Impact of childhood psoriasis on parents of affected children.
J Am Acad Dermatol
; 76(2): 286-289.e5, 2017 Feb.
Article
em En
| MEDLINE
| ID: mdl-27865579
ABSTRACT
BACKGROUND:
Childhood diseases, such as atopic dermatitis, have a negative impact on quality of life (QoL) of parents. How pediatric psoriasis affects a parent's QoL is unknown.OBJECTIVE:
To explore the impact of childhood psoriasis on the lives of the parents.METHODS:
Semistructured interviews were conducted with 31 parents of children with psoriasis. Narrative data were analyzed and a conceptual framework of the effects of childhood psoriasis on parents was developed.RESULTS:
All parents reported that their child's psoriasis caused a substantial, negative impact on their own QoL. A conceptual framework showed a negative impact on health and self-care, emotional well-being, family and social function, personal well-being, and life pursuits. Emotional well-being was the most affected domain.LIMITATIONS:
It was not possible to correlate psoriasis severity with parental QoL.CONCLUSION:
Childhood psoriasis alters the QoL of parents in multiple ways. Information from this study can be used to develop a QoL instrument to explore treatment and support strategies for families affected by pediatric psoriasis.Palavras-chave
Texto completo:
1
Bases de dados:
MEDLINE
Assunto principal:
Pais
/
Psoríase
/
Qualidade de Vida
/
Saúde da Família
Tipo de estudo:
Qualitative_research
Limite:
Adolescent
/
Child
/
Child, preschool
/
Female
/
Humans
/
Infant
/
Male
Idioma:
En
Revista:
J Am Acad Dermatol
Ano de publicação:
2017
Tipo de documento:
Article