Caregiver Decision-making in Pediatric Intestinal Failure: A Qualitative Study Focused on Iron Deficiency Anemia.
J Pediatr Gastroenterol Nutr
; 72(3): 446-450, 2021 03 01.
Article
en En
| MEDLINE
| ID: mdl-33560760
ABSTRACT
BACKGROUND:
Caregivers of children with intestinal failure (IF) face difficult decisions without a clear best alternative. Providers assist in decision-making but often lack knowledge of caregiver perspectives. Using decision-making around anemia treatment as a focal point, we explored how caregivers of children with IF prefer to make decisions. Our goal was to offer insight to guide providers as they assist in decision-making.METHODS:
We conducted 12 half-hour semistructured interviews with parents of children with IF. Interview questions addressed general decision-making and specifics of iron supplementation, including key factors and stakeholders in decision-making. Interviews were transcribed verbatim. Two investigators coded the transcripts and inductively derived themes.RESULTS:
Four themes were identified regarding decision-making. They involved the search for reliable, accurate, and positive information; the role of caretakers on the medical team; the relationships between caretakers and the medical team; and effective communication. Themes around anemia treatment included identification of anemia by bloodwork; proactive supplementation; individualized regimens; prioritizing safety and convenience.CONCLUSIONS:
Understanding caregiver perspectives regarding anemia treatment in pediatric IF identifies opportunities for systematic quality improvement.
Texto completo:
1
Bases de datos:
MEDLINE
Asunto principal:
Cuidadores
/
Anemia Ferropénica
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Límite:
Child
/
Humans
Idioma:
En
Revista:
J Pediatr Gastroenterol Nutr
Año:
2021
Tipo del documento:
Article
País de afiliación:
Panamá