[Educational program for doctors and nurses taking care for primary immunodeficiency patients treated with subcutaneous immunoglobulins]. / Propozycja programu edukacyjnego dla lekarzy i pielegniarek zajmujacych sie terapia substytucyjna podskórnymi preparatami immunoglobulin u pacjentów z pierwotnymi niedoborami odpornosci.

ABSTRACT

Primary immunodeficiency diseases (PIDs) are presenting the most common in childhood. PID are genetically determined disorders of the immune system resulting in greatly enhanced susceptibility to infectious disease. Therapy in these group of patients preventing infectious diseases is immunoglobulin (Ig) replacement therapy. Nowadays the quality of life is very important issue which doctors should consider treating their patients. The subcutaneous immunoglobulins appears to be the best solution for them. Treating patients with subcutaneous Ig require good educational programme not only for patients but also for doctors and nurses. We would like to provide practical guidelines for identifying patients who should be referred for assessment of possible immunodeficiency and give some practical instructions how to start and follow-up subcutaneous therapy in all centers of immunology in Poland who are engaged in this kind of treatment.