Lived Experience of Jordanian Parents Having a Child with Duchenne Muscular Dystrophy.

Obeidat, Hala Mahmoud; Al Hadid, Lourance A; Al-Sagarat, Ahmad Yahya; Khrisat, Majed

Obeidat, Hala Mahmoud; Al Hadid, Lourance A; Al-Sagarat, Ahmad Yahya; Khrisat, Majed.

Afiliación

Obeidat HM; Maternal and Child Health Nursing, Mutah University, Jordan. Electronic address: obeidathala@yahoo.com.
Al Hadid LA; Department of Nursing, Aisha Bint Al Hussein College of Nursing and Health Sciences, Al Hussein Bin Talal University, Jordan. Electronic address: Hadid.l@ahu.edu.jo.
Al-Sagarat AY; Community and Mental Health Nursing Department, Faculty of Nursing, Mutah University, Jordan. Electronic address: sagarat74@mutah.edu.jo.
Khrisat M; Pediatric Nursing, Mutah University, Jordan.

J Pediatr Nurs ; 57: 5-10, 2021.

Article en En | MEDLINE | ID: mdl-33207304

Asunto(s)

Distrofia Muscular de Duchenne; Niño; Familia; Humanos; Jordania; Distrofia Muscular de Duchenne/diagnóstico; Distrofia Muscular de Duchenne/terapia; Padres; Calidad de Vida

Palabras clave

Coping; Duchenne Muscular Dystrophy; Family burden; Lived experience

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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Distrofia Muscular de Duchenne Tipo de estudio: Diagnostic_studies / Qualitative_research Límite: Child / Humans País/Región como asunto: Asia Idioma: En Revista: J Pediatr Nurs Asunto de la revista: ENFERMAGEM / PEDIATRIA Año: 2021 Tipo del documento: Article

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