Experience of health care at a reference centre as reported by patients and parents of children with rare conditions.

Hytiris, Monica; Johnston, Daisy; Mullen, Shannon; Smyth, Arlene; Dougan, Elizabeth; Rodie, Martina; Ahmed, S Faisal

Hytiris, Monica; Johnston, Daisy; Mullen, Shannon; Smyth, Arlene; Dougan, Elizabeth; Rodie, Martina; Ahmed, S Faisal.

Afiliação

Hytiris M; Office for Rare Conditions, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK. monica.hytiris@ggc.scot.nhs.uk.
Johnston D; Royal Hospital for Children, University of Glasgow, Glasgow, G51 4TF, UK. monica.hytiris@ggc.scot.nhs.uk.
Mullen S; Office for Rare Conditions, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK.
Smyth A; Royal Hospital for Children, University of Glasgow, Glasgow, G51 4TF, UK.
Dougan E; Office for Rare Conditions, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK.
Rodie M; Royal Hospital for Children, University of Glasgow, Glasgow, G51 4TF, UK.
Ahmed SF; Office for Rare Conditions, School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK.

Orphanet J Rare Dis ; 16(1): 65, 2021 02 04.

Article em En | MEDLINE | ID: mdl-33541389

Assuntos

Família; Pais; Criança; Atenção à Saúde; Pessoal de Saúde; Humanos; Inquéritos e Questionários

Palavras-chave

Benchmarks; Paediatrics; Patient experience; Rare disease

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Texto completo: 1 Bases de dados: MEDLINE Assunto principal: Pais / Família Limite: Child / Humans Idioma: En Revista: Orphanet J Rare Dis Assunto da revista: MEDICINA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Reino Unido

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