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"The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease.
Baumann, Ana A; Hankins, Jane S; Hsu, Lewis L; Gibson, Robert W; Richardson, Lynne D; Treadwell, Marsha; Glassberg, Jeffrey A; Bourne, Sarah; Luo, Lingzi; Masese, Rita V; Demartino, Terri; Nocek, Judith; Taaffe, Elizabeth; Gollan, Sierra; Ruiz, Ome-Ollin; Nwosu, Chinonyelum; Qashou, Nai; James, Aimee S; Tanabe, Paula; King, Allison A.
Afiliación
  • Baumann AA; Division of Public Health Sciences, Department of Surgery, Washington University, Saint Louis, MO, USA. abaumannwalker@wustl.edu.
  • Hankins JS; Department of Global Pediatric Medicine, St. Jude Children's Research Hospital, Memphis, TN, USA.
  • Hsu LL; Center for Sickle Cell Disease, University of Tennessee Health Science Center, Memphis, TN, USA.
  • Gibson RW; Sickle Cell Center, University of Illinois at Chicago, Chicago, IL, USA.
  • Richardson LD; Augusta University, Augusta, GA, USA.
  • Treadwell M; Icahn School of Medicine at Mount Sinai, Institute for Health Equity Research, New York City, NY, USA.
  • Glassberg JA; Department of Pediatrics, Division of Hematology, University of California San Francisco, San Francisco, CA, USA.
  • Bourne S; Department of Emergency Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Luo L; Addiction Sciences Division, Medical University of South Carolina, Charleston, SC, USA.
  • Masese RV; School of Global Public Health, New York University, New York City, NY, USA.
  • Demartino T; Duke University School of Nursing, Durham, NC, USA.
  • Nocek J; Duke University School of Nursing, Durham, NC, USA.
  • Taaffe E; Sickle Cell Center, University of Illinois at Chicago, Chicago, IL, USA.
  • Gollan S; Department of Pediatrics, Washington University in St. Louis, St Louis, MO, USA.
  • Ruiz OO; Augusta University, Augusta, GA, USA.
  • Nwosu C; Department of Pediatrics, Division of Hematology, University of California San Francisco, San Francisco, CA, USA.
  • Qashou N; Department of Global Pediatric Medicine, St. Jude Children's Research Hospital, Memphis, TN, USA.
  • James AS; Department of Hematology, St. Jude, Memphis, TN, USA.
  • Tanabe P; Department of Pediatrics, Washington University in St. Louis, St Louis, MO, USA.
  • King AA; Division of Public Health Sciences, Department of Surgery, Washington University, Saint Louis, MO, USA.
BMC Health Serv Res ; 23(1): 1245, 2023 Nov 13.
Article en En | MEDLINE | ID: mdl-37953236
BACKGROUND: This study aimed to capture the implementation process of the ALIGN Study, (An individualized Pain Plan with Patient and Provider Access for Emergency Department care of Sickle Cell Disease). ALIGN aimed to embed Individualized Pain Plans in the electronic health record (E-IPP) and provide access to the plan for both adult patients with sickle cell disease (SCD) and emergency department providers when a person with SCD comes to the emergency department in vaso-occlusive crises. METHODS: Semi-structured interviews were conducted with research teams from the 8 participating sites from the ALIGN study. Seventeen participants (principal investigators and study coordinators) shared their perspectives about the implementation of ALIGN in their sites. Data were analyzed in three phases using open coding steps adapted from grounded theory and qualitative content analysis. RESULTS: A total of seven overarching themes were identified: (1) the E-IPP structure (location and upkeep) and collaboration with the informatics team, (2) the role of ED champion, (3) the role of research coordinators, (4) research team communication, and communication between research team and clinical team, (5) challenges with the study protocol, (6) provider feedback: addressing over-utilizers, patient mistrust, and the positive feedback about the intervention, and (7) COVID-19 and its effects on study implementation. CONCLUSIONS: Findings from this study contribute to learning how to implement E-IPPs for adult patients with SCD in ED. The study findings highlight the importance of early engagement with different team members, a champion from the emergency department, study coordinators with different skills and enhancement of communication and trust among team members. Further recommendations are outlined for hospitals aiming to implement E-IPP for patients with SCD in ED.
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Manejo del Dolor / Anemia de Células Falciformes Límite: Adult / Humans Idioma: En Revista: BMC Health Serv Res Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Manejo del Dolor / Anemia de Células Falciformes Límite: Adult / Humans Idioma: En Revista: BMC Health Serv Res Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos