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Stakeholder Engagement in Type 1 Diabetes Research, Quality Improvement, and Clinical Care.
Rioles, Nicole; March, Christine; Muñoz, Cynthia E; Ilkowitz, Jeniece; Ohmer, Amy; Wolf, Risa M.
Afiliación
  • Rioles N; T1D Exchange, Boston, MA, USA.
  • March C; Division of Pediatric Endocrinology and Diabetes, University of Pittsburgh, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.
  • Muñoz CE; Department of Pediatrics, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA.
  • Ilkowitz J; Pediatric Diabetes Center, NYU Langone Health, New York, NY, USA.
  • Ohmer A; International Children's Advisory Network, Atlanta, GA, USA.
  • Wolf RM; Department of Pediatrics, Division of Endocrinology, Johns Hopkins University School of Medicine, Baltimore, MD, USA. Electronic address: RWolf@jhu.edu.
Endocrinol Metab Clin North Am ; 53(1): 165-182, 2024 Mar.
Article en En | MEDLINE | ID: mdl-38272594
ABSTRACT
The integration of stakeholder engagement (SE) in research, quality improvement (QI), and clinical care has gained significant traction. Type 1 diabetes is a chronic disease that requires complex daily management and care from a multidisciplinary team across the lifespan. Inclusion of key stakeholder voices, including patients, caregivers, health care providers and community advocates, in the research process and implementation of clinical care is critical to ensure representation of perspectives that match the values and goals of the patient population. This review describes the current framework for SE and its application to research, QI, and clinical care across the lifespan.
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Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Diabetes Mellitus Tipo 1 Límite: Humans Idioma: En Revista: Endocrinol Metab Clin North Am Asunto de la revista: ENDOCRINOLOGIA / METABOLISMO Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos

Texto completo: 1 Bases de datos: MEDLINE Asunto principal: Diabetes Mellitus Tipo 1 Límite: Humans Idioma: En Revista: Endocrinol Metab Clin North Am Asunto de la revista: ENDOCRINOLOGIA / METABOLISMO Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos