Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.
South Med J
; 112(3): 190-197, 2019 03.
Article
en En
| MEDLINE
| ID: mdl-30830235
ABSTRACT
OBJECTIVE:
More effective transitions and transfers of young people with sickle cell disease (SCD) into the adult healthcare setting is a focus of both primary care and specialty care medical organizations. Effective transition and transfer requires six core elements establishing a policy, tracking progress, administering transition readiness assessments, planning for adult care, transferring to adult care, and integrating into an adult practice. We developed a program using these six core elements. The objective of our report was to assess the development and implementation of this program.METHODS:
We used the six core elements to develop and implement a program at Virginia Commonwealth University for children and adolescents with SCD to transition to adult health care.RESULTS:
We assessed individuals' differences by age and grade, their independent living skills, their feelings about moving to adult care; tallied and analyzed several assessment scales; and assessed transfer success and patient retention.CONCLUSIONS:
The principles and lessons we learned in developing and implementing this program over 5 years, accompanied by caring, flexible, and dedicated care team members, often can overcome even severe barriers to care transitions.
Texto completo:
1
Bases de datos:
MEDLINE
Asunto principal:
Conocimientos, Actitudes y Práctica en Salud
/
Transición a la Atención de Adultos
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Retención en el Cuidado
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Anemia de Células Falciformes
Tipo de estudio:
Evaluation_studies
Límite:
Adolescent
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Adult
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Female
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Humans
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Male
Idioma:
En
Revista:
South Med J
Año:
2019
Tipo del documento:
Article