Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease.

Pelentsov, Lemuel J; Fielder, Andrea L; Laws, Thomas A; Esterman, Adrian J

Pelentsov, Lemuel J; Fielder, Andrea L; Laws, Thomas A; Esterman, Adrian J.

Afiliación

Pelentsov LJ; School of Nursing and Midwifery.
Fielder AL; Sansom Institute for Health Research; School of Pharmacy and Medical Sciences, University of South Australia, Adelaide, SA, Australia.
Laws TA; School of Nursing and Midwifery, Faculty of Health, Keele University, Staffordshire, UK.
Esterman AJ; School of Nursing and Midwifery; Sansom Institute for Health Research; Australian Institute for Health and Tropical Medicine, James Cook University, Cairns, QLD, Australia.

J Multidiscip Healthc ; 9: 425-33, 2016.

Article en En | MEDLINE | ID: mdl-27672327

Palabras clave

factor analysis; measure; parents; rare diseases; scale; supportive care needs

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Texto completo: 1 Bases de datos: MEDLINE Tipo de estudio: Prognostic_studies Idioma: En Revista: J Multidiscip Healthc Año: 2016 Tipo del documento: Article