Professional activity, gender and disease-related emotions: The impact on parents' experiences in caring for children with phenylketonuria.

Walkowiak, Dariusz; Domaradzki, Jan; Mozrzymas, Renata; Korycinska-Chaaban, Dorota; Dus-Zuchowska, Monika; Didycz, Bozena; Mikoluc, Bozena; Walkowiak, Jaroslaw

Walkowiak, Dariusz; Domaradzki, Jan; Mozrzymas, Renata; Korycinska-Chaaban, Dorota; Dus-Zuchowska, Monika; Didycz, Bozena; Mikoluc, Bozena; Walkowiak, Jaroslaw.

Afiliação

Walkowiak D; Department of Organization and Management in Health Care, Poznan University of Medical Sciences, Poznan, Poland.
Domaradzki J; Department of Social Sciences and Humanities, Poznan University of Medical Sciences, Poznan, Poland.
Mozrzymas R; Research and Development Center, Regional Specialist Hospital, Wroclaw, Poland.
Korycinska-Chaaban D; PKU Polyclinic, Institute of Mother and Child, Warsaw, Poland.
Dus-Zuchowska M; Department of Pediatric Gastroenterology and Metabolic Diseases, Poznan University of Medical Sciences, Poland.
Didycz B; Outpatient Metabolic Clinic, University Children's Hospital, Cracow, Poland.
Mikoluc B; Department of Pediatrics, Rheumatology, Immunology and Metabolic Bone Diseases, Medical University of Bialystok, Poland.
Walkowiak J; Department of Pediatric Gastroenterology and Metabolic Diseases, Poznan University of Medical Sciences, Poland.

Mol Genet Metab Rep ; 36: 100992, 2023 Sep.

Article em En | MEDLINE | ID: mdl-37502286

Palavras-chave

Caregivers; Children; Disease-related emotions; Experience; Gender; PKU; Phenylketonuria; Professional activity; Rare diseases

Texto completo

Adicionar na Minha BVS

Imprimir

XML

PubMed Links

Buscar no Google

Texto completo: 1 Bases de dados: MEDLINE Idioma: En Revista: Mol Genet Metab Rep Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Polônia