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Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project.
Pereira, Stacey; Gutierrez, Amanda M; Robinson, Jill Oliver; Christensen, Kurt D; Genetti, Casie A; Blout Zawatsky, Carrie L; Hsu, Rebecca L; Zettler, Bethany; Uveges, Melissa Kurtz; Parad, Richard B; Beggs, Alan H; Holm, Ingrid A; Green, Robert C; McGuire, Amy L.
Affiliation
  • Pereira S; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX. Electronic address: spereira@bcm.edu.
  • Gutierrez AM; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
  • Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
  • Christensen KD; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine at Harvard Pilgrim Health Care Institute, Boston, MA; Department of Population Medicine, Harvard Medical School, Boston, MA.
  • Genetti CA; Division of Genetics and Genomics, The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, MA.
  • Blout Zawatsky CL; Division of Genetics, Department of Medicine, Brigham and Women's Hospital, Boston, MA; Medical and Population Genetics, The Broad Institute, Cambridge, MA; Brigham and Women's Hospital and the Harvard T.H. Chan School of Public Health, Ariadne Labs, Boston, MA; The MGH Institute of Health Professio
  • Hsu RL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
  • Zettler B; Division of Genetics, Department of Medicine, Brigham and Women's Hospital, Boston, MA.
  • Uveges MK; Connell School of Nursing, Boston College, Chestnut Hill, MA.
  • Parad RB; Department of Pediatrics, Harvard Medical School, Boston, MA; Department of Pediatric Newborn Medicine, Brigham and Women's Hospital, Boston, MA.
  • Beggs AH; Division of Genetics and Genomics, The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, MA; Harvard Medical School, Boston, MA; The Broad Institute of MIT and Harvard, Cambridge, MA.
  • Holm IA; Division of Genetics and Genomics, The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, MA; Department of Pediatrics, Harvard Medical School, Boston, MA; Harvard Medical School, Boston, MA; The Broad Institute of MIT and Harvard, Cambridge, MA.
  • Green RC; Division of Genetics, Department of Medicine, Brigham and Women's Hospital, Boston, MA; Brigham and Women's Hospital and the Harvard T.H. Chan School of Public Health, Ariadne Labs, Boston, MA; Harvard Medical School, Boston, MA; The Broad Institute of MIT and Harvard, Cambridge, MA.
  • McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
Genet Med ; 25(3): 100002, 2023 03.
Article in En | MEDLINE | ID: mdl-36549595
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Full text: 1 Database: MEDLINE Main subject: Parents / Genetic Testing Type of study: Diagnostic_studies / Guideline / Prognostic_studies / Qualitative_research Limits: Adult / Child / Humans / Newborn Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2023 Type: Article
Fulltext
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Full text: 1 Database: MEDLINE Main subject: Parents / Genetic Testing Type of study: Diagnostic_studies / Guideline / Prognostic_studies / Qualitative_research Limits: Adult / Child / Humans / Newborn Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2023 Type: Article