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Cumulus: A federated EHR-based learning system powered by FHIR and AI.
McMurry, Andrew J; Gottlieb, Daniel I; Miller, Timothy A; Jones, James R; Atreja, Ashish; Crago, Jennifer; Desai, Pankaja M; Dixon, Brian E; Garber, Matthew; Ignatov, Vladimir; Kirchner, Lyndsey A; Payne, Philip R O; Saldanha, Anil J; Shankar, Prabhu R V; Solad, Yauheni V; Sprouse, Elizabeth A; Terry, Michael; Wilcox, Adam B; Mandl, Kenneth D.
Afiliación
  • McMurry AJ; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Gottlieb DI; Department of Pediatrics, Harvard Medical School, Boston, MA.
  • Miller TA; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Jones JR; Department of Biomedical Informatics, Harvard Medical School, Boston, MA.
  • Atreja A; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Crago J; Department of Pediatrics, Harvard Medical School, Boston, MA.
  • Desai PM; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Dixon BE; Department of Health Information Technology, UC Davis Health, Rancho Cordova, CA.
  • Garber M; Center for Biomedical Informatics, Regenstrief Institute, Indianapolis, IN.
  • Ignatov V; Department of Internal Medicine, Rush University Medical Center, Chicago IL.
  • Kirchner LA; Center for Biomedical Informatics, Regenstrief Institute, Indianapolis, IN.
  • Payne PRO; Department of Health Policy and Management, Fairbanks School of Public Health, Indiana University, Indianapolis, IN.
  • Saldanha AJ; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Shankar PRV; Computational Health Informatics Program, Boston Children's Hospital, Boston, MA.
  • Solad YV; CDC Foundation, Atlanta, GA.
  • Sprouse EA; Department of Medicine, Washington University in St. Louis, St. Louis, MO.
  • Terry M; Department of Health Innovation, Rush University Medical Center, Chicago, IL.
  • Wilcox AB; Department of Health Information Technology, UC Davis Health, Rancho Cordova, CA.
  • Mandl KD; Department of Public Health Sciences, UC Davis Health, Davis , CA.
medRxiv ; 2024 Feb 06.
Article en En | MEDLINE | ID: mdl-38370642
ABSTRACT

Objective:

To address challenges in large-scale electronic health record (EHR) data exchange, we sought to develop, deploy, and test an open source, cloud-hosted app 'listener' that accesses standardized data across the SMART/HL7 Bulk FHIR Access application programming interface (API).

Methods:

We advance a model for scalable, federated, data sharing and learning. Cumulus software is designed to address key technology and policy desiderata including local utility, control, and administrative simplicity as well as privacy preservation during robust data sharing, and AI for processing unstructured text.

Results:

Cumulus relies on containerized, cloud-hosted software, installed within a healthcare organization's security envelope. Cumulus accesses EHR data via the Bulk FHIR interface and streamlines automated processing and sharing. The modular design enables use of the latest AI and natural language processing tools and supports provider autonomy and administrative simplicity. In an initial test, Cumulus was deployed across five healthcare systems each partnered with public health. Cumulus output is patient counts which were aggregated into a table stratifying variables of interest to enable population health studies. All code is available open source. A policy stipulating that only aggregate data leave the institution greatly facilitated data sharing agreements. Discussion and

Conclusion:

Cumulus addresses barriers to data sharing based on (1) federally required support for standard APIs (2), increasing use of cloud computing, and (3) advances in AI. There is potential for scalability to support learning across myriad network configurations and use cases.
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