.
  • Prainsack B; Department of Political Science, University of Vienna, Vienna, Austria; Department of Global Health & Social Medicine, School of Global Affairs, King's College London, London, United Kingdom.
  • Rivière M; DILTEC, Sorbonne Nouvelle, Paris, France.
  • Robarts L; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom.
  • Roberts J; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom.
  • Romano V; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden; Institute for Biomedicine, Eurac Research, Affiliated Institute of the University of Lübeck, Bolzano, Italy.
  • Sheerah HA; Public Health, Department of Social Medicine, Graduate School of Medicine, Faculty of Medicine, Osaka University, Osaka, Japan.
  • Smith J; Wellcome Sanger Institute, Cambridge, United Kingdom.
  • Soulier A; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden.
  • Steed C; Wellcome Sanger Institute, Cambridge, United Kingdom.
  • Stefànsdóttir V; Landspitali, The National University Hospital of Iceland, Reykjavík, Iceland.
  • Tandre C; Centre for Research Ethics & Bioethics (CRB), Uppsala University, Uppsala, Sweden.
  • Thorogood A; Centre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Quebec, Canada; ELIXIR-LU and Bioinformatics Core, Luxembourg Centre for Systems Biomedicine, University of Luxembourg, Esch-sur-Alzette, Luxembourg.
  • Voigt TH; Institute of Sociology, RWTH Aachen University, Aachen, Germany.
  • Wang N; Medical Ethics Program, Peking University Health Science Center, Beijing, China.
  • Yoshizawa G; Work Research Institute (AFI), Oslo Metropolitan University, Oslo, Norway.
  • Middleton A; Engagement and Society, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom; The Faculty of Education, University of Cambridge, Cambridge, United Kingdom.
Genet Med ; 24(5): 1120-1129, 2022 05.
Article in En | MEDLINE | ID: mdl-35125311
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Full text: 1 Database: MEDLINE Main subject: Attitude / Genomics Limits: Humans Country/Region as subject: America do norte Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2022 Type: Article
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Full text: 1 Database: MEDLINE Main subject: Attitude / Genomics Limits: Humans Country/Region as subject: America do norte Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2022 Type: Article