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A qualitative focus group analysis: Increasing fieldwork capacity in genetic counseling training programs.
Jirik, Rebecca; Redlinger-Grosse, Krista; Davis, Claire; Nusbaum, Rachel; Reiser, Catherine; Berninger, Taylor.
Affiliation
  • Jirik R; Department of Genetic Counseling, Augustana University, Sioux Falls, South Dakota, USA.
  • Redlinger-Grosse K; Clinical Genomics, Mayo Clinic, Eau Claire, Wisconsin, USA.
  • Davis C; Department of Genetics, Cell Biology, and Development, Institute of Human Genetics, University of Minnesota, Minneapolis, Minnesota, USA.
  • Nusbaum R; Joan H. Marks Graduate Program in Human Genetics, Sarah Lawrence College, Bronxville, New York, USA.
  • Reiser C; Department of Pediatrics, University of Maryland School of Medicine, Baltimore, Maryland, USA.
  • Berninger T; Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.
J Genet Couns ; 33(1): 71-85, 2024 02.
Article in En | MEDLINE | ID: mdl-38361377
ABSTRACT
Genetic counselors are an integral part of the healthcare system; however, the number of genetic counselors in many parts of the United States is limited, impacting access to comprehensive healthcare for all patients. One solution to addressing this deficit includes modifying genetic counseling training programs to increase student enrollment. Fieldwork capacity, driven by a limited number of rotation sites and supervisors, produces a significant bottleneck to entering the profession. Other professions have reported on techniques to increase fieldwork capacity; however, the practicality of these techniques for genetic counseling training has yet to be explored. This study seeks to investigate the perspectives of key stakeholders in genetic counseling training programs on the practicality of techniques already posited in the literature from other allied health professions. Semi-structured focus group interviews with 25 participants were conducted at the 2019 National Society of Genetic Counselors conference. Participants included program directors and supervisors from clinical, industry, and laboratory backgrounds. The focus group responses were analyzed using directed content analysis and a split coding technique, after which several themes emerged within the larger domains of rotation structures, systems infrastructure, skill-building methods, and other novel techniques to increase fieldwork capacity. Emerging themes included the importance of finding quality student placements rather than maximizing the quantity of participatory cases; a need for transparency about the transferability of skills learned from novel experiences; scaffolding student entrustment to expand supervisor capacity; and recognizing nuances in implementation for individual programs. Overall, the results emphasize the importance of openness in communication to manage expectations for students and supervisors, who may be more hesitant to try novel rotation placements and skill-building techniques. Genetic counseling programs may use these results to address the bottleneck of fieldwork capacity, increasing student enrollment.
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Full text: 1 Database: MEDLINE Main subject: Students / Genetic Counseling Type of study: Qualitative_research Limits: Humans Language: En Journal: J Genet Couns / J. genet. couns / Journal of genetic counseling Journal subject: GENETICA MEDICA Year: 2024 Type: Article Affiliation country: United States

Full text: 1 Database: MEDLINE Main subject: Students / Genetic Counseling Type of study: Qualitative_research Limits: Humans Language: En Journal: J Genet Couns / J. genet. couns / Journal of genetic counseling Journal subject: GENETICA MEDICA Year: 2024 Type: Article Affiliation country: United States