Psychosocial impacts of Mendelian eye conditions: A systematic literature review.
Surv Ophthalmol
; 65(5): 562-580, 2020.
Article
en En
| MEDLINE
| ID: mdl-32059951
ABSTRACT
The diagnosis of a heritable (Mendelian) eye condition can have a significant impact on patients and their families. Although a diverse group of conditions, many Mendelian eye conditions are early-onset, untreatable, progressive, and result in significant visual disability. To increase understanding of the challenges faced by this population, we review studies describing the psychosocial impacts of Mendelian eye conditions. Reduced mental health and quality of life and increased strain on relationships are common themes. We synthesize the evidence presented in this review to propose an overall model of illness factors, cultural factors, psychosocial impacts, and quality of life. Finally, we discuss implications for patient management and future research directions.
Palabras clave
Texto completo:
1
Bases de datos:
MEDLINE
Asunto principal:
Calidad de Vida
/
Enfermedades de la Retina
/
Adaptación Psicológica
/
Salud Mental
Tipo de estudio:
Prognostic_studies
/
Systematic_reviews
Límite:
Humans
Idioma:
En
Revista:
Surv Ophthalmol
Año:
2020
Tipo del documento:
Article
País de afiliación:
Estados Unidos