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Quality of life measurement in teledermatology. Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Teledermatology.
Chernyshov, P V; Finlay, A Y; Tomas-Aragones, L; Tognetti, L; Moscarella, E; Pasquali, P; Manolache, L; Pustisek, N; Svensson, A; Marron, S E; Bewley, A; Salavastru, C; Suru, A; Koumaki, D; Linder, D; Abeni, D; Augustin, M; Blome, C; Salek, S S; Evers, A W M; Poot, F; Sampogna, F; Szepietowski, J С.
Afiliación
  • Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine.
  • Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK.
  • Tomas-Aragones L; Department of Psychology, University of Zaragoza, Zaragoza, Spain.
  • Tognetti L; Dermatology Unit, Department of Medical, Surgical and Neurosciences, University of Siena, Siena, Italy.
  • Moscarella E; Dermatology Unit, University of Campania Luigi Vanvitelli, Naples, Italy.
  • Pasquali P; Dermatology Department, Pius Hospital de Valls, Tarragona, Spain.
  • Manolache L; Dermatology, Dali Medical, Bucharest, Romania.
  • Pustisek N; Children's Hospital Zagreb, Zagreb, Croatia.
  • Svensson A; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden.
  • Marron SE; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain.
  • Bewley A; Whipps Cross University Hospital, London, UK.
  • Salavastru C; The Royal London Hospital, London, UK.
  • Suru A; Department of Paediatric Dermatology, Colentina Clinical Hospital, "Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.
  • Koumaki D; Department of Paediatric Dermatology, Colentina Clinical Hospital, "Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.
  • Linder D; Department of Dermatology and Venereology, University Hospital of Heraklion, Crete, Greece.
  • Abeni D; University Clinic for Medical Psychology and Psychotherapy, Medical University of Graz, Austria.
  • Augustin M; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.
  • Blome C; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Salek SS; Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Evers AWM; School of Life & Medical Sciences, University of Hertfordshire, Hatfield, UK.
  • Poot F; Institute of Psychology, Health, Medical, and Neuropsychology unit, Leiden University, Leiden, The Netherlands.
  • Sampogna F; Department of Dermatology, University Hospital Erasme, Brussels, Belgium.
  • Szepietowski JС; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.
J Eur Acad Dermatol Venereol ; 38(2): 254-264, 2024 Feb.
Article en En | MEDLINE | ID: mdl-37877648
Many events, including the COVID-19 pandemic, have accelerated the implementation of teledermatology pathways within dermatology departments and across healthcare organizations. Quality of Life (QoL) assessment in dermatology is also a rapidly developing field with a gradual shift from theory to practice. The purpose of this paper organized jointly by the European Academy of Dermatology and Venereology (EADV) Task Force (TF) on QoL and patient-oriented outcomes and the EADV TF on teledermatology is to present current knowledge about QoL assessment during the use of teledermatology approaches, including data on health-related (HR) QoL instruments used in teledermatology, comparison of influence of different treatment methods on HRQoL after face-to-face and teledermatology consultations and to make practical recommendations concerning the assessment of QoL in teledermatology. The EADV TFs made the following position statements: HRQoL assessment may be an important part in most of teledermatology activities; HRQoL assessment may be easily and effectively performed during teledermatology consultations. It is especially important to monitor HRQoL of patients with chronic skin diseases during lockdowns or in areas where it is difficult to reach a hospital for face-to-face consultation; regular assessment of HRQoL of patients with skin diseases during teledermatology consultations may help to monitor therapy efficacy and visualize individual patient's needs; we recommend the use of the DLQI in teledermatology, including the use of the DLQI app which is available in seven languages; it is important to develop apps for dermatology-specific HRQoL instruments for use in children (for example the CDLQI and InToDermQoL) and for disease-specific instruments.
Asunto(s)

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Enfermedades de la Piel / Venereología / Dermatología Límite: Child / Humans Idioma: En Revista: J Eur Acad Dermatol Venereol Asunto de la revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Año: 2024 Tipo del documento: Article País de afiliación: Ucrania

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Enfermedades de la Piel / Venereología / Dermatología Límite: Child / Humans Idioma: En Revista: J Eur Acad Dermatol Venereol Asunto de la revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Año: 2024 Tipo del documento: Article País de afiliación: Ucrania