Moving beyond translation: Development of WeCope, a self-management resource for Chinese-Australian immigrants affected by cancer.
Eur J Cancer Care (Engl)
; 31(1): e13531, 2022 Jan.
Article
em En
| MEDLINE
| ID: mdl-34697854
ABSTRACT
OBJECTIVE:
Currently, there are no self-management resources in Australia that support both Chinese immigrant patients affected by cancer and their caregivers. This paper reports on the development and acceptability assessment of a self-management intervention (WeCope) in terms of its scope, social and cultural relevance and sensitivity.METHODS:
Using a community participatory approach in this qualitative study, patients, caregivers and community members took part in semi-structured focus groups or interviews in Cantonese, Mandarin or English to develop and provide feedback on the acceptability of 'WeCope'. Content analysis was performed on the transcripts using inductive (codes) and deductive (themes and categories) methods.RESULTS:
Patients (n = 17), caregivers (n = 10) and community members (n = 2) participated. Four themes were developed, guided by the framework of cultural sensitivity ininterventions:
(1) content preference and satisfaction; (2) perceived usefulness and usability; (3) cultural relevance and acceptability; and (4) layout and presentation. Participants most commonly wanted more information about treatment-related issues (n = 14) and available support services (n = 14).CONCLUSION:
Chinese patients and caregivers expressed overall satisfaction with the WeCope resource and provided suggestions for improvement, including provision of more treatment-related information and contact details for available support while reducing the overall resource length.Palavras-chave
Texto completo:
1
Bases de dados:
MEDLINE
Assunto principal:
Emigrantes e Imigrantes
/
Autogestão
/
Neoplasias
Tipo de estudo:
Qualitative_research
Limite:
Humans
País/Região como assunto:
Asia
/
Oceania
Idioma:
En
Revista:
Eur J Cancer Care (Engl)
Assunto da revista:
ENFERMAGEM
/
NEOPLASIAS
Ano de publicação:
2022
Tipo de documento:
Article
País de afiliação:
Austrália