Decisional Satisfaction, Regret, and Conflict Among Parents of Infants with Neurologic Conditions.
J Pediatr
; 245: 81-88.e3, 2022 06.
Article
em En
| MEDLINE
| ID: mdl-35227757
ABSTRACT
OBJECTIVE:
To characterize decisional satisfaction, regret, and conflict among parents of critically ill infants with neurologic conditions. STUDYDESIGN:
In this prospective cohort study, we enrolled parents of infants with neurologic conditions in the intensive care unit (ICU). Hospital discharge surveys included the validated Family Satisfaction with the ICU (FS-ICU) decision making subscale, Decision Regret Scale (DRS), and Decisional Conflict Scale (DCS). We defined high satisfaction with decision making as an FS-ICU score ≥75, high decisional regret/conflict as DRS/DCS score >25, and within-couple disagreement as a difference of at least 25 points between scores.RESULTS:
We enrolled 61 parents of 40 infants (n = 40 mothers, n = 21 fathers); 35 mothers and 15 fathers completed surveys. Most mothers reported high satisfaction with decision making (27 of 35; 77%) and low decision regret (28 of 35; 80%); 40% (14 of 35) reported high decisional conflict. Mothers and fathers reported higher decisional conflict in the domains of uncertainty and values clarity compared with the domain of effective decision making (Bonferroni-corrected P < .05). There were no differences in decision outcomes between paired mothers and fathers; however, within any given couple, there were numerous instances of disagreement (7 of 15 for decision regret and 5 of 15 for decisional conflict).CONCLUSIONS:
Many parents experience decisional conflict even if they ultimately have high satisfaction and low regret, underscoring the need for decision aids targeting uncertainty and values clarity. Couples frequently experience different levels of decisional regret and conflict.Palavras-chave
Texto completo:
1
Bases de dados:
MEDLINE
Assunto principal:
Satisfação Pessoal
/
Tomada de Decisões
Tipo de estudo:
Observational_studies
/
Prognostic_studies
Limite:
Humans
/
Infant
Idioma:
En
Revista:
J Pediatr
Ano de publicação:
2022
Tipo de documento:
Article
País de afiliação:
Nova Caledônia